Hostname: page-component-78c5997874-fbnjt Total loading time: 0 Render date: 2024-11-10T13:25:38.609Z Has data issue: false hasContentIssue false

Developing best practice guidelines for designing living environments for people with dementia and sight loss

Published online by Cambridge University Press:  30 January 2017

ALISON BOWES*
Affiliation:
Faculty of Social Sciences, University of Stirling, UK.
ALISON DAWSON
Affiliation:
Faculty of Social Sciences, University of Stirling, UK.
CORINNE GREASLEY-ADAMS
Affiliation:
Faculty of Social Sciences, University of Stirling, UK.
LOUISE MCCABE
Affiliation:
Faculty of Social Sciences, University of Stirling, UK.
*
Address for correspondence: Alison Bowes, Faculty of Social Sciences, University of Stirling, Stirling FK9 4LA, UK E-mail: a.m.bowes@stir.ac.uk

Abstract

The paper considers a process of developing evidence-based design guidelines to be used in environments where people with dementia and sight loss are living. The research involved a systematically conducted literature review and a series of consultations with people affected by dementia and/or sight loss who lived or worked in care homes or in domestic settings. Findings from the literature and the consultations were used in an iterative process to develop the guidelines. The process is outlined, providing examples from the guidelines about lighting and colour and contrast. In discussing the research findings and the development process, the authors consider implications of the work including the weakness of the evidence base, the challenges of improving this and the need for innovative approaches to understanding the complexities of design for people with dementia and sight loss. They highlight the emphasis in the literature on independence for people with sight loss and the focus on control of people with dementia, arguing that this falls short of a genuinely person-centred approach, which recognises the active participation of people with dementia and sight loss.

