Hostname: page-component-cd9895bd7-q99xh Total loading time: 0 Render date: 2024-12-29T19:47:27.911Z Has data issue: false hasContentIssue false

Raising a FAS/FAE Child: Helping Carers Cope

Published online by Cambridge University Press:  25 September 2015

Elizabeth Tindle*
Affiliation:
QUT Counselling Service, Australia
*
Dr Elizabeth Tindle, FAPS, QUT Counselling Service, Queensland University of Technology, Student Services Department, GPO Box 2434, Brisbane QLD 4001, Australia.
Get access

Abstract

This paper will address the growing community problem of caring for children, young people and adults with disabilities stemming from alcohol related birth defects. It will begin with an outline of the problem followed by examples of how parents can produce multiple children damaged in utero by alcohol and/or drug consumption. The process of diagnosing these children and looking at proven strategies for successfully and safely raising them will be discussed. Finally, the importance of the foster parents and their specific needs will be addressed.

Type
Articles
Copyright
Copyright © Cambridge University Press 2002

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Anandam, N., Felegi, W., & Stern, J.M. (1980). In utero alcohol heightens juvenile reactivity. Pharmacology, Biochemistry and Behavior, 13(4), 531535.CrossRefGoogle ScholarPubMed
Aronson, J.E. (1998) Alcohol related birth defects and international adoption. Retrieved February, 1999, from http://adoptioninstitute.org/proed/psemat.htmlGoogle Scholar
Barrison, I.G., Wright, J.T. & Murray-Lyon, I.M. (1982). The hazards of moderate drinking during pregnancy. British Journal on Alcohol and Alcoholism, 26(4), 188199.Google Scholar
Berg, S., Kinsey, K., Litke, J., Wheway, D. (1995) A layman's guide to FAS/E, FASNET Information Series No 1, Surrey, B.C. Canada.Google Scholar
Bloss, G. (1994). The economic cost of FAS. Alcohol, Health and Research World, 18(1), 5354.Google ScholarPubMed
Burgess, D.M., & Streissguth, A.P. (1992). Fetal alcohol syndrome and fetal alcohol effects: Principles for educatiors. Phi Delta Kappan, 109, 2428.Google Scholar
Carmichael, C, & Olsen, H. (1994). The effects of prenatal alcohol exposure on child development. Infants and Young Children, 6(3), 1025.Google Scholar
Hagberg, B., Hagberg, G., Lewerth, A., & Lindberg, U. (1981). Mild mental retardation in Swedish school children. Acta Paedriatrica Scandinavia, 70, 441444.CrossRefGoogle ScholarPubMed
Hawks, S.R. (1993). Fetal alcohol syndrome: Implications for health education, Journal of Health Education, 24(1), 2226.CrossRefGoogle Scholar
Jones, K.L., & Smith, D.W. (1973). Recognition of the fetal alcohol syndrome in early infancy. Lancet, 2, 9991001.CrossRefGoogle Scholar
LaDue, R.A., Streissguth, A.P., & Randels, S.P. (1992). Clinical considerations pertaining to adolescents and adults with fetal alcohol syndrome. In Sonderegger, T.B. (Ed.), Perinatal substance abuse: Research findings and clinical implications (pp. 104131). Baltimore: Johns Hopkins University Press.Google Scholar
Lipson, A. (1994). The foetal alcohol syndrome in Australia. The Medical Journal of Australia, 161, 461462.CrossRefGoogle ScholarPubMed
Losub, S., Fuchs, M.D., Bingol, N., Stone, R., & Gromisch, D.S. (1981) Long-term follow-up of three siblings with foetal alcohol syndrome. Alcoholism: Clinical and Experimental Research, 5(4), 523527.CrossRefGoogle Scholar
McGinley, K. (1996).The Arc and fetal alcohol syndrome prevention: A multidimentional philosophy and action plan. The Arc Government Affairs Office, National Headquarters, Arlington, Texas.Google Scholar
Minor, M.J., & Van Dort, B. (1982). Prevention research on the teratogenic effects of alcohol. Preventive Medicine, 11, 346359.CrossRefGoogle ScholarPubMed
Morbidity and Mortality Weekly Report. (1997). Morbidity and Mortality Weekly Report, 46(16). Retrieved February, 1998, from http://www.cdc.gov/mmwr.htmlGoogle Scholar
Oei, T.P.S., Anderson, L., & Wilks, J. (1986) Public attitude to and awareness of fetal alcohol syndrome in young adults. Journal of Drug Education, 16(2), 135147.CrossRefGoogle ScholarPubMed
