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21 - Critical Perspectives in Clinical Psychology: Autistic Identities

from Part IV - Current Domains

Published online by Cambridge University Press:  29 October 2021

By
Alessandra Fasulo
Edited by
Michael Bamberg ,
Carolin Demuth  and
Meike Watzlawik
Michael Bamberg
Affiliation:
Clark University, Massachusetts
Carolin Demuth
Affiliation:
Aalborg University, Denmark
Meike Watzlawik
Affiliation:
Sigmund Freud University, Berlin
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Summary

This chapter will consider identity in relation to the diagnostic category of autism. The heterogeneity of individuals who are diagnosed as autistic represents a key challenge for identity analysts and, more importantly, for the people affected – in terms of societal images of autism and what the label may mean to others. The chapter will introduce situated approaches to identity; without being tied to a specific method, a situated approach implies understanding (a) the conditions that make identity become relevant for those involved, and (b) what the identity affordances for participants are. Firstly, identity is played out in every interactional exchange, as membership is displayed and reaffirmed by social actors; however, membership in ethno-methodological terms is no straightforward achievement for someone who does not experience a satisfactory control on ordinary social practices, as may happen with autism. The chapter will thus cover insights about autism identity generated by interactional research. Secondly, it will discuss cultural processes as interdependent with this level of analysis. To some extents, autism studies went through a revolution similar to the postcolonial one, in which minorities, after having been object of outsiders’ descriptions for a long time, began speaking out for themselves and their communities. The end of the chapter, I will touch upon the specificity of the autistic spectrum condition as being at a boundary between medical condition and disability, and what the consequences are in terms of identity and social positions.

Keywords

Autismsituated approachempowermentdisabilitysocial representation
Type
Chapter
Information
The Cambridge Handbook of Identity , pp. 463 - 486
Publisher: Cambridge University Press
Print publication year: 2021

