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The chapter will focus on the uses and abuses of Facebook and other social networks by Dark Tetrad personalities. In the first part, the importance and the uses of Facebook in modern life will be described. Then, the chapter will portray the benefits and potential harm inherent in Facebook. Next, theories that explain the attraction of Dark Triad personalities to Facebook will be presented. Chapter 3 will review the relationship between each Dark Tetrad personality and Facebook. The assumption is that each of the four personalities will have their habits relating to using Facebook. The chapter will also cover an important issue discussed in the literature-profiling Dark Tetrad personalities based on Facebook profiles and activities.
This concluding chapter takes stock of the ways in which the bioinformation governance landscape would look different if it were to embrace the picture of narrative identity impacts, interests, and responsibilities characterised and defended in this book. It proposes that information subjects’ identity-related interests in whether and how they encounter information about their bodies, biology, and health should be firmly installed amongst and routinely weighed alongside the other ethical concerns – such as protecting health, privacy, confidentiality, and autonomy. This does not mean that identity interests should invariably prevail over other ethical, practical, or legal considerations but that they should be afforded weight commensurate with the centrality of an inhabitable, embodied self-narrative to a full, flourishing, and practically engaged life. Mindful of what has been said about the ways in which identity impacts vary between information types and individual circumstances and thus the need for responsive rather than rigid disclosure policies and practices, this chapter proposes priorities for reform in five contexts in which ethical and legal debates about information access are currently pressing. These contexts are donor conception, including mitochondrial donation; return of individual research findings to participants; navigating confidentiality and consent in healthcare; direct-to-consumer genomics; and personal health-tracking devices.
Increasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing – and not accessing – bioinformation about ourselves, and the need for disclosure practices to respond appropriately. This title is also available as Open Access on Cambridge Core.
This chapter offers a perspective on the long-running ethical debate about the nature and extent of responsibilities to return individually relevant research findings from health research to participants. It highlights the ways in which shifts in the research landscape are changing the roles of researchers and participants, the relationships between them, and what this might entail for the responsibilities owed towards those who contribute to research by taking part in it. It argues that a greater focus on the informational interests of participants is warranted and that, corollary to this, the potential value of findings beyond their clinical utility deserves greater attention. It proposes participants’ interests in using research findings in developing their own identities as a central example of this wider value and argues that these could provide grounds for disclosure.
Summarising the book's main research findings, Chapter 7 argues that while part of the explanation for the persistence of human rights problems in Turkey lies in endogenous political and social factors, the ECtHR's effectiveness has also been impeded by the ECHR system itself in two distinct ways. First, the ECtHR did not make full use of its review powers in overseeing Turkey. Second, Council of Europe members failed to resort to available sanctioning mechanisms due to Turkey's geostrategic importance. Kurdish legal mobilisation has been adversely affected by these endogenous and exogenous factors, as well as Kurdish lawyers’ failure to develop a collaborative litigation practice and tendency to favour professional politics over legal work. The chapter concludes with reflections on the book's research findings for academic scholarship and the ECtHR practice. Arguing that the effectiveness of supranational courts can best be measured on the basis of their actual impact on authoritarian regimes, the chapter concludes with a call for the revision of existing theories on the basis of empirical research on the ECtHR's engagement in countries such as Turkey, Russia, Poland and Hungary.
Translating research findings into practice requires understanding how to meet communication and dissemination needs and preferences of intended audiences including past research participants (PSPs) who want, but seldom receive, information on research findings during or after participating in research studies. Most researchers want to let others, including PSP, know about their findings but lack knowledge about how to effectively communicate findings to a lay audience.
Methods:
We designed a two-phase, mixed methods pilot study to understand experiences, expectations, concerns, preferences, and capacities of researchers and PSP in two age groups (adolescents/young adults (AYA) or older adults) and to test communication prototypes for sharing, receiving, and using information on research study findings.
Principal Results:
PSP and researchers agreed that sharing study findings should happen and that doing so could improve participant recruitment and enrollment, use of research findings to improve health and health-care delivery, and build community support for research. Some differences and similarities in communication preferences and message format were identified between PSP groups, reinforcing the best practice of customizing communication channel and messaging. Researchers wanted specific training and/or time and resources to help them prepare messages in formats to meet PSP needs and preferences but were unaware of resources to help them do so.
Conclusions:
Our findings offer insight into how to engage both PSP and researchers in the design and use of strategies to share research findings and highlight the need to develop services and support for researchers as they aim to bridge this translational barrier.
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