Type
Article
Copyright
Copyright © Cambridge University Press 2017 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Alonso-Coello, P., Irfan, A., Sola, I., Gich, I., Delgado-Noguera, M., Rigau, D., Tort, S., Bonfill, X., Burgers, J. and Schunemann, H. 2010. The quality of clinical practice guidelines over the last two decades: a systematic review of guideline appraisal studies. Quality and Safety in Health Care, 19, 6, e58.Google Scholar
Alzheimer's Society 2013. Sight, perception and hallucinations in dementia. Factsheet 527LP, Alzheimer's Society, London.Google Scholar
Alzheimer' Society 2014. Dementia UK: Update. Second edition, Alzheimer's Society, London.Google Scholar
Ansari, S. and Rashidian, A. 2012. Guidelines for guidelines: are they up to the task? A comparative assessment of clinical practice guideline development handbooks. PLoS ONE, 7, 11, e49864.Google Scholar
Astell, A., Alm, N., Gowans, G., Ellis, M., Dye, R. and Vaughan, P. 2009. Involving older people with dementia and their carers in designing computer based support systems: some methodological considerations. Universal Access in the Information Society, 8, 1, 4959.Google Scholar
Barnes, S. and the Design in Caring Environments Study Group 2002. The design of caring environments and the quality of life of older people. Ageing & Society, 22, 6, 775–89.Google Scholar
Bossen, A. 2010. The importance of getting back to nature for people with dementia. Journal of Gerontological Nursing, 36, 2, 1722.Google Scholar
Bowes, A., Dawson, A., Greasley-Adams, C. and McCabe, L. 2016. Design of residential environments for people with dementia and sight loss: a structured literature review. British Journal of Visual Impairment, 34, 3, 225–37.CrossRefGoogle Scholar
Brooker, D. 2003. What is person-centred care in dementia? Reviews in Clinical Gerontology, 13, 3, 215–22.Google Scholar
Brouwers, M. C., Kho, M. E., Browman, G. P., Burgers, J. S., Cluzeau, F., Feder, G., Fervers, B., Graham, I. D., Steven, E., Hanna, S. E. and Makarski, J. 2010. Development of the AGREE II, part 1: performance, usefulness and areas for improvement. Canadian Medical Association Journal, 182, 10, 1045–52.Google Scholar
Brunnström, G., Sörensen, S., Alsterstad, K. and Sjöstrand, J. 2004. Quality of light and quality of life – the effect of lighting adaptation among people with low vision. Ophthalmic and Physiological Optics, 24, 4, 274–80.Google Scholar
Brush, J. A., Meehan, R. A. and Calkins, M. P. 2002. Using the environment to improve intake for people with dementia. Alzheimer's Care Quarterly, 3, 4, 330–8.Google Scholar
Calkins, M. P. 2002. How colour throws light on design in dementia care. Journal of Dementia Care, 10, 4, 20–3.Google Scholar
Calkins, M. P. and Brush, J. A. 2002. Designing for dining: the secret of happier mealtimes. Journal of Dementia Care, 10, 2, 24–6.Google Scholar
Cochrane Effective Practice and Organisation of Care (EPOC) group (2002) ‘Data Extraction Form, part of the EPOC Data Collection Template’ Available online at http://epoc.cochrane.org/sites/epoc.cochrane.org/files/uploads/Data%20Abstraction%20Form%20-%20EPOC%20-%202012-Feb-23.doc, [Accessed 12 November 2013]. Now see: Effective Practice and Organisation of Care (EPOC) (2015). EPOC Resources for review authors. Oslo: Norwegian Knowledge Centre for the Health Services. Available online at: http://epoc.cochrane.org/epoc-specific-resources-review-authors, [Accessed 19 December 2016].Google Scholar
Critical Appraisal Skills Programme (CASP) (undated). ‘Critical appraisal checklists’. Now see: Critical Appraisal Skills Programme (CASP) (2013). CASP Checklists. Available online at “http://www.casp-uk.net/” \l ”!casp-tools-checklists/c18f8” http://www.casp-uk.net/casp-tools-checklists , [Accessed 19 December 2016].Google Scholar
den Brinker, B. P. L. M., Burgman, L. J., Hogervorst, S. M. J., Reehorst, S. E., Kromhout, S. and van der Windt, J. 2005. The effect of high-contrast marking of treads on the descent of stairways by low-vision people. International Congress Series, 1282, September, 502–6.Google Scholar
Department of Health 2012. Indicator 4.12: preventable sight loss. In Improving Outcomes and Supporting Transparency. Part 2: Summary Technical Specifications of Public Health Indicators. Department of Health, London, 126–29.Google Scholar
Dewing, J. 2008. Process consent and research with older persons living with dementia. Research Ethics Review, 4, 2, 5964.Google Scholar
Economic and Social Research Council (ESRC) 2015. ESRC Framework for Research Ethics 2010, Updated September 2012. Available online at http://www.esrc.ac.uk/files/funding/guidance-for-applicants/esrc-framework-for-research-ethics-2015/ Accessed 19th December 2016.Google Scholar
Fernler, K. 2015. Informed ignorance and the difficulty of using guidelines in policy processes. Evidence and Policy, 11, 3, 377–96.Google Scholar
Goodman, C. and Watson, L. 2010. Design Guidance for People with Dementia and for People with Sight Loss. Thomas Pocklington Trust Research Findings 35. Available online at http://www.pocklington-trust.org.uk/project/conflict-in-home-design-for-people-with-sight-loss-and-dementia-research-finds/ Accessed 19 December 2016.Google Scholar
Gould, N. 2010. Integrating qualitative evidence in practice guideline development: meeting the challenge of evidence-based practice for social work. Qualitative Social Work, 9, 1, 93109.CrossRefGoogle Scholar
