Objective: The aim of this paper is to delineate the
particular nature of the end-of-life care experience from the
perspective of family members and friends. Ideas drawn from feminist
analyses of caring and the sociology of death and dying are used to
illuminate study respondents' accounts.
Methods: Qualitative study with people who cared for a
family member or friend who died of breast cancer. Two interviews were
conducted with each of 12 study participants, and one carer responded
by letter to a series of questions drawn from the interview guide.
Accounts were analyzed with reference to grounded theory methods.
Results: The analysis presented here suggests that
anticipating the death of an ill relative or friend generates
imperatives to care, imperatives that are both “felt” and
linked to wider social structures and processes. The value assigned to
closeness with the ill person can be seen to reflect cultural
injunctions toward a “good death,” and to shape informal
carers' perceptions of their labor. Also discussed in this paper
are the complex negotiations undertaken by relatives and friends, for
the life and death of someone with advanced cancer.
Significance of results: This paper offers insight into the
social processes of caregiving, revealing how care may be shaped in
particular ways by an awareness of approaching death.