Book contents
- The Cambridge Handbook of Information Technology, Life Sciences and Human Rights
- The Cambridge Handbook of Information Technology, Life Sciences and Human Rights
- Copyright page
- Contents
- Tables
- Contributors
- Acknowledgements
- Introduction
- Part I Life Sciences and Human Rights
- 1 M-Health at the Crossroads between the Right to Health and the Right to Privacy
- 2 Neurorights and the Chilean Initiative
- 3 Persuasive Technologies and the Right to Mental Liberty
- 4 The Ethics and Laws of Medical Big Data
- 5 The Right to Have a Child
- 6 Medical Robots and the Right to Health Care
- 7 Life-Maintaining Technology and the Right to Die
- 8 The Spread of Telemedicine in Daily Practice
- 9 Reproductive Technologies and Reproductive Rights
- Part II Information and Communication Technologies and Human Rights
- Part III Towards a Convergence
4 - The Ethics and Laws of Medical Big Data
from Part I - Life Sciences and Human Rights
Published online by Cambridge University Press: 17 May 2022
- The Cambridge Handbook of Information Technology, Life Sciences and Human Rights
- The Cambridge Handbook of Information Technology, Life Sciences and Human Rights
- Copyright page
- Contents
- Tables
- Contributors
- Acknowledgements
- Introduction
- Part I Life Sciences and Human Rights
- 1 M-Health at the Crossroads between the Right to Health and the Right to Privacy
- 2 Neurorights and the Chilean Initiative
- 3 Persuasive Technologies and the Right to Mental Liberty
- 4 The Ethics and Laws of Medical Big Data
- 5 The Right to Have a Child
- 6 Medical Robots and the Right to Health Care
- 7 Life-Maintaining Technology and the Right to Die
- 8 The Spread of Telemedicine in Daily Practice
- 9 Reproductive Technologies and Reproductive Rights
- Part II Information and Communication Technologies and Human Rights
- Part III Towards a Convergence
Summary
The COVID-19 pandemic has highlighted that leveraging medical big data can help to better predict and control outbreaks from the outset. However, there are still challenges to overcome in the 21st century to efficiently use medical big data, promote innovation and public health activities and adequately protect individuals’ privacy. The metaphor that property is a “bundle of sticks” applies equally to medical big data. Understanding medical big data in this way raises a number of questions, including: Who has the right to make money off its buying and selling, or is it inalienable? When does medical big data become sufficiently stripped of identifiers that the rights of an individual concerning the data disappear? How have different regimes such as the General Data Protection Regulation in Europe and the Health Insurance Portability and Accountability Act in the US answered these questions differently? In this chapter, we will discuss three topics: (1) privacy and data sharing, (2) informed consent, and (3) ownership.
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- Publisher: Cambridge University PressPrint publication year: 2022