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Parents’ views on what facilitated or complicated their grief after losing a child to cancer

Published online by Cambridge University Press:  26 November 2020

Lilian Pohlkamp Open the ORCID record for Lilian Pohlkamp [Opens in a new window] ,
Josefin Sveen ,
Ulrika Kreicbergs  and
Malin Lövgren
Lilian Pohlkamp*
Affiliation:
Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, Stockholm, Sweden
Josefin Sveen
Affiliation:
Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, Stockholm, Sweden Department of Neuroscience, Psychiatry, Uppsala University, Uppsala, Sweden
Ulrika Kreicbergs
Affiliation:
Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, Stockholm, Sweden Department of Women's and Children's Health, Karolinska Institute, Stockholm, Sweden
Malin Lövgren
Affiliation:
Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, Stockholm, Sweden Department of Women's and Children's Health, Karolinska Institute, Stockholm, Sweden
*
Author for correspondence: Lilian Pohlkamp, Ersta Sköndal Bräcke University College, Stigbergsgatan 30, 100 61 Stockholm, Sweden. E-mail: lilian.pohlkamp@esh.se
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Abstract

Objectives

The loss of a child is a devastating event, and bereaved parents often suffer intense and long-lasting grief reactions and are at risk for psychological symptoms. More knowledge about how parents cope with grief may improve the support to bereaved parents. This study, therefore, aimed to explore parents’ views on what facilitated or complicated their grief coping after losing a child to cancer.

Methods

This study was derived from a nationwide postal survey. Cancer-bereaved parents (n = 161) provided written responses to two open-ended questions: “Is there anything that has helped you cope with your grief after your child's death?” and “Is there anything that made it difficult for you to cope with your grief?” Content analysis was used to analyze the responses.

Results

Parents reported that a supportive social network of family and friends, and having remaining children, facilitated their coping with grief. Meeting professional counselors and meeting other bereaved parents, connecting to memories of the deceased child in various contexts, including school and pediatric care settings, were also reported facilitating grief coping. Parents stated that the following experiences had complicated grief coping: additional losses in their family or social network; not being able to share emotions with their partner; when they perceived that friends, relatives, or colleagues lacked empathy or patience; when they felt challenging demands from employers at a too early stage.

Significance of results

This study contributes to the understanding of parents’ grief experiences and what has facilitated or complicated their coping with grief, which can help health care professionals and others improve bereavement support services.

Keywords

BereavementCopingGriefParentsPediatric oncology
Type
Original Article
Information
Palliative & Supportive Care , Volume 19 , Issue 5 , October 2021 , pp. 524 - 529
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Copyright
Copyright © The Author(s), 2020. Published by Cambridge University Press

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