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Educational level and employment status in adults with congenital heart disease

Published online by Cambridge University Press:  13 September 2017

Constanze Pfitzer Open the ORCID record for Constanze Pfitzer [Opens in a new window] ,
Paul C. Helm ,
Lisa-Maria Rosenthal ,
Christoph Walker ,
Hannah Ferentzi ,
Ulrike M. M. Bauer ,
Felix Berger  and
Katharina R. L. Schmitt
Constanze Pfitzer*
Affiliation:
Department of Congenital Heart Disease – Paediatric Cardiology, Deutsches Herzzentrum Berlin, Germany Berlin Institute of Health (BIH), Berlin, Germany DZHK (German Centre for Cardiovascular Research), partner siteBerlin, Germany
Paul C. Helm
Affiliation:
National Register for Congenital Heart Defects, DZHK (German Centre for Cardiovascular Research), Berlin, Germany
Lisa-Maria Rosenthal
Affiliation:
Department of Congenital Heart Disease – Paediatric Cardiology, Deutsches Herzzentrum Berlin, Germany DZHK (German Centre for Cardiovascular Research), partner siteBerlin, Germany
Christoph Walker
Affiliation:
Department of Congenital Heart Disease – Paediatric Cardiology, Deutsches Herzzentrum Berlin, Germany DZHK (German Centre for Cardiovascular Research), partner siteBerlin, Germany
Hannah Ferentzi
Affiliation:
Department of Congenital Heart Disease – Paediatric Cardiology, Deutsches Herzzentrum Berlin, Germany Unit for Psychosomatic Medicine, Deutsches Herzzentrum Berlin, Germany
Ulrike M. M. Bauer
Affiliation:
National Register for Congenital Heart Defects, DZHK (German Centre for Cardiovascular Research), Berlin, Germany Competence Network for Congenital Heart Defects, DZHK (German Centre for Cardiovascular Research), Berlin, Germany
Felix Berger
Affiliation:
Department of Congenital Heart Disease – Paediatric Cardiology, Deutsches Herzzentrum Berlin, Germany DZHK (German Centre for Cardiovascular Research), partner siteBerlin, Germany Department of Paediatric Cardiology, Charite – Universitaetsmedizin Berlin, Germany
Katharina R. L. Schmitt
Affiliation:
Department of Congenital Heart Disease – Paediatric Cardiology, Deutsches Herzzentrum Berlin, Germany DZHK (German Centre for Cardiovascular Research), partner siteBerlin, Germany
*
Correspondence to: Dr med. C. Pfitzer, MD, Department of Congenital Heart Disease - Paediatric Cardiology, Deutsches Herzzentrum Berlin, Augustenburger Platz 1, 13353 Berlin, Germany. Tel: +49 30 4593 2849; Fax: +49 30 4593 2900; E-mail: Pfitzer@dhzb.de
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Abstract

Purpose

Through this study we aimed to assess the educational level and employment status of adults with CHD in Germany.

Methods

Data were acquired from an online survey carried out in 2015 by the German National Register for Congenital Heart Defects. A total of 1458 adults with CHD participated in the survey (response rate: 37.6%). For 1198 participants, detailed medical information, such as main cardiac diagnosis and information from medical reports, was available.

Results

Of the participants surveyed (n=1198), 54.5% (n=653) were female, and the mean age was 30 years. The majority of respondents (59.4%) stated that they had high education levels and that they were currently employed (51.1%). Patients with simple CHD had significantly higher levels of education (p<0.001) and were more likely to be employed (p=0.01) than were patients with complex CHD.

Conclusions

More than half of the participants had high education levels and the majority were employed. The association between CHD and its severity and individuals’ educational attainment should be investigated more closely in future studies.

Keywords

Adults with CHDeducational levelemployment statusquality of life
Type
Original Articles
Information
Cardiology in the Young , Volume 28 , Issue 1 , January 2018 , pp. 32 - 38
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Copyright
© Cambridge University Press 2017 

