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Stated preferences for long-term care: a literature review

Published online by Cambridge University Press:  17 April 2018

THOMAS LEHNERT ,
MAX HEUCHERT ,
KATHARINA HUSSAIN  and
HANS-HELMUT KÖNIG
THOMAS LEHNERT
Affiliation:
Department of Health Economics and Health Services Research, University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.
MAX HEUCHERT
Affiliation:
Department of Health Economics and Health Services Research, University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.
KATHARINA HUSSAIN
Affiliation:
Department of Health Economics and Health Services Research, University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.
HANS-HELMUT KÖNIG*
Affiliation:
Department of Health Economics and Health Services Research, University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.
*
Address for correspondence: Hans-Helmut König, Department of Health Economics and Health Services Research, University Medical Center Hamburg-Eppendorf (UKE), Martinistr. 52, 20246 Hamburg, Germany E-mail: h.koenig@uke.de
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Abstract

Person-centred provision of long-term care (LTC) requires information on how individuals value respective LTC services. The literature on LTC preferences has not been comprehensively reviewed, existing summaries are contradictory. An explorative, scoping review was conducted to provide a thorough methodological description and results synthesis of studies that empirically investigated LTC preference outcomes based on respondents’ statements. A wide search strategy, with 18 key terms relating to ‘LTC’ and 31 to ‘preferences’, was developed. Database searches in PubMed, Ovid and ScienceDirect were conducted in February 2016. The 59 studies meeting the inclusion criteria were grouped and methodically described based on preference elicitation techniques and methods. Despite substantial methodological heterogeneity between studies, certain findings consistently emerged for the investigated LTC preference outcomes. The large majority of respondents preferred to receive LTC in their known physical and social environment when care needs were moderate, but residential care when care needs were extensive. Preferences were found to depend on a variety of personal, environmental, social and cultural aspects. Dependent individuals aspired to preserve their personal and social identity, self-image, independence, autonomy, control and dignity, which suggests that LTC preferences are a function of the perceived ability of a specific LTC arrangement to satisfy peoples’ basic physiological and mental/social needs. Research on LTC preferences would greatly profit from a standardisation of respective concepts and methods.

Keywords

long-term carepreferencesneedsliterature reviewageing
Type
Review Article
Information
Ageing & Society , Volume 39 , Issue 9 , September 2019 , pp. 1873 - 1913
Copyright
Copyright © Cambridge University Press 2018 

