Hostname: page-component-78c5997874-j824f Total loading time: 0 Render date: 2024-11-10T16:48:54.980Z Has data issue: false hasContentIssue false

Primary Care–Based Memory Clinics: Expanding Capacity for Dementia Care*

Published online by Cambridge University Press:  11 August 2014

Linda Lee*
Affiliation:
The Centre for Family Medicine Family Health Team McMaster University, Department of Family Medicine
Loretta M. Hillier
Affiliation:
Specialized Geriatric Services, St. Joseph’s Health Care London Aging, Rehabilitation & Geriatric Care Research Centre of the Lawson Health Research Institute
George Heckman
Affiliation:
Research Institute for Aging and School of Public Health and Health Systems, University of Waterloo Grand River Hospital – Freeport Site McMaster University, Department of Geriatric Medicine
Micheline Gagnon
Affiliation:
McMaster University, Department of Geriatric Medicine
Michael J. Borrie
Affiliation:
Aging, Rehabilitation & Geriatric Care Research Centre of the Lawson Health Research Institute Western University, Department of Medicine, Division of Geriatric Medicine St. Joseph’s Health Care London, Parkwood Hospital
Paul Stolee
Affiliation:
Research Institute for Aging and School of Public Health and Health Systems, University of Waterloo
David Harvey
Affiliation:
Alzheimer Society of Ontario
*
La correspondance et les demandes de tirés-à-part doivent être adressées à : / Correspondence and requests for offprints should be sent to:Linda Lee, M.D., MCIScThe Centre for Family MedicineMcMaster UniversityDepartment of Family Medicine10B Victoria St. SouthKitchener, ON N2G 1C5(lee.linda.lw@gmail.com)

Abstract

The implementation in Ontario of 15 primary-care–based interprofessional memory clinics represented a unique model of team-based case management aimed at increasing capacity for dementia care at the primary-care level. Each clinic tracked referrals; in a subset of clinics, charts were audited by geriatricians, clinic members were interviewed, and patients, caregivers, and referring physicians completed satisfaction surveys. Across all clinics, 582 patients were assessed, and 8.9 per cent were referred to a specialist. Patients and caregivers were very satisfied with the care received, as were referring family physicians, who reported increased capacity to manage dementia. Geriatricians’ chart audits revealed a high level of agreement with diagnosis and management. This study demonstrated acceptability, feasibility, and preliminary effectiveness of the primary-care memory clinic model. Led by specially trained family physicians, it provided timely access to high-quality collaborative dementia care, impacting health service utilization by more-efficient use of scarce geriatric specialist resources.

Résumé

La mise en oeuvre en l’Ontario de 15 cliniques interprofessionnelles des troubles de la mémoire à base de soins primaires représente un modèle unique de gestion de cas en équipe, visant à accroître la capacité de traitement de la démence au niveau des soins primaires. Chaque clinique a suivi les patients; dans un sous-ensemble des cliniques, des graphiques ont été vérifiés par les gériatres, les membres de la clinique ont été interrogés, et les patients, les soignants et les médecins traitants ont rempli des questionnaires de satisfaction. Dans toutes les cliniques, 582 patients ont été évalués, et 8,9 pour cent ont été adressés à un spécialiste. Les patients et les soignants étaient très satisfaits des soins reçus, de même que les médecins traitants de la famille, qui ont déclaré une augmentation de la capacité à gérer la démence. La vérification des dossiers des gériatres a révélé un niveau élevé d'accord avec le diagnostic et la gestion. Cette étude a démontré l'acceptabilité, la faisabilité et l'efficacité préliminaire du modèle de clinique des troubles de la mémoire de soins primaires. Dirigée par les médecins de famille spécialement formés, il a fourni un accès en temps opportun à la haute qualité des soins de la démence collaboratives, affectant recours aux services de santé par une utilisation plus efficace des maigres ressources spécialisées en gériatrie.

Type
Articles
Copyright
Copyright © Canadian Association on Gerontology 2014 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Footnotes

*

This study was funded by the Canadian Institutes of Health Research – Institute of Health Services and Policy Research Catalyst Grant Program: Primary and Community-Based Healthcare, Grant No: 212207, the Department of Family Medicine, McMaster University, and the Centre for Family Medicine Family Health Team. The authors thank Sheri Lynn Kane and Seagram Chandrakumar for conducting chart audits as well as the memory clinic team members from each participating Family Health Team for their data collection efforts.

