Skip to main content Accessibility help

We use cookies to distinguish you from other users and to provide you with a better experience on our websites. Close this message to accept cookies or find out how to manage your cookie settings.

Close cookie message
×
  1. Home
  2. Search

Refine search

Refine search

Access:
Content type:
Publication date:
Apply   From and To filters
Subject: Show more
Journals Show more
Publishers: Show more
Societies Show more
Series: Show more
Collections: Show more

Actions for selected content:

Select all | Deselect all
  • View selected items
  • Export citations
  • Download PDF (zip)
  • Save to Kindle
  • Save to Dropbox
  • Save to Google Drive

Save Search

You can save your searches here and later view and run them again in "My saved searches".

Please provide a title, maximum of 40 characters.
Cancel
×

3 results

  • Introduction

  • from Part II - COVID-19, Disparities, and Vulnerable Populations
  • Edited by I. Glenn Cohen, Harvard Law School, Massachusetts, Abbe R. Gluck, Yale University, Connecticut, Katherine Kraschel, Yale University, Connecticut, Carmel Shachar, Harvard Law School, Massachusetts
  • Book:
    COVID-19 and the Law
    Published online:
    27 October 2023
    Print publication:
    09 November 2023, pp 89-90
    • Chapter
      • You have access
      • Open access
    • PDF
    • HTML
    • Export citation

  • Summary

    This chapter highlights the disproportionate burden experienced by racial and ethnic minorities in the US during the COVID-19 pandemic. Non-White populations in the U.S. make up 55 percent of all COVID-19 cases and about 40 percent of the total population. Mortality parallels the case rate with 33 percent to 53 percent increase in deaths compared to 11 percent among Whites. The underlying factors contributing to increased infection rates will be reviewed with emphasis on the proportion in essential work with less salaried employment with health benefits, and no option to telework. This is exacerbated by the more crowded housing with multiple generations and/or more than one family in a living unit. These factors lead to a decreased ability to implement physical distancing during daily routines, self-isolation at home or outdoor activity in isolation. The decrease access to broadband has further impaired schooling, work options and access to information. Other factors such as discrimination, healthcare access and utilization, economic stability, and others put racial and ethnic minority groups at increased risk of getting COVID-19. Once infected, a higher rate of underlying comorbidities, especially diabetes, has led to more severe manifestations and a resulting higher share of of mortality. Generalized mistrust in governmental institutions and health care system has been exacerbated by misinformation about the pandemic. The importance of working towards establishing a community-engaged approach that promotes trust in science through sustainable long-term partnerships is essential given the higher rate of vaccine hesitancy, especially in African Americans. Structural issues that perpetuate inequalities need to be addressed through policy and legal changes supported by research evidence.

  • Evaluation of an experiential training program in patient-centered outcomes and comparative effectiveness research for diverse researcher communities and health care organizations

  • Dedra S. Buchwald, Megan H. Rogers, Barbara A. Rose, Brian W. Bresnahan, Beth Devine, Linda LeResche, Lonnie A. Nelson, Donald L. Patrick, Danielle C. Lavallee, Michelle M. Garrison, Andrew A. White, Larry G. Kessler
  • Journal:
    Journal of Clinical and Translational Science / Volume 7 / Issue 1 / 2023
    Published online by Cambridge University Press:
    15 March 2023, e81
    • Article
      • You have access
      • Open access
    • PDF
    • HTML
    • Export citation
  • Background/Objective:

    The goal of the Patient-Centered Outcomes Research Partnership was to prepare health care professionals and researchers to conduct patient-centered outcomes and comparative effectiveness research (CER). Substantial evidence gaps, heterogeneous health care systems, and decision-making challenges in the USA underscore the need for evidence-based strategies.

    Methods:

    We engaged five community-based health care organizations that serve diverse and underrepresented patient populations from Hawai’i to Minnesota. Each partner nominated two in-house scholars to participate in the 2-year program. The program focused on seven competencies pertinent to patient-centered outcomes and CER. It combined in-person and experiential learning with asynchronous, online education, and created adaptive, pragmatic learning opportunities and a Summer Institute. Metrics included the Clinical Research Appraisal Inventory (CRAI), a tool designed to assess research self-efficacy and clinical research skills across 10 domains.

    Results:

    We trained 31 scholars in 3 cohorts. Mean scores in nine domains of the CRAI improved; greater improvement was observed from the beginning to the midpoint than from the midpoint to conclusion of the program. Across all three cohorts, mean scores on 52 items (100%) increased (p ≤ 0.01), and 91% of scholars reported the program improved their skills moderately/significantly. Satisfaction with the program was high (91%).

    Conclusions:

    Investigators that conduct patient-centered outcomes and CER must know how to collaborate with regional health care systems to identify priorities; pose questions; design, conduct, and disseminate observational and experimental research; and transform knowledge into practical clinical applications. Training programs such as ours can facilitate such collaborations.

  • An online diabetes nutrition education programme for American Indian and Alaska Native adults with type 2 diabetes: perspectives from key stakeholders

  • Sarah Stotz, Angela G Brega, Steven Lockhart, Luciana E Hebert, J Neil Henderson, Yvette Roubideaux, Kelly Moore
  • Journal:
    Public Health Nutrition / Volume 24 / Issue 6 / April 2021
    Published online by Cambridge University Press:
    17 July 2020, pp. 1449-1459
    • Article
      • You have access
    • PDF
    • HTML
    • Export citation
  • Objective:

    To explore stakeholder perspectives regarding online diabetes nutrition education for American Indians and Alaska Natives (AI/AN) with type 2 diabetes (T2D).

    Design:

    Qualitative data were collected through focus groups and interviews. Focus group participants completed a brief demographic and internet use survey.

    Setting:

    Focus groups and community participant interviews were conducted in diverse AI/AN communities. Interviews with nationally recognised content experts were held via teleconference.

    Participants:

    Eight focus groups were conducted with AI/AN adults with T2D (n 29) and their family members (n 22). Community participant interviews were conducted with eleven clinicians and healthcare administrators working in Native communities. Interviews with nine content experts included clinicians and researchers serving AI/AN.

    Results:

    Qualitative content analysis used constant comparative method for coding and generating themes across transcripts. Descriptive statistics were computed from surveys. AI/AN adults access the internet primarily through smartphones, use the internet for many purposes and identify opportunities for online diabetes nutrition education.

    Conclusions:

    Online diabetes nutrition education may be feasible in Indian Country. These findings will inform the development of an eLearning diabetes nutrition education programme for AI/AN adults with T2D.