Ottney, J.R. (1987). Fetal alcohol syndrome: Facts and choices. A guide for the teacher. Wisconsin Clearing House, University of Wisconsin-Madison.Google Scholar
Phillipson, R. (1988). The fetal alcohol syndrome-recent international statistics. Australia and New Zealand Journal of Developmental Disabilities, 14 (3 & 4), 211217.CrossRefGoogle Scholar
Robinson, G.C., Conry, J.L., & Conry, R.F. (1987). Clinical profile and prevalence of fetal alcohol syndrome in an isolated community in British Columbia. Canadian Medical Association Journal, 137, 203207.Google Scholar
Russell, M., Kang, G., Sonderegger, E., & Uhteg, L. (1983). Evaluation of an educational program of the fetal alcohol syndrome for health professionals. Journal of Alcohol and Drug Education, 29 (1), 4861.Google Scholar
Smith, A.B. (1997, November) Quality and safety in out of home care. Paper presented to the National Foster Care Seminar, Christchurch, New Zealand.Google Scholar
Spohr, H.L., Willms, J., & Steinhausen, H.C. (1994). The fetal alcohol syndrome in adolescence. Acta Paediatrica, 404, 1926.CrossRefGoogle ScholarPubMed
Spohr, H.L., Willms, J., & Steinhausen, H.C. (1995). Die Berliner Verlaufstudie von Kindern mit einem Fetalen Alkohosyndrom (FAS). Monatsschr. Kinderheilkd, 143, 149156.Google Scholar
Stephens Cherpital, C.J. (1989). Infant outcomes associated with alcohol consumption and maternal risk. Contemporary Drug Problems, XVI (2), 265271.Google Scholar
Streissguth, A.P. (1992). Fetal alcohol syndrome and fetal alcohol effects: A clinical perspective of later developmental consequences in Zagon, I.S. & Slotkin, T.A. (Eds.), Maternal substance abuse and the developing nervous system (pp. 525). San Diego, CA: Academic Press Inc.CrossRefGoogle Scholar
Streissguth, A.P., Aase, M.D., Clarren, S.K., Randels, S.P., LaDue, R.A., & Smith, M.D. (1991). Fetal alcohol syndrome in adolescents and adults. Journal of the American Association, 265(15), 19611967.CrossRefGoogle ScholarPubMed
Streissguth, A.P., Barr, H.M., Carmichael Olson, H., Sampson, P.D., Bookstein, F.L., & Burgess, D.M. (1994). Drinking during pregnancy decreases word attack and arithmetic scores on standardized tests: Adolescent data from a population-based prospective study. Alcoholism: Clinical and Experimental Research, 18(2), 248254.CrossRefGoogle ScholarPubMed
Streissguth, A.P., Barr, H.M., Kogan, J. & Bookstein, F.L. (1996). Understanding the occurrence of secondary disabilities in clients with fetal alcohol syndrome (FAS) and fetal alcohol effects (FAE). Final Report, University of Washington School of Medicine, Department of Psychiatry and Behavioral Sciences, Seattle.Google Scholar
Streissguth, A.P., Barr, H.M., & Sampson, P.D. (1990). Moderate prenatal alcohol exposure: Effects on child IQ and learning problems at Age 7.5 years. Alcoholism: Clinical and Experimental Research, 14(5), 662669.CrossRefGoogle Scholar
Streissguth, A.P., Barr, H.M., Sampson, P.D., & Bookstein, F.L. (1994). Prenatal alcohol and offspring development: The first fourteen years. Drug and Alcohol Dependence, 36(2), 8999.CrossRefGoogle ScholarPubMed
Streissguth, A.P., Bookstein, F. L., Sampson, P.D., & Barr, H.M. (1995). Attention: Prenatal alcohol and continuities of vigilance and attentional problems from 4 through 14 years. Development and Psychopathology, 7, 419446CrossRefGoogle Scholar
Streissguth, A.P., Sampson, P.D., Carmichael Olson, H., Bookstein, F.L., Barr, H.M., Scott, M., et al. (1994). Maternal drinking during pregnancy: Attention and short-term memory in 14-year old offspring — A longitudinal prospective study. Alcoholism: Clinical and Experimental Research, 18(1), 202218.CrossRefGoogle ScholarPubMed
Walpole, I.R., & Hockey, A. (1980). Fetal alcohol syndrome: implications to family and society in Australia. Australian Paedriatric Journal, 16(2), 101105.Google ScholarPubMed
Warren, K.R., & Bast, R.J. (1988). Alcohol related birth defects: An update. Public Health Reports, 103(6), 638642.Google ScholarPubMed
Wegmann, M., Colfax, L., Gray, M., & Reed, B. (1995) Assessment and resource guide for PAS/FAE Washington: Pen Print Inc.Google Scholar