References

Adams, W. L., McIlvain, H. F., Geske, J. A., & Porter, J. L. (2005). Physicians’ perspectives on caring for cognitively impaired elders. The Gerontologist, 45, 231239.Google Scholar
American Psychiatric Association. (1994). Diagnostic and Statistical Manual of Mental Disorders, 4th Ed. Washington, DC: American Psychiatric Association.Google Scholar
Ashford, J. W., Borson, S., O’Hara, R., Dash, P., Frank, L., Robert, P., et al. (2007). Should older adults be screened for dementia? It is important to screen for evidence of dementia! Alzheimer’s & Dementia, 3, 7580.Google Scholar
Barrett, J. J., Haley, W. E., Harrell, L. E., & Powers, R. E. (1997). Knowledge about Alzheimer disease among primary care physicians, psychologists, nurses, and social workers. Alzheimer Disease and Associated Disorders, 11, 99106.Google Scholar
Boise, L., Eckstrom, E., Fagnan, L., King, A., Goubaud, M., Buckley, D., et al. (2010). The rural older adult memory (ROAM) study: A practice-based intervention to improve dementia screening and diagnosis. Journal of the American Board of Family Medicine, 23, 486498.Google Scholar
Boyd, C. M., Darer, J., Boult, C., Fried, L. P., Boult, L., & Wu, A. W. (2005). Clinical practice guidelines and quality of care for older patients with multiple comorbid diseases: Implications for pay for performance. Journal of the American Medical Association, 294, 716724.Google Scholar
Bradford, A., Kunik, M. E., Schulz, P., Williams, S. P., & Singh, H. (2009). Missed and delayed diagnosis of dementia in primary care. Prevalence and contributing factors. Alzheimer Disease and Associated Disorders, 23, 306314.Google Scholar
Brodaty, H., Gresham, M., & Luscombe, G. (1997). The Prince Henry dementia caregiver’s training programme. International Journal of Geriatric Psychiatry, 12, 183192.3.0.CO;2-J>CrossRefGoogle Scholar
Callahan, C. M., Boustani, M. A., Unverzagt, F. W., Austrom, M. G., Damush, T. M., Perkins, A. J., et al. (2006). Effectiveness of collaborative care for older adults with Alzheimer disease in primary care. A randomized controlled trial. Journal of the American Medical Association, 295, 21482157.CrossRefGoogle ScholarPubMed
Callahan, C., Boustani, M., Weiner, M., Beck, R. A., Livin, L. R., Kellams, J. J., et al. (2011). Implementing dementia care models in primary care settings: The Aging Brain Care Medical Home. Aging and Mental Health, 15, 512.Google Scholar
Clark, M., Moreland, N., Greaves, I., Greaves, N., & Jolley, D. (2013). Putting personalisation and integration into practice in primary care. Journal of Integrated Care, 21, 105120.CrossRefGoogle Scholar
Connolly, A., Gaehl, E., Martin, H., Morris, J., & Purandare, N. (2011). Underdiagnosis of dementia care in primary care: Variations in the observed prevalence and comparisons to the expected prevalence. Aging and Mental Health, 15, 978984.Google Scholar
Fillit, H. (2007). Commentary on “The Third Canadian Consensus Conference on the Diagnosis and Treatment of Dementia, 2006.” Clinical guidelines are not enough: System-wide, population-based programs are needed to improve the care of patients with Alzheimer’s disease and related dementias. Alzheimer’s & Dementia, 3, 441443.Google Scholar
Galvin, J. E., & Sadowsky, C. H. (2012). Practical guidelines for the recognition and diagnosis of dementia. Journal of the American Board of Family Medicine, 25, 367382.Google Scholar
Gaugler, J. E., Kane, R. L., Kane, R. A., & Newcomer, R. (2005). Early community-based service utilization and its effect on institutionalization in dementia caregiving. The Gerontologist, 45, 177185.Google Scholar
Graham, I. D., Logan, J., Harrison, M. B., Straus, S. E., Tetroe, J., Caswell, W., et al. (2006). Lost in knowledge translation: Time for a map? The Journal of Continuing Education in the Health Professions, 26, 1324.Google Scholar
Greaves, I., Greaves, N., Walker, E., Greening, L., Benbow, S. M., & Jolley, D. (2013). Gnosall Primary Care Memory Clinic: Eldercare facilitator role description and development. Dementia, Epub ahead of print.Google Scholar
Greaves, I., & Jolley, D. (2010). National Dementia Strategy: Well intentioned – But how well founded and how well directed? British Journal of General Practice, 60, 193198.Google Scholar