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References

American Psychological Association. (1994). Diagnostic and Statistical Manual of Mental Disorders: DSM-IV. American Psychiatric Publishing.Google Scholar
Asperger, H. (1940/1991). “Autistic psychopathy” in childhood. In Frith, U. (Ed.), Autism and Asperger Syndrome (pp. 1–36). Cambridge: Cambridge University pressGoogle Scholar
Bagatell, N. (2007). Orchestrating voices: Autism, identity and the power of discourse. Disability & Society, 22(4), 413–426.CrossRefGoogle Scholar
Barazzetti, A., Barbetta, P., Valtellina, E., & Pressato, P. (2017). Contextualising a pre-history of autism. Paper presented at the Critical Autism Conference, London, UK.Google Scholar
Baron-Cohen, S. (2011). Zero Degrees of Empathy. London: PenguinGoogle Scholar
Baron-Cohen, S. (1997). Mindblindness: An essay on autism and theory of mind. Cambridge, MA: MIT Press.Google Scholar
Belmonte, M. K. (2008). Does the experimental scientist have a “Theory of Mind”? Review of General Psychology, 12(2), 192–204.Google Scholar
Bendle, M. (2002). The crisis of identity in high modernity. British Journal of Sociology, 53(1), 1–18.Google Scholar
Block, D. (2006). Identity in applied linguistics. In Omoniyi, T. and White, G. (Eds.), The Sociolinguistics of Identity (pp. 34–49). London: Continuum.Google Scholar
Blommaert, J. & Rampton, B. (2011). Language and superdiversity. Language and Superdiversities II, 13(2), 1–22.Google Scholar
Blume, H. (1998, September). Neurodiversity: On the neurological underpinnings of geekdom. The Atlantic. Retrieved May 08, 2021, from www.theatlantic.com/magazine/archive/1998/09/neurodiversity/305909/.Google Scholar
Boldsen, S. (2018). Toward a phenomenological account of embodied subjectivity in autism. Culture, Medicine, and Psychiatry, 42(4), 893–913.Google Scholar
Briggs, C. L. (2002). Interviewing, power/knowledge and social inequality. In Gubrium, J. F., & Holstein, J. A. (Eds.), Handbook of Interview Research: Context and Method (pp. 911–-922). London: Sage.Google Scholar
Brubaker, R. & Cooper, F. (2000). Beyond “identity.” Theory and Society, 29(1), 1–47.Google Scholar
Cameron, D. & Kulick, D. (2003). Language and Sexuality. Cambridge: Cambridge University Press.Google Scholar
Caniglia, E.(2013). Abbiamo veramente bisogno dell’identità? Alcune precauzioni per l’uso di un concetto ambiguo. [Do we really need identity? A few precautions for the use of an ambiguous concept]. SocietàMutamentoPolitica, 4(8), 201–217.Google Scholar
Craig, J. & Baron-Cohen, S. (1999). Creativity and imagination in autism and Asperger Syndrome. Journal of Autism and Developmental Disorders, 29, 319–326.Google Scholar
Davidson, J. & Smith, M. (2009). Autistic autobiographies and more-than-human emotional geographies. Environment and Planning D: Society and Space, 27(5), 898–916.Google Scholar
Davies, K. (2007). Are we hearing all the voices? International Journal of Disability Development and Education, 54(3), 3510355.CrossRefGoogle Scholar
Davies, K. (2015). A troubled identity. Putting Butler to work on the comings and goings of Asperger’s Syndrome. In Corcoran, T., White, J., & Whitburn, B. (Eds.), Disability Studies (pp. 197–214). Leiden: Brill Sense.CrossRefGoogle Scholar
Dekker, M. (2020). From exclusion to acceptance: Independent living on the autistic spectrum. In Kapp, S. (Ed.), Autistic Community and the Neurodiversity Movement. Stories from the Frontline (pp. 40–49). Basingstoke: Palgrave Macmillan.Google Scholar
Delafield-Butt, J. T. & Trevarthen, C. (2015). The ontogenesis of narrative: From moving to meaning. Frontiers in Psychology, 6, article 1157.Google Scholar
Fasulo, A. (2015). History in waiting. Receiving a diagnosis of Asperger in midlife. In Piazza, R. & Fasulo, A. (Eds.), Marked Identities (pp. 170–191). Basingstoke: Palgrave Macmillan.Google Scholar
Fasulo, A. (2019). A different conversation: Psychological research and the problem of self in autism. Integrative Psychological and Behavioral Science, 53(4), 611–631.Google Scholar
Fasulo, A. & Fiore, F. (2007). A valid person: Non-competence as a conversational outcome. In Hepburn, A. & Wiggins, S. (Eds.), Discursive Research in Practice (pp. 224–246). Cambridge, Cambridge University Press.CrossRefGoogle Scholar
Fasulo, A., Hunt, P. A., & Isadore, P. (2015). History in waiting: Receiving a diagnosis of Asperger in midlife. In Piazza, R. and Fasulo, A. (Eds.), Marked Identities (pp. 170–191). Basingstoke: Palgrave Macmillan.Google Scholar
Fasulo, A. & Piazza, R. (2015). Introduction. In Piazza, R. and Fasulo, A. (Eds.), Marked Identities (pp. 1–15). Basingstoke: Palgrave Macmillan.Google Scholar
Fein, E. (2015). Making meaningful worlds: Role-playing subcultures and the autism spectrum. Culture, Medicine, and Psychiatry, 39(2), 299–321.CrossRefGoogle ScholarPubMed