Harding, E., Pettinari, C. J., Brown, D., Hayward, M. and Tayler, C. 2011. Service user involvement in clinical guideline development and implementation: learning from mental health service users in the UK. International Review of Psychiatry, 23, 4, 52–7.CrossRefGoogle ScholarPubMed
Homes and Communities Agency 2009. HAPPI: Housing Our Ageing Population: Panel for Innovation. Available online at http://www.homesandcommunities.co.uk/sites/default/files/happi_final_report_-_031209.pdf Accessed 19 December 2016.Google Scholar
Kelly, F., Innes, A. and Dincarslan, O. 2011. Improving care home design for people with dementia. Journal of Care Services Management, 5, 3, 147–55.CrossRefGoogle Scholar
Kovach, C., Weisman, G., Chaudhury, H. and Calkins, M. P. 1997. Impacts of a therapeutic environment for dementia care. American Journal of Alzheimer's Disease, 12, 3, 99110.Google Scholar
La Grow, S., Robertson, M. C., Campbell, A. J., Clarke, G. A. and Kerse, N. M. 2006. Reducing hazard related falls in people 75 years and older with significant visual impairment: how did a successful program work? Injury Prevention, 12, 5, 296301.Google Scholar
Lawrence, V. and Murray, J. 2009. Promoting independent living among people with dementia and sight loss. Journal of Care Services Management, 3, 3, 261–74.Google Scholar
Lawrence, V., Murray, J., Ffytche, D. and Banerjee, S. 2009. ‘Out of sight, out of mind’: a qualitative study of visual impairment and dementia from three perspectives. International Psychogeriatrics/IPA, 21, 3, 511–8.CrossRefGoogle ScholarPubMed
Lifetime Homes 2010. The Lifetime Homes Standard (from 5 July 2010). Available online at http://www.lifetimehomes.org.uk/pages/revised-design-criteria.html Accessed 19 December 2016.Google Scholar
Littlefair, P. 2010. Daylighting and Windows in Homes of People with Sight Loss. Thomas Pocklington Trust Research Findings 30. Available online at http://www.pocklington-trust.org.uk/project/daylight-and-sight-loss/ Accessed 19 December 2016.Google Scholar
Long, R. G. 1995. Housing design and persons with visual impairment: report of focus-group discussions. Journal of Visual Impairment and Blindness, 89, 1, 5969.CrossRefGoogle Scholar
Manthorpe, J. 2004. Risk taking. In Innes, A., Archibald, C. and Murphy, C. (eds), Dementia and Social Inclusion. Jessica Kingsley, London, 137–50.Google Scholar
Marquardt, G. 2011. Wayfinding for people with dementia: a review of the role of architectural design. Herd, 4, 2, 7590.Google Scholar
McNair, D., Cunningham, C., Pollock, R. and McGuire, B. 2010. Light and Lighting Design for People with Dementia. Dementia Services Development Centre, University of Stirling, Stirling, UK.Google Scholar
Moreira, T. 2005 Diversity in clinical guidelines: the role of repertoires of evaluation. Social Science and Medicine, 60, 9, 1975–85.Google Scholar
Morse, J. M., Barrett, M., Mayan, M., Olsen, K. and Spiers, J. 2002 Verification strategies for establishing reliability and validity in qualitative research. International Journal of Qualitative Methods, 1, 2, 1322.Google Scholar
NHS Centre for Reviews and Dissemination (NHS CRD) (2001) ‘Undertaking Systematic Reviews of Research on Effectiveness, CRD Report No. 4 (2nd Edition)’. York: NHS Centre for Reviews and Development.Google Scholar
Nutley, S. M., Walter, I. and Davies, H. T. O. 2007 Using Evidence: How Research Can Inform Public Services. Policy Press, Bristol, UK.Google Scholar
Parker, C., Barnes, S., McKee, K., Morgan, K., Torrington, J. and Tregenza, P. 2004 Quality of life and building design in residential and nursing homes for older people. Ageing & Society, 24, 6, 941–62.Google Scholar
Pawson, R. 2006. Evidence-based Policy: A Realist Perspective. Sage, London.CrossRefGoogle Scholar
Pawson, R. and Tilley, N. 1997. Realistic Evaluation. Sage, London.Google Scholar
Pollock, R., McNair, D., McGuire, B. and Cunningham, C. 2007. Designing Lighting for People with Dementia. The Dementia Services Development Centre and University of Stirling, Stirling, UK.Google Scholar
Royal National Institute of Blind People 2015. Key Information and Statistics. Available online at https://www.rnib.org.uk/knowledge-and-research-hub/key-information-and-statistics [Accessed 19 December 2016].Google Scholar
Sixsmith, A. J., Gibson, G., Orpwood, R. and Torrington, J. M. 2007. Developing a technology ‘wish list’ to enhance the quality of life of people with dementia. International Journal of Gerontechnology, 67, 1, 219.Google Scholar
Thomas, C. 1999. Female Forms: Experiencing and Understanding Disability. Open University Press, Buckingham, UK.Google Scholar
Torrington, J. and Lewis, A. 2011. Extra Care Housing for People with Sight Loss: Lighting and Design Issues. Thomas Pocklington Trust Research Findings 36. Available online at http://www.pocklington-trust.org.uk/project/extra-care-housing-falling-short-of-the-needs-of-people-with-sight-loss-research-finds/ Accessed 19 December 2016.Google Scholar
Unwin, B. K., Andrews, C. M., Andrews, P. M. and Hanson, J. L. 2009. Therapeutic home adaptations for older adults with disabilities. American Family Physician, 80, 9, 963–68.Google Scholar
Utton, D. 2009. The design of housing for people with dementia. Journal of Care Services Management, 3, 4, 380–90.CrossRefGoogle Scholar
van Hoof, J., Kort, H., van Waarde, H. and Blom, M. M. 2010. Environmental interventions and the design of homes for older adults with dementia: an overview. American Journal of Alzheimer's Disease and Other Dementias, 25, 3, 202–32.Google Scholar
World Health Organisation 2014. WHO Handbook for Guideline Development. Second edition, World Health Organisation, Geneva.Google Scholar