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EVALUATION OF PATIENT INVOLVEMENT IN A HEALTH TECHNOLOGY ASSESSMENT

Published online by Cambridge University Press:  11 June 2015

Mylène Tantchou Dipankui ,
Marie-Pierre Gagnon ,
Marie Desmartis ,
France Légaré ,
Florence Piron ,
Johanne Gagnon ,
Marc Rhiands  and
Martin Coulombe
Mylène Tantchou Dipankui
Affiliation:
Quebec University Hospital Research Centre
Marie-Pierre Gagnon
Affiliation:
Université Laval and Quebec University Hospital Research Centre marie-pierre.gagnon@fsi.ulaval.ca
Marie Desmartis
Affiliation:
Quebec University Hospital Research Centre
France Légaré
Affiliation:
Université Laval and Quebec University Hospital Research Centre
Florence Piron
Affiliation:
Université Laval
Johanne Gagnon
Affiliation:
Université Laval and Quebec University Hospital Research Centre
Marc Rhiands
Affiliation:
Quebec University Hospital
Martin Coulombe
Affiliation:
Quebec University Hospital
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Abstract

Objectives: We sought to evaluate patient involvement (consultation and direct participation) in the assessment of alternative measures to restraint and seclusion among adults in short-term hospital wards (in psychiatry) and long-term care facilities for the elderly.

Methods: We conducted individual semi-structured interviews with thirteen stakeholders: caregivers, healthcare managers, patient representatives, health technology assessment (HTA) unit members, researchers, and members of the local HTA scientific committee. Data were collected until saturation. We carried out content analysis of two HTA reports and four other documents that were produced in relation with this HTA. We also used field notes taken during formal meetings and informal discussions with stakeholders. We performed thematic analysis based on a framework for assessing patient involvement in HTA. We then triangulated data.

Results: For the majority of interviewees, patient consultation enriched the content of the HTA report and its recommendations. This also made it possible to suggest other alternatives that could reduce the use of restraint and seclusion and helped confirm some views and comments from healthcare professionals consulted in this HTA. The direct participation of patient representatives enabled rephrasing of some findings so as to bring the patient perspective to the HTA report.

Conclusions: Patient consultation was seen as having directly influenced the content of the HTA report while direct participation made it possible to rephrase some findings. This is one of few studies to assess the impact of patient involvement in HTA and more such studies are needed to identify the best ways to improve the input of such involvement.

Keywords

EvaluationPatient participationPatient consultationHealth technology assessmentMental health
Type
Assessments
Information
International Journal of Technology Assessment in Health Care , Volume 31 , Issue 3 , 2015 , pp. 166 - 170
Copyright
Copyright © Cambridge University Press 2015 

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