Fletcher-Watson, S., Adams, J., Brook, K., Charman, T., Crane, L., Cusack, J., Leekam, S., Milton, D., Parr, J. R., & Pellicano, E. (2019). Making the future together: Shaping autism research through meaningful participation. Autism, 23(4), 943–953.Google Scholar
Frith, U. (Ed.). (1991). Autism and Asperger Syndrome. Cambridge: Cambridge University Press.CrossRefGoogle Scholar
Frith, U. (2003). Autism: Explaining the Enigma. Oxford: Blackwell Publishing.Google Scholar
Goffman, E. (1963). Stigma: Notes on the Management of Spoiled Identity. Englewood Cliffs, NJ: Prentice Hall.Google Scholar
Grandin, T. (2006). Thinking in Pictures: And Other Reports from My Life with Autism. New York, NY: Vintage.Google Scholar
Grandin, T. & Scariano, M. (1986). Emergence: Labeled Autistic. Novato, CA: Arena Press.Google Scholar
Hacking, I. (2009a). Autistic autobiography. Philosophical Transactions of the Royal Society B: Biological Sciences, 364(1522), 1467–1473.CrossRefGoogle ScholarPubMed
Hacking, I. (2009b). Humans, aliens and autism. Daedalus, 138(3), 44–59.Google Scholar
Higashida, N. (2013). The Reason I Jump: The Inner Voice of a Thirteen-Year-Old Boy with Autism. Toronto: Knopf.Google Scholar
Hughes, R. (2003). Running with Walker. London: Jessica Kingsley PublishersGoogle Scholar
Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2, 217–250.Google Scholar
Kapp, S. K. (2011). Navajo and autism: The beauty of harmony, Disability & Society, 26(5), 583–595, doi:10.1080/09687599.2011.589192.Google Scholar
Kapp, S. K. (Ed.). (2020). Autistic Community and the Neurodiversity Movement. Stories from the Frontline. Basingstoke: Palgrave Macmillan, open access from www.palgrave.com/gp/book/9789811384363.Google Scholar
Karasik, P. & Karasik, J. (2003). The Ride Together: A Brother and Sister’s Memoir of Autism in the Family. New York, NY: Washington Square.Google Scholar
Kulick, D. (2005). The importance of what gets left out. Discourse Studies 7(4–5), 615–624.Google Scholar
Limburg, J. (2017). The Autistic Alice. Hexham: Bloodaxe Books.Google Scholar
Lloyd-Williams, R. (2016). The Duck [Audio file]. Retrieved May 08, 2021, from https://autact.co.uk/audio/.Google Scholar
Lloyd-Williams, R. (2020). Autistic Pride. Retrieved May 08, 2021, from https://autistrhi.com.Google Scholar
Lombardo, M. V., & Baron‐Cohen, S. (2010). Unraveling the paradox of the autistic self. Wiley Interdisciplinary Reviews: Cognitive Science, 1(3), 393–403.Google ScholarPubMed
López, B. (2015). Beyond modularisation: The need of a socio-neuro-constructionist model of autism. Journal of Autism and Developmental Disorders, 45(1), 31–41.Google Scholar
Markram, K. & Markram, H. (2010). The Intense World Theory: A unifying theory of the neurobiology of autism. Frontiers in Human Neuroscience, 4, 224, doi:10.3389/fnhum.2010.00224.Google Scholar
McAnulty, D. (2020). Diary of a Young Naturalist. Beaminster: Little Toller.Google Scholar
McDonagh, P. (2008). Autism and modernism: A genealogical exploration. In Osteen, M. (Ed.), Autism and Representation (pp. 100–116). New York, NY: Routledge.Google Scholar
McGrath, J. (2017). Naming Adult Autism: Culture, Science, Identity. New York, NY: Rowman & Littlefield International.Google Scholar
Metzinger, T. (2003). Being No One. Cambridge, MA: MIT Press.Google Scholar
Milton, D. (2013). “Filling in the gaps”: A micro-sociological analysis of autism. Autonomy, the Critical Journal of Interdisciplinary Autism Studies, 1(2). Retrieved May 08, 2021, from www.larry-arnold.net/Autonomy/index.php/autonomy/article/view/AR4/pdf.Google Scholar
Milton, D. (2014a). So what exactly are autism interventions intervening with? Good Autism Practice, 15(2), 6–14.Google Scholar
Milton, D. (2014b). Autistic expertise: A critical reflection on the production of knowledge in autism studies. Autism, 18(7), 794–802.Google Scholar
Morrall, C. (2008). The Language of Others. London: Sceptre.Google Scholar
Muratori, F. & Maestro, S. (2007). Autism as a downstream effect of primary difficulties in intersubjectivity interacting with abnormal development of brain connectivity. International Journal for Dialogical Science, 2(1), 93–118. Retrieved May 08, 2021, from http://ijds.lemoyne.edu/journal/2_1/index.html.Google Scholar
Muzikar, D. (2019). The autism puzzle piece: A symbol that’s going to stay or go? The Art of Autism, April 20. Retrieved May 08, 2021, from www.theartofautism.com.Google Scholar
Nilsson, M., Handest, P., Nylander, L., Pedersen, L., Carlsson, J., & Arnfred, S. (2019). Arguments for a phenomenologically informed clinical approach to autism spectrum disorder. Psychopathology, 52(3), 153–160.Google Scholar
Ochs, E. & Solomon, O. (2010). Autistic sociality. Ethos, 38(1), 69–92.Google Scholar
Osteen, M. (Ed.). (2008). Autism and Representation. New York, NY: Routledge.Google Scholar
