Participatory research denotes the engagement and meaningful involvement of the community of interest across multiple stages of investigation, from design to data collection, analysis, and publication. Traditionally, people with first-hand experience of psychiatric diagnoses, service users, and those living with a psychosocial disability have been seen objects rather than agents of research and knowledge production, despite the ethical and practical benefits of their involvement. The state of the art of knowledge about participatory research in mental health Brazil is poorly understood outside of its local context. The purpose of this article was to conduct a scoping review of participatory and user-led research in mental health in Brazil. We identified 20 articles that met eligibility criteria. Participation in research was not treated as separate from participation in shaping mental health policy, driving care, or the broader right to fully participate in societal life and enjoy social and civil rights. Studies identified several obstacles to full participation, including the biomedical model, primacy of academic and scientific knowledge, and systemic barriers. Our extraction, charting, and synthesis yielded four themes: power, knowledge, autonomy, and empowerment. Participation in this context must address the intersecting vulnerabilities experienced by those who are both Brazilian and labeled as having a mental illness. Participatory research and Global South leadership must foreground local epistemologies that can contribute to the global debate about participation and mental health research.
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State of the art of participatory and user-led research in mental health in Brazil: A scoping review
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- 05 April 2023, e21
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Optimizing cognitive and behavioral approaches for perinatal depression: A systematic review and meta-regression analysis
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- 15 March 2023, e22
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Interventions to improve the mental health or mental well-being of migrants and ethnic minority groups in Europe: A scoping review
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- 20 April 2023, e23
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Mental health of vulnerable groups experiencing a drought or bushfire: A systematic review
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- 13 April 2023, e24
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Developmentally appropriate mental health literacy content for school-aged children and adolescents
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- 03 May 2023, e25
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Effective training practices for non-specialist providers to promote high-quality mental health intervention delivery: A narrative review with four case studies from Kenya, Ethiopia, and the United States
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- 09 May 2023, e26
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Depressive symptoms and their association with age, chronic conditions and health status among middle-aged and elderly people in peri-urban Tanzania
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- 04 May 2023, e27
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Preventing the onset of depressive disorders in low-and middle-income countries: An overview
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- 16 May 2023, e28
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Moving psychiatric deinstitutionalization forward: A scoping review of barriers and facilitators
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- 04 May 2023, e29
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Decolonising global mental health: The role of Mad Studies
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- 26 May 2023, e30
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Co-developed implementation guidelines to maximize acceptability, feasibility, and usability of mobile phone supervision in Kenya
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- 23 May 2023, e31
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Bereavement issues and prolonged grief disorder: A global perspective
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- 20 June 2023, e32
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Transforming mental healthcare in higher education through scalable mental health interventions
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- 23 June 2023, e33
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Predictors of spontaneous remission and recovery among women with untreated perinatal depression in India and Pakistan
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- 23 June 2023, e34
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Mental health literacy: Perspectives from Northern Kenya Turkana adolescents
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- 13 June 2023, e35
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Management of depression in people living with HIV/AIDS in Senegal: Acceptability, feasibility and benefits of group interpersonal therapy
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- 30 June 2023, e36
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The Advanced C.A.R.E. Suicide Prevention Gatekeeper Training Questionnaire for medical lecturers and specialists: A psychometric evaluation in a Malaysian sample
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- 25 July 2023, e37
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Mental health and lived experience: The value of lived experience expertise in global mental health
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- 15 June 2023, e38
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The effectiveness of anti-stigma interventions for reducing mental health stigma in young people: A systematic review and meta-analysis
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- 10 July 2023, e39
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Exploring potential mental health spillover effects among caregivers and partners of youth in Sierra Leone: A qualitative study
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- 18 July 2023, e40
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