What would Terri Schiavo have wanted? That remains an unanswered
question for many who followed the media frenzy that attended the
extraordinary court and legislative battles that preceded her death 13
days after her feeding tube was removed for the last time. What would she
have directed her physicians to do if she had “miraculously”
regained capacity and awareness of the consequences of her cardiac arrest
that left her in a persistent vegetative state? Who would she have wanted
to make that decision for her if she were unable to do so? How are we to
understand the meaning of statements that she purportedly made about
life-sustaining treatments approximately 20 years ago, and how can we
apply them to the current situation? This article reflects on those
questions from the perspective of two small exploratory studies. These
studies considered the meanings and interpretation of statements by
terminally ill patients concerning desire for hastened death and the
relevance of previously made statements to their current clinical
situation.