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Person-centred research practice: the user involvement in research of older adults with first-hand experience of reablement

Published online by Cambridge University Press:  01 July 2020

Kari Jokstad Open the ORCID record for Kari Jokstad [Opens in a new window] ,
Bjørg Th. Landmark  and
Kirsti Skovdahl
Kari Jokstad*
Affiliation:
Faculty of Health and Social Sciences, University of South-Eastern Norway, Drammen Kongsberg, Norway Department of Health and Social Welfare, University of South-Eastern Norway, Drammen, Norway
Bjørg Th. Landmark
Affiliation:
Faculty of Health and Social Sciences, University of South-Eastern Norway, Drammen Kongsberg, Norway
Kirsti Skovdahl
Affiliation:
Faculty of Health and Social Sciences, University of South-Eastern Norway, Drammen Kongsberg, Norway
*
*Corresponding author. Email: Kari.Jokstad@usn.no
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Abstract

User involvement is increasingly common in health-care research, and the ideal is user participation and influence during all research stages. Here we describe and reflect on the processes and outcomes associated with advisory group–researcher collaboration from a person-centred perspective. When planning a study in which older adults’ experiences of reablement were investigated, older adults with previous first-hand experience of reablement participated in an advisory group. We found that the fostering of healthful relationships, in which experiential and research knowledge are considered complimentary and equitable, and all members have the power to exercise their unique roles, seems to be a prerequisite for the co-creation of knowledge. Also, practical arrangements and social relationships constitute important details that are crucial to ensuring contribution from older adults with health-related conditions. While such individuals may be unable to participate during all stages of a research project, their involvement on an advisory level during the initial stages can increase study quality and relevance. Input from the advisory group members contributed to the improvement of the language in the study information sheet, improvement of the study design, development and validation of the interview guide, and insight into how the interviews should be conducted. The personal knowledge and expertise of the advisory group members, which emanated from their immediate sensitivity, contributed to the person-centredness in the study.

Keywords

person-centred researcholder adultsfirst-hand experienceuser involvementpatient and public involvementreablementadvisory group–researcher collaboration
Type
Article
Information
Ageing & Society , Volume 42 , Issue 1 , January 2022 , pp. 143 - 156
Copyright
Copyright © The Author(s), 2020. Published by Cambridge University Press

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