Greaves, N., & Greaves, I. (2011). The Gnosall project: Setting new benchmarks for dementia care. Journal of Care Services Management, 5, 4952.Google Scholar
Hogan, D. B., Borrie, M., Basran, J. F. S., Chung, A. M., Jarrett, P. G., Morais, J. A., et al. (2012). Specialist physicians in geriatrics – Report of the Canadian Geriatrics Society Physician Resource Work Group. Canadian Geriatrics Journal, 15, 6879.Google Scholar
Krueger, R., & Casey, M. A. (2000). Focus groups (3rd ed.). Thousand Oaks, CA: Sage.Google Scholar
Landis, J. R., & Koch, G. G. (1977). The measurement of observer agreement for categorical data. Biometrics, 33, 159174.Google Scholar
Le Couteur, D., Doust, J., Creasey, H., & Brayne, C. (2013). Political drive to screen for pre-dementia: Not evidence based and ignores the harms of diagnosis. British Medical Journal, 347. doi: 10.1136/bmj.f5125.Google Scholar
Lee, L., Hillier, L. M., Heckman, G., & Gagnon, M. (2012). Improving the system of care for older adults with dementia: Building capacity at the primary care level. Alzheimer's & Dementia, 8, P443.Google Scholar
Lee, L., Hillier, L. M., Stolee, P., Heckman, G., Gagnon, M., McAiney, C.et al. (2010). Enhancing dementia care: A primary care-based memory clinic. Journal of the American Geriatrics Society, 58, 21972204.Google Scholar
Lee, L., Hillier, L.M., & Weston, W.W. (2014). Ensuring the success of interprofessional teams: Key lessons learned in memory clinics. Canadian Journal on Aging, 33(1), 4959.Google Scholar
Lee, L., Kasperski, M. J., & Weston, W. W. (2011). Building capacity for dementia: training program to develop primary care memory clinics. Canadian Family Physician, 57, e249e252.Google Scholar
Lee, L., Weston, W. W., Heckman, G., Gagnon, M., Sloka, J. S., & Lee, F. J. (2013b). A structured approach to the patient with memory difficulties in family practice. Canadian Family Physician, 59, 249254.Google Scholar
Lee, L., Weston, W. W., & Hillier, L. M. (2013a). Developing Memory Clinics in primary care: An evidence-based interprofessional program of continuing professional development. Journal of Continuing Education in the Health Professions, 33, 2432.Google Scholar
Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Newbury Park, CA: Sage.Google Scholar
Logiudice, D., Wlatrowicz, W., Brown, K., Burrows, C., Ames, D., & Flicker, L. (1999). Do memory clinics improve quality life of carers? A randomized pilot trial. International Journal of Geriatric Psychiatry, 14, 626632.3.0.CO;2-5>CrossRefGoogle ScholarPubMed
Luce, A., McKeith, I., Swann, A., Daniel, S., & O’Brien, J. (2001). How do memory clinics compare with traditional old age psychiatry services? International Journal of Geriatric Psychiatry, 16, 837845.Google Scholar
Martin-Khan, M. (2008). Physical examination and diagnosis of dementia for video consultation. Journal of the American Geriatrics Society, 56, 947948.Google Scholar
Martin-Khan, M., Varghese, P., Wootton, R., & Gray, L. (2009). Differences in diagnosis for cognitive assessment following an in-person physical examination versus a telegeriatric evaluation. Alzheimer’s & Dementia, 5, e1e9.Google Scholar
Massoud, F., Lysy, P., & Bergman, H. (2010). Care of dementia in Canada: A collaborative care approach with a central role for the primary care physician. Journal of Nutrition Health and Aging, 14, 105106.Google Scholar
McCarten, J. R., Anderson, P., Kuskowski, M. A., McPherson, S. E., Borson, S., & Dysken, M. W. (2012). Finding dementia in primary care: The results of a clinical demonstration project. Journal of the American Geriatrics Society, 60, 210217.Google Scholar
Meeuwsen, E. J., Melis, R. J., Van Der Aa, G. C. H. M., Golüke-Willemse, G. A. M., Van Raak, F. H. J. M., Schölzel-Dorenbos, C. J. M., et al. (2012). Effectiveness of dementia follow-up care by memory clinics or general practitioners: Randomized controlled trial. British Medical Journal, 344, 19.Google Scholar
Mittelman, M. S., Ferris, S. H., Shulman, E., Steinberg, G., & Levin, B. (1996). A family intervention to delay nursing home placement of patients with Alzheimer disease. A randomized control trial. Journal of the American Medical Association, 276, 17251731.Google Scholar
Molnar, F., Byszewski, A. M., Marshall, S. C., & Man-Son-Hing, M. (2005). In-office evaluation of medical fitness to drive. Canadian Family Physician, 51, 372379.Google Scholar
