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Published online by Cambridge University Press: 26 February 2016
Robert and Louise eagerly anticipated the arrival of their first child, and when Clare was born they were elated. Their joy lasted on a few sort moments. Clare’s physical disability was obvious – only one ear, her chin depressed into her neck. The paediatrician advised an emergency tracheotomy.
Numbed with shock, Robert and Louise agreed to the operation. During the operation, Clare lost consciousness for 15 minutes. In spite of this she survived. As feeding was clearly going to be a problem, a nasogatric tube was fitted.