Book contents
- Disability, Health, Law, and Bioethics
- Disability, Health, Law, and Bioethics
- Copyright page
- Dedication
- Contents
- Notes on Contributors
- Introduction
- Preface
- Acknowledgments
- Part I Disability: Definitions and Theories
- Part II Disability in the Beginning and the End of Life
- Part III Disability in the Clinical Setting
- Part IV Equality, Expertise, and Access
- Introduction to Part IV
- 11 Making “Meaningful Access” Meaningful: Equitable Healthcare for Divisive Times
- 12 The Privacy Problem in Disability Antidiscrimination Law
- 13 Sexual Agency As a Rights-Based Imperative for Persons with Intellectual Disabilities
- Part V Disability, Intersectionality, and Social Movements
- Part VI Quantifying Disability
12 - The Privacy Problem in Disability Antidiscrimination Law
from Part IV - Equality, Expertise, and Access
Published online by Cambridge University Press: 08 April 2020
- Disability, Health, Law, and Bioethics
- Disability, Health, Law, and Bioethics
- Copyright page
- Dedication
- Contents
- Notes on Contributors
- Introduction
- Preface
- Acknowledgments
- Part I Disability: Definitions and Theories
- Part II Disability in the Beginning and the End of Life
- Part III Disability in the Clinical Setting
- Part IV Equality, Expertise, and Access
- Introduction to Part IV
- 11 Making “Meaningful Access” Meaningful: Equitable Healthcare for Divisive Times
- 12 The Privacy Problem in Disability Antidiscrimination Law
- 13 Sexual Agency As a Rights-Based Imperative for Persons with Intellectual Disabilities
- Part V Disability, Intersectionality, and Social Movements
- Part VI Quantifying Disability
Summary
Privacy and disability have an odd relationship. States, communities, and families, sometimes forcibly, have hidden people with disabilities from public view and engagement. In the shadow of a history of forced isolation and as a way of managing the stigma of disability, people with disabilities have, at times, rejected their public identity as disabled. While some people may explicitly deny disability identity for a host of legitimate reasons, more often, people with disabilities capable of “passing” choose to move in the world without disclosing their disability identity even when disclosure can lead to greater access to services, accommodations, or other benefits. At other times, people capable of passing who wish to disclose are discouraged and, at times, prevented from disclosing.
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- Disability, Health, Law, and Bioethics , pp. 159 - 170Publisher: Cambridge University PressPrint publication year: 2020
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