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  • Caregivers’ Experiences of Nursing Home Restrictions During the COVID-19 Pandemic

  • Mary Jean Hande, Lori E. Weeks, Stephanie A. Chamberlain, Emily Hubley, Rosanne Burke, Grace Warner, Melissa K. Andrew, Janice Keefe
  • Journal:
    Canadian Journal on Aging / La Revue canadienne du vieillissement , First View
    Published online by Cambridge University Press:
    06 January 2025, pp. 1-10
    • Article
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  • Background

    Pandemic-related restrictions in nursing homes have undermined the critical role that family and friend caregivers play in enhancing resident quality of life.

    Objective

    We examined how family caregiver access restrictions in nursing homes were implemented and how they impacted the mutual well-being of and relationships between residents and their caregivers over time. Methods Between March 2021 and march 2022, 24 ‘designated caregivers’ in Atlantic Canada were interviewed three times.

    Findings

    We identified changes in family relationships and activities over time, constricted support networks, the increasing need for advocacy and monitoring, and the generally negative cumulative impacts of restrictions, especially during residents’ end-of-life. Subsequent adaptations to access restrictions allowed caregivers to contribute to essential monitoring, care relationships, and advocacy roles.

    Discussion

    We argue that the role of designated caregivers in nursing homes must be maintained during public health emergencies to ensure resident’s supportive family relationships and general well-being.