Morgan, D. G., Crossley, M., Kirk, A., D’Arcy, C., Stewart, N., Biem, J., et al. (2009). Improving access to dementia care: Development and evaluation of a rural and remote memory clinic. Aging and Mental Health, 13, 1730.Google Scholar
Østbye, T., Yarnall, K. S. H., Krause, K. M., Pollak, K. I., Gradison, M., & Michener, J. L. (2005). Is there time for management of patients with chronic diseases in primary care? Annals of Family Medicine, 3, 209214.Google Scholar
Patterson, C., Gauthier, S., Bergman, H., Cohen, C., Feightner, J. W., Feldman, H., et al. (2001). The recognition, assessment and management of dementing disorders: Conclusions from the Canadian Consensus Conference on Dementia. Canadian Journal of Neurological Sciences, 28, S3S16.Google Scholar
Patton, M. Q. (2002). Qualitative Evaluation and Research. Thousand Oaks, CA: Sage.Google Scholar
Pimlott, N. J., Persaud, M., Drummond, N., Cohen, C. A., Silvius, J. L., Seigel, K., et al. (2009). Family physicians and dementia in Canada. Part 2. Understanding the challenges of dementia care. Canadian Family Physician, 2009, 508509.Google Scholar
Pimlott, N. J. G., Siegel, K., Persaud, M., Slaughter, S., Cohen, C., Hollingworth, G., et al. (2006). Management of dementia by family physicians in academic settings. Canadian Family Physician, 52, 11081109.Google Scholar
Pratt, R., Clare, L., & Kirchner, V. (2006). ‘It’s like a revolving door syndrome’: Professional perspectives on models of access to services for people with early-stage dementia. Aging and Mental Health, 10, 5562.Google Scholar
Reuben, D. B., Roth, C., Kamberg, C., & Wenger, N. S. (2003). Restructuring primary care practices to manage geriatric syndromes: The ACOVE-2 intervention. Journal of the American Geriatrics Society, 51, 17871793.Google Scholar
Rosser, W. W., Colwill, J. M., Kasperi, J., & Wilson, L. (2010). Patient-centered medical homes in Ontario. New England Journal of Medicine, 362, e7.CrossRefGoogle ScholarPubMed
Scott, I. (2008). Chronic disease management: A primer for physicians. Internal Medicine Journal, 38, 427437.Google Scholar
Teel, C. S. (2004). Rural practitioners’ experience in dementia diagnosis and treatment. Aging and Mental Health, 8, 422429.Google Scholar
The Dementia Study Group of the Italian Neurological Society. (2000). Guidelines for the diagnosis of dementia and Alzheimer’s disease. Neurological Sciences, 21, 187194.Google Scholar
U.S. Preventive Services Task Force. (2003). Screening for dementia: Recommendations and rationale. Annals of Internal Medicine, 138, 925926.Google Scholar
van den Dungen, P., van Marwijk, H. W. M., van der Horst, H. E., van Charante, E. P. M., MacNeil Vroomen, J., van de Ven, P. M., et al. (2012). The accuracy of family physicians’ dementia diagnoses at different stages of dementia: A systematic review. International Journal of Geriatric Psychiatry, 27, 342354.Google Scholar
Vickrey, B. G., Mittman, B. S., Connor, K. I., Pearson, M. L., Della, Penna, , R. D., Ganiats, T. G., et al. (2006). The effect of a disease management intervention on quality and outcomes of dementia care: A randomized controlled trial. Annals of Internal Medicine, 145, 713726.Google Scholar
Wagner, E. H., Austin, B. T., & von Korft, M. (1996). Organizing care for patients with chronic illness. Milbank Quarterly, 74, 511544.Google Scholar
Wenghofer, E., Klass, D., Abrahamowicz, M., Daupinee, D., Smee, J. A., Blackmore, D., et al. (2009). Physician scores on national qualifying examinations predict quality of care in future practice. Medical Education, 43, 11661173.Google Scholar
Wenghofer, E., Williams, A. P., Faulkner, D., & Klass, D. (2006). Physician-patient encounter: The structure of performance in family and general office practice. The Journal of Continuing Education in the Health Professions, 26, 285293.Google Scholar
Woods, R. T., Moniz-Cook, E., Iliffe, S., Campion, P., Vernooij-Dassen, M., Zanetti, O., et al. (2003). Dementia: Issues in early recognition and intervention in primary care. Journal of the Royal Society of Medicine, 96, 320324.Google Scholar
Wright, L. K., Hickey, J. V., Buckwalter, K. C., Hendrix, S. A., & Kelechi, T. (1999). Emotional and physical health of spouse caregivers of persons with Alzheimer’s disease and stroke. Journal of Advanced Nursing, 30, 552563.Google Scholar