Book contents
- Sharing Linked Data for Health Research
- Cambridge Bioethics and Law
- Sharing Linked Data for Health Research
- Copyright page
- Epigraph
- Contents
- Figures
- Tables
- Foreword
- Acknowledgements
- Abbreviations
- Introduction
- Part I Context for Decision Making
- Part II Frameworks for Decision Making
- 4 Human Rights
- 5 Research Ethics
- 6 Law
- Part III Practice and Process of Decision Making
- Glossary
- Index
- Cambridge Bioethics and Law
4 - Human Rights
from Part II - Frameworks for Decision Making
Published online by Cambridge University Press: 02 June 2022
Book contents
- Sharing Linked Data for Health Research
- Cambridge Bioethics and Law
- Sharing Linked Data for Health Research
- Copyright page
- Epigraph
- Contents
- Figures
- Tables
- Foreword
- Acknowledgements
- Abbreviations
- Introduction
- Part I Context for Decision Making
- Part II Frameworks for Decision Making
- 4 Human Rights
- 5 Research Ethics
- 6 Law
- Part III Practice and Process of Decision Making
- Glossary
- Index
- Cambridge Bioethics and Law
Summary
Chapter 4 considers the human rights relevant to research using linked data without consent; how these rights come into tension with each other and other relevant interests; and how these tensions should be considered and resolved. It notes the emphasis placed in the West on civil and political rights, such as the right to privacy, and the lack of attention to economic, social, and cultural rights, such as the right to health, and how this has resulted in an unbalanced approach to the regulation of research.
- Type
- Chapter
- Information
- Sharing Linked Data for Health ResearchToward Better Decision Making, pp. 85 - 105Publisher: Cambridge University PressPrint publication year: 2022