Chapter 7 - Translating Chronic Pain and the Ethics of Reading in the Personal Essay

Summary

Focusing on contemporary life writing of chronic pain, specifically lyric essays, this chapter explores the language of pain, refuting its untranslatability, and suggesting that creative forms and experimental expression are helping to develop language to meet experience. Recent illness narratives are building a common language with which to articulate their physical sensations, with Eula Biss’s ‘The Pain Scale’ (2005) encouraging a community of pain expression, and becoming a generative intertext. While pain sufferers reclaim their experiences, they are also reclaiming and renewing diagnostic vocabulary, for example through ‘subterfuge‘, which requires readers to better engage in attentive listening, with an ethical obligation not to overlook or mishear marginalized voices. Alongside Biss, this chapter explores the work of Amy Berkowitz, Molly McCully Brown, Anne Boyer, Sinéad Gleeson, Sonya Huber, and Lisa Olstein.