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18 - Disclosure in Adolescents and Emerging Adults with Chronic Illness

from Part IV - Applications

Published online by Cambridge University Press:  12 December 2024

By
Cynthia A. Berg  and
Anisha Marion
Edited by
Judith G. Smetana ,
Nicole Campione-Barr  and
Lauree C. Tilton-Weaver
Judith G. Smetana
Affiliation:
University of Rochester, New York
Nicole Campione-Barr
Affiliation:
University of Missouri, Columbia
Lauree C. Tilton-Weaver
Affiliation:
Örebro University
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Summary

We review work on disclosure to others about one’s chronic illness condition and challenges in the management of illnesses, focusing on the period of adolescence and emerging adulthood. Adolescents and young adults with a chronic illness who self-disclose to others (beyond parents) that they have a chronic illness are often quite strategic as to how much to disclose and to whom. We then review work on routine disclosures about challenges in the management of chronic illnesses that often occur between parents and adolescents and young adults and romantic partners that can elicit support. We focus our treatment on the illness context of type 1 diabetes, as there is little research on routine disclosure with other illness conditions. We conclude by linking this work to broader models of disclosures for health decisions, recommend that interventions that ease the burden of disclosure may be beneficial, and suggest directions for future research.

Keywords

Chronic illnessdisclosurediabetesadolescentsyoung adults
Type
Chapter
Information
The Cambridge Handbook of Parental Monitoring and Information Management during Adolescence , pp. 369 - 387
Publisher: Cambridge University Press
Print publication year: 2024

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