Osteen, M. (2013). Narrating autism. In Davidson, J. & Orsini, M. (Eds.), Worlds of Autism. Across the Spectrum of Neurological Difference (pp. 261–284). Minneapolis, MN: University of Minnesota Press.Google Scholar
Poe, C. A. (2019). How To Be Autistic. Oxford: Myriad.Google Scholar
Preiser, W. F., & Smith, K. H. (Eds.). (2011). Universal Design Handbook. New York, NY: McGraw-Hill.Google Scholar
Prince, D. E. (2013). “All the things I have ever been”: Autoethnographic reflections on academic writing and autism. In Davidson, J. & Orsini, M. (Eds.), Worlds of Autism: Across the Spectrum of Neurological Difference, (pp. 319–330). Minneapolis, MN: University of Minnesota Press.Google Scholar
Prince-Hughes, D. (2004). Songs of the Gorilla Nations. My Journey through Autism. New York, NY: Three Rivers Press.Google Scholar
Pripas-Kapit, S. (2020). Historicizing Jim Sinclair’s “Don’t mourn for us”: A cultural and intellectual history of neurodiversity’s first manifesto. In Kapp, S. (Ed.), Autistic Community and the Neurodiversity Movement. Stories from the Frontline. Basingstoke: Palgrave Macmillan, open access from www.palgrave.com/gp/book/9789811384363.Google Scholar
Robinson, J. E. (2019). Is autism becoming neurodiversity? When medical terms and community words converge. Psychology Today. Retrieved May 08, 2021, from www.psychologytoday.com/gb/blog/my-life-aspergers/201910/is-autism-becoming-neurodiversity.Google Scholar
Sacks, H. (1992). Lectures on Conversation, 2 vols. (Fall 1964–Spring 1972). Oxford: Blackwell.Google Scholar
Sacks, O. (1995). An Anthropologist on Mars. Seven Paradoxical Tales. London: Picador.Google Scholar
Scholiers, J. (n.d.). A less transparent self in autism. Unpublished manuscript.Google Scholar
Schwarz, P. (2008). Film as a vehicle for raising consciousness among autistic peers. In Osteen, M. (Ed.), Autism and Representation (pp. 256–270). New York, NY: Routledge.Google Scholar
Silberman, S. (2017). Neurotribes: The Legacy of Autism and How to Think Smarter about People Who Think Differently. London: Atlantic Books.Google Scholar
Sinclair, J. (1993). Don’t mourn for us. Our Voice, 11(3) [Autism Network International Newsletter]. Retrieved May 08, 2021, from www.autreat.com/dont_mourn.html.Google Scholar
Sinclair, J. (1992). Bridging the gaps: An inside-out view of autism. In Schopler, E. & Mesibov, G. B., High-Functioning Individuals with Autism. New York, NY: Plenum Press, http://jisincla.mysite.syr.edu/bridgingnc.htm.Google Scholar
Sinclair, J. (1999). Why I dislike “person first” language. Retrieved May 08, 2021, from http://web.archive.org/web/20090210190652/http://web.syr.edu/~jisincla/person_first.htm.Google Scholar
Singer, J. (2019). There’s a lot in a name – diversity vs. divergence. Genius Within, February 5. Retrieved May 08, 2021, from www.geniuswithin.co.uk/.Google Scholar
Sterponi, L., de Kirby, K., & Shankey, J. (2015). Rethinking language in autism. Autism, 19(5), 517–526.Google Scholar
Sterponi, L. & Fasulo, A. (2010). “How to go on”: Intersubjectivity and progressivity in the communication of a child with autism. Ethos, 38(1), 116–142.Google Scholar
Thomas, R. E. (2020). Hannah Gadsby’s Douglas is a second date disguised as stand-up. Elle, May 27. Retrieved May 08, 2021, from www.elle.com/culture/.Google Scholar
Thunberg, G., Thunberg, S., Ernman, M., & Ernman, B. (2020). Our House Is on Fire: Scenes of a Family and a Planet in Crisis. London: Penguin.Google Scholar
Trevarthen, C. & Delafield-Butt, J. T. (2013). Autism as a developmental disorder in intentional movement and affective engagement. Frontiers in Integrative Neuroscience, 7, 49, doi:10.3389/fnint.2013.00049.Google Scholar
Valtellina, E. (2018). A.S.: Classification, interpellation. In Fein, E. and Rios, C. (Eds.), Autism in Translation, Culture, Mind and Society (pp. 207–229). Cham: Palgrave Macmillan, doi:10.1007/978-3-319-93293-4_10.Google Scholar
Williams, D. (1992/2009). Nobody Nowhere: The Remarkable Autobiography of an Autistic Girl. London: Jessica Kingsley Publishers.Google Scholar
Wing, L. & Gould, J. (1979). Severe impairments of social interaction and associated abnormalities in children: Epidemiology and classification. Journal of Autism and Developmental Disorders, 9(1), 11–29.Google Scholar
Wolitzer, M. (2013). The Interestings. London: Vintage.Google Scholar
Woods, R., Milton, D., Arnold, L., & Graby, S. (2018). Redefining critical autism studies: A more inclusive interpretation. Disability & Society, 33(6), 974–979.Google Scholar
Yergeau, M. (2013). Clinically significant disturbance: On theorists who theorize theory of mind. Disability Studies Quarterly, 33(4), doi:10.18061/dsq.v33i4.3876.Google Scholar
Zahavi, D. (2010). Complexities of self. Autism, 14(5), 547–551.CrossRefGoogle ScholarPubMed

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