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References

1. Marelli, AJ, Mackie, AS, Ionescu-Ittu, R, et al. Congenital heart disease in the general population: changing prevalence and age distribution. Circulation 2007; 115: 163–172.CrossRefGoogle ScholarPubMed
2. Kovacs, AH, Verstappen, A. The whole adult congenital heart disease patient. Prog Cardiovasc Dis 2011; 53: 247–253.CrossRefGoogle ScholarPubMed
3. Sable, C, Foster, E, Uzark, K, et al. Best practices in managing transition to adulthood for adolescents with congenital heart disease: the transition process and medical and psychosocial issues: a scientific statement from the American Heart Association. Circulation 2011; 123: 1454–1485.CrossRefGoogle ScholarPubMed
4. Diller, GP, Breithardt, G, Baumgartner, H. Congenital heart defects in adulthood. Dtsch Arztebl Int 2011; 108: 452–459.Google ScholarPubMed
5. Moons, P, Bovijn, L, Budts, W, et al. Temporal trends in survival to adulthood among patients born with congenital heart disease from 1970 to 1992 in Belgium. Circulation 2010; 122: 2264–2272.CrossRefGoogle ScholarPubMed
6. Moons, P, Van Deyk, K, Marquet, K, et al. Individual quality of life in adults with congenital heart disease: a paradigm shift. Eur Heart J 2005; 26: 298–307.CrossRefGoogle ScholarPubMed
7. Vigl, M, Niggemeyer, E, Hager, A, et al. The importance of socio-demographic factors for the quality of life of adults with congenital heart disease. Qual Life Res 2011; 20: 169–177.CrossRefGoogle ScholarPubMed
8. Lesch, W, Specht, K, Lux, A, et al. Disease-specific knowledge and information preferences of young patients with congenital heart disease. Cardiol Young 2014; 24: 321–330.CrossRefGoogle ScholarPubMed
9. Hemingway, H, Nicholson, A, Stafford, M, et al. The impact of socioeconomic status on health functioning as assessed by the SF-36 questionnaire: the Whitehall II Study. Am J Public Health 1997; 87: 1484–1490.CrossRefGoogle ScholarPubMed
10. Helm, PC, Sticker, EJ, Keuchen, R, et al. Is having a job a protective factor? Employment status and state of medical care as subjectively perceived by adults with CHD in Germany. Cardiol Young, 2016 November 10. [Epub ahead of print].Google Scholar
11. Schwedler, G, Lindinger, A, Lange, PE, et al. Frequency and spectrum of congenital heart defects among live births in Germany : a study of the Competence Network for Congenital Heart Defects. Clin Res Cardiol 2011; 100: 1111–1117.CrossRefGoogle Scholar
12. Helm, PC, Koerten, MA, Abdul-Khaliq, H, et al. Representativeness of the German National Register for Congenital Heart Defects: a clinically oriented analysis. Cardiol Young 2016; 26: 921–926.CrossRefGoogle ScholarPubMed
13. Karsenty, C, Maury, P, Blot-Souletie, N, et al. The medical history of adults with complex congenital heart disease affects their social development and professional activity. Arch Cardiovasc Dis 2015; 108: 589–597.CrossRefGoogle ScholarPubMed
14. Bygstad, E, Pedersen, LC, Pedersen, TA, et al. Tetralogy of Fallot in men: quality of life, family, education, and employment. Cardiol Young 2012; 22: 417–423.CrossRefGoogle ScholarPubMed
15. Survey, E., Köln Questback GmbH, 2015. https://www.destatis.de/DE/Publikationen/Thematisch/BildungForschungKultur/Bildungsstand/BildungsstandBevoelkerung5210002157004.pdf?__blob=publicationFile.Google Scholar
16. Warnes, CA, Liberthson, R, Danielson, GK, et al. Task force 1: the changing profile of congenital heart disease in adult life. J Am Coll Cardiol 2001; 37: 1170–1175.CrossRefGoogle ScholarPubMed
17. Bonferroni, C. Teoria statistica delle classi e calcolo delle probabilita. Libreria internazionale Seeber, Florence, 1936.Google Scholar
18. IBM. IBM SPSS Statistics for Windows. IBM Corp, Armonk, NY, 2013.Google Scholar
19. Tyagi, M, Austin, K, Stygall, J, et al. What do we know about cognitive functioning in adult congenital heart disease? Cardiol Young 2014; 24: 13–19.CrossRefGoogle ScholarPubMed
20. Bundesamt, S. Bildungsstand der Bevölkerung, 2015.Google Scholar
21. Pfitzer, C, Zynda, A, Hohmann, C, et al. Educational level of childhood brain tumor survivors: results from a German survey. Klin Padiatr 2013; 225: 138–144.Google ScholarPubMed
22. Zynda, A, Reinmuth, S, Pfitzer, C, et al. Childhood leukemia and its impact on graduation and having children: results from a national survey. Leuk Lymphoma 2012; 53: 2419–2422.CrossRefGoogle ScholarPubMed
23. Ternestedt, BM, Wall, K, Oddsson, H, et al. Quality of life 20 and 30 years after surgery in patients operated on for tetralogy of Fallot and for atrial septal defect. Pediatr Cardiol 2001; 22: 128–132.CrossRefGoogle ScholarPubMed
24. Matos, SM, Sarmento, S, Moreira, S, et al. Impact of fetal development on neurocognitive performance of adolescents with cyanotic and acyanotic congenital heart disease. Congenit Heart Dis 2014; 9: 373–381.CrossRefGoogle ScholarPubMed
25. Wray, J, Sensky, T. Congenital heart disease and cardiac surgery in childhood: effects on cognitive function and academic ability. Heart 2001; 85: 687–691.CrossRefGoogle ScholarPubMed
26. Wernovsky, G, Stiles, KM, Gauvreau, K, et al. Cognitive development after the Fontan operation. Circulation 2000; 102: 883–889.CrossRefGoogle ScholarPubMed
27. Mahle, WT, Clancy, RR, Moss, EM, et al. Neurodevelopmental outcome and lifestyle assessment in school-aged and adolescent children with hypoplastic left heart syndrome. Pediatrics 2000; 105: 1082–1089.CrossRefGoogle ScholarPubMed
28. Zomer, AC, Vaartjes, I, Uiterwaal, CS, et al. Social burden and lifestyle in adults with congenital heart disease. Am J Cardiol 2012; 109: 1657–1663.CrossRefGoogle ScholarPubMed
29. Federal Ministry for Family Affairs, Senior Citizens, Women and Youth, gender-mainstreaming.Google Scholar
30. Curtin, R, Presser, S, Singer, E. The effects of response rate changes on the index of consumer sentiment. Public Opin Q 2000; 64: 413–428.CrossRefGoogle ScholarPubMed
31. Helm, PC, Korten, MA, Abdul-Khaliq, H, et al. Three parties, one direction: research priorities in adults with congenital heart disease. What do professionals, patients and relatives want to know? Int J Cardiol 2016; 207: 220–229.CrossRefGoogle ScholarPubMed