Hostname: page-component-cd9895bd7-hc48f Total loading time: 0 Render date: 2024-12-26T08:37:24.823Z Has data issue: false hasContentIssue false
  • English
  • Français

Teaching Health Law: Teaching Law Students to Be Policymakers: The Health and Science Policy Workshop on Genomic Research

Published online by Cambridge University Press:  01 January 2021

Benjamin E. Berkman  and
Karen H. Rothenberg
Get access Rights & Permissions [Opens in a new window]

Abstract

An abstract is not available for this content so a preview has been provided. Please use the Get access link above for information on how to access this content.
Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
JLME Column
Information
Journal of Law, Medicine & Ethics , Volume 40 , Issue 1 , Spring 2012 , pp. 147 - 153
Copyright
Copyright © American Society of Law, Medicine and Ethics 2012

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Berkman, B. E. Hull, S. S., “Ethical Issues in Genomic Databases,” in Encyclopedia of Ethics (2010).Google Scholar
Green, E.E. Guyer, M. S., “Charting a Course for Genomic Medicine from Base Pairs to Bedside,” Nature 470 (2011): 204–213.)CrossRefGoogle Scholar
Illumina, , Illumina Reduces Price of Whole Human Genome Sequencing through Illumina Genome Network, Press Release, May 2011, available at <http://investor.illumina.com/phoenix.zhtml?c=121127&p=irol-newsArticle&ID=1561106&highlight=> (last visited January 31, 2012); Illumina, , Illumina Announces Bold Steps to Accelerate the Adoption of Individual Genome Sequencing, Press Release, June 2011, available at <http://investor.illumina.com/phoenix.zhtml?c=121127&p=irol-newsArticle&ID=1572084>.Google Scholar
Tabor, H. K. Berkman, B. E. Hull, S. C. Bamshad, M. J., “Genomics Really Gets Personal: How Exome and Whole Genome Sequencing Challenge the Ethical Framework of Human Genetics Research,” American Journal of Medical Genetics Part A 155 A, no. 12 (2011): 2916–29214.CrossRefGoogle Scholar
Wolf, S. M. et al., “Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations,” Journal of Law, Medicine & Ethics 36 no. 2 (2008): 219–248.Google Scholar
See Tabor, et al., supra note 4.Google Scholar
Id.Google Scholar
See, e.g., Wolf, , supra note 5; Bredenoord, A. L. et al., “Disclosure of Individual Genetic Data to Research Participants: The Debate Reconsidered,” Trends in Genetics 27, no. 2 (2011): 41–47; Clayton, E. W., “Incidental Findings in Genetics Research Using Archived DNA,” Journal of Law, Medicine & Ethics 36, no. 2 (2008): 286–291, at 212; Miller, F. G. Mello, M. M. Joffe, S., “Incidental Findings in Human Subjects Research: What Do Investigators Owe Research Participants?” Journal of Law, Medicine & Ethics 36, no. 2 (2008): 271–279; Shalowitz, D. I. Miller, F. G., “Disclosing Individual Results of Clinical Research: Implications of Respect for Participants,” JAMA 294, no. 6 (2005): 737–740; Richardson, H. S., “Incidental Findings and Ancillary-Care Obligations,” Journal of Law, Medicine & Ethics 36, no. 2 (2008): 256–270; Ravitsky, V. Wilfond, B. S., “Disclosing Individual Genetic Results to Research Participants” American Journal of Bioethics 6, no. 6 (2006): 8–17.Google Scholar
See, e.g., Beskow, L. M. Burke, W., “Offering Individual Genetic Research Results: Context Matters,” Science Translational Medicine 2, no. 38 (2010): 38cm20; Fabsitz, R. R. et al., “Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants: Updated Guidelines from a National Heart, Lung, and Blood Institute Working Group,” Circulation: Cardiovascular Genetics 3, no. 6 (2010): 574–580; see Wolf, , supra note 5.CrossRefGoogle Scholar
Clinical Laboratory Improvement Act, Pub. L. 90–174, 81 Stat. 536 (1967) (current version 42 U.S.C. § 263a (2006)).Google Scholar
Segal, D., “What They Don't Teach in Law School: Lawyering,” New York Times, November 19, 2011.Google Scholar