This article examines the role of digital technology in enabling and enhancing democratic practices and forms of governance. It contributes to emerging debates on democratic innovations by proposing a novel theoretical account of decentralized participatory democracy. To develop our account, we draw on the experience of two EU-funded projects, D-CENT and DECODE, which produced innovative citizen participation platforms and digital public infrastructure. Bringing democratic theory into conversation with critical data studies and the new municipalism movement, we theorize how these projects advanced three political aims: organizing political communities to build collective power, empowering citizens through direct participation in decision making, and transforming political institutions. The article then analyzes the strengths and limitations of these projects to draw lessons for policy makers and practitioners for future digital democratic experiments.

To harness the promises of digital transformation, different players take different paths. Departing from corporate-driven (e.g., the United States) and state-led (e.g., China) approaches, in various documents, the European Union states its goal to establish a citizen-centric data ecosystem. However, it remains contentious the extent to which the envisioned digital single market can enable the creation of public value and empower citizens. As an alternative, in this article, we argue in favor of a fair data ecosystem, defined as an approach capable of representing and keep in balance the data interests of all actors, while maintain a collective outlook. We build such ecosystem around data commons—as a third path to market and state approaches to the managing of resources—coupled with open data (OD) frameworks and spatial data infrastructures (SDIs). Indeed, based on literature, we claim that these three regimes complement each other, with OD and SDIs supplying infrastructures and institutionalization to data commons’ limited replicability and scalability. This creates the preconditions for designing the main roles, rules, and mechanisms of a data republic, as a possible enactment of a fair data ecosystem. While outlining here its main traits, the testing of the data republic model is open for further research.

In our data-driven society, personal data affecting individuals as data subjects are increasingly being collected and processed by sizeable and international companies. While data protection laws and privacy technologies attempt to limit the impact of data breaches and privacy scandals, they rely on individuals having a detailed understanding of the available recourse, resulting in the responsibilization of data protection. Existing data stewardship frameworks incorporate data-protection-by-design principles but may not include data subjects in the data protection process itself, relying on supplementary legal doctrines to better enforce data protection regulations. To better protect individual autonomy over personal data, this paper proposes a data protection-focused data commons to encourage co-creation of data protection solutions and rebalance power between data subjects and data controllers. We conduct interviews with commons experts to identify the institutional barriers to creating a commons and challenges of incorporating data protection principles into a commons, encouraging participatory innovation in data governance. We find that working with stakeholders of different backgrounds can support a commons’ implementation by openly recognizing data protection limitations in laws, technologies, and policies when applied independently. We propose requirements for deploying a data protection-focused data commons by applying our findings and data protection principles such as purpose limitation and exercising data subject rights to the Institutional Analysis and Development (IAD) framework. Finally, we map the IAD framework into a commons checklist for policy-makers to accommodate co-creation and participation for all stakeholders, balancing the data protection of data subjects with opportunities for seeking value from personal data.

Since 2013, federal research-funding agencies have been required to develop and implement broad data sharing policies. Yet agencies today continue to grapple with the mechanisms necessary to enable the sharing of a wide range of data types, from genomic and other -omics data to clinical and pharmacological data to survey and qualitative data. In 2016, the National Cancer Institute (NCI) launched the ambitious $1.8 billion Cancer Moonshot Program, which included a new Public Access and Data Sharing (PADS) Policy applicable to funding applications submitted on or after October 1, 2017. The PADS Policy encourages the immediate public release of published research results and data and requires all Cancer Moonshot grant applicants to submit a PADS plan describing how they will meet these goals. We reviewed the PADS plans submitted with approximately half of all funded Cancer Moonshot grant applications in fiscal year 2018, and found that a majority did not address one or more elements required by the PADS Policy. Many such plans made no reference to the PADS Policy at all, and several referenced obsolete or outdated National Institutes of Health (NIH) policies instead. We believe that these omissions arose from a combination of insufficient education and outreach by NCI concerning its PADS Policy, both to potential grant applicants and among NCI’s program staff and external grant reviewers. We recommend that other research funding agencies heed these findings as they develop and roll out new data sharing policies.