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References

Ali, S. and Ronaldson, S. 2012. Ordinal preference elicitation methods in health economics and health services research: using discrete choice experiments and ranking methods. British Medical Bulletin, 103, 1, 21–44.Google Scholar
American Association of Retired People (AARP) 2007. Long-term Care Preferences: A Survey of Alabama Residents Age 35+. Available online at https://assets.aarp.org/rgcenter/il/al_ltc_2007.pdf [Accessed 5 January 2017].Google Scholar
Andersen, R. M. 1995. Revisiting the behavioral model and access to medical care: does it matter? Journal of Health and Social Behavior, 36, 1, 1–10.Google Scholar
Anderson, J. R. and Turner, W. L. 2010. When caregivers are in need of care: African-American caregivers’ preferences for their own later life care. Journal of Aging Studies, 24, 1, 65–73.Google Scholar
Armitage, C. J. and Conner, M. 2000. Social cognition models and health behaviour: a structured review. Psychology & Health, 15, 2, 173–89.Google Scholar
Ayanian, J. Z., Cleary, P. D., Weissman, J. S. and Epstein, A. M. 1999. The effect of patients’ preferences on racial differences in access to renal transplantation. New England Journal of Medicine, 341, 22, 1661–9.Google Scholar
Babitsch, B., Gohl, D. and von Lengerke, T. 2012. Re-revisiting Andersen's Behavioral Model of Health Services Use: a systematic review of studies from 1998–2011. GMS Psycho-Social Medicine, 9, Doc11.Google Scholar
Bangerter, L. R., Abbott, K., Heid, A. R., Klumpp, R. E. and Van Haitsma, K. 2016 a. Health care preferences among nursing home residents: perceived barriers and situational dependencies to person-centered care. Journal of Gerontological Nursing, 42, 2, 11–6.Google Scholar
Bangerter, L. R., Van Haitsma, K., Heid, A. R. and Abbott, K. 2016 b. ‘Make me feel at ease and at home’: differential care preferences of nursing home residents. The Gerontologist, 56, 4, 702–13.Google Scholar
Batavia, A. I. 2002. Consumer direction, consumer choice, and the future of long-term care. Journal of Disability Policy Studies, 13, 2, 67–74.Google Scholar
Benefield, L. E. and Holtzclaw, B. J. 2014. Aging in place: merging desire with reality. The Nursing Clinics of North America, 49, 2, 123–31.Google Scholar
Bihan, B. L. and Martin, C. 2006. A comparative case study of care systems for frail elderly people: Germany, Spain, France, Italy, United Kingdom and Sweden. Social Policy & Administration, 40, 1, 26–46.Google Scholar
Bloom, D. E., Chatterji, S., Kowal, P., Lloyd-Sherlock, P., McKee, M., Rechel, B., Rosenberg, L. and Smith, J. P. 2015. Macroeconomic implications of population ageing and selected policy responses. Lancet, 385, 9968, 649–57.Google Scholar
Boisaubin, E. V., Chu, A. and Catalano, J. M. 2007. Perceptions of long-term care, autonomy, and dignity, by residents, family and care-givers: the Houston experience. Journal of Medicine and Philosophy, 32, 5, 447–64.Google Scholar
Bradley, E. H., Curry, L. A., McGraw, S. A., Webster, T. R., Kasl, S. V. and Andersen, R. 2004. Intended use of informal long-term care: the role of race and ethnicity. Ethnicity & Health, 9, 1, 37–54.Google Scholar
Brau, R. and Lippi Bruni, M. 2008. Eliciting the demand for long-term care coverage: a discrete choice modelling analysis. Health Economics, 17, 3, 411–33.Google Scholar
Callaghan, L. and Towers, A. M. 2014. Feeling in control: comparing older people's experiences in different care settings. Ageing & Society, 34, 8, 1427–51.Google Scholar
Callan, A. and O'Shea, E. 2015. Willingness to pay for telecare programmes to support independent living: results from a contingent valuation study. Social Science & Medicine, 124, 94–102.Google Scholar
Cantor, M. 1979. Neighbors and friends. An overlooked resource in the informal support system. Research on Aging, 1, 4, 434–63.Google Scholar
Chan, H. M. and Pang, S. 2007. Long-term care: dignity, autonomy, family integrity, and social sustainability: the Hong Kong experience. Journal of Medicine and Philosophy, 32, 5, 401–24.Google Scholar
Chapleski, E. E., Sobeck, J. and Fisher, C. 2003. Long-term care preferences and attitudes among Great Lakes American Indian families: cultural context matters. Care Management Journals, 4, 2, 94–100.Google Scholar
Chatterji, S., Byles, J., Cutler, D., Seeman, T. and Verdes, E. 2014. Health, functioning, and disability in older adults’ present status and future implications. The Lancet, 385, 9967, 563–75.Google Scholar
Chiu, L., Tang, K. Y., Liu, Y. H., Shyu, W. C., Chang, T. P. and Chen, T. R. 1998. Consistency between preference and use of long-term care among caregivers of stroke survivors. Public Health Nursing, 15, 5, 379–86.Google Scholar
Chung, M. H., Hsu, N., Wang, Y. C., Lin, H. C., Huang, Y. L., Amidon, R. L. and Kao, S. 2008. Factors affecting the long-term care preferences of the elderly in Taiwan. Geriatric Nursing, 29, 5, 293–301.Google Scholar
Church, A. T., Katigbak, M. S., Locke, K. D., Zhang, H. S., Shen, J. L., Vargas-Flores, J. D., Ibanez-Reyes, J., Tanaka-Matsumi, J., Curtis, G. J., Cabrera, H. F., Mastor, K. A., Alvarez, J. M., Ortiz, F. A., Simon, J. Y. R. and Ching, C. M. 2013. Need satisfaction and well-being: testing self-determination theory in eight cultures. Journal of Cross-cultural Psychology, 44, 4, 507–34.Google Scholar
Colombo, F., Llena-Nozal, A., Mercier, J. and Tjadens, F. 2011. Help Wanted? Providing and Paying for Long-term Care. OECD Health Policy Studies, OECD Publishing, Paris.Google Scholar
Cvengros, J. A., Christensen, A. J., Cunningham, C., Hillis, S. L. and Kaboli, P. J. 2009. Patient preference for and reports of provider behavior: impact of symmetry on patient outcomes. Health Psychology, 28, 6, 660–7.Google Scholar
Da Roit, B. and Le Bihan, B. 2010. Similar and yet so different: cash-for-care in six European countries’ long-term care policies. Milbank Quaterly, 88, 3, 286–309.Google Scholar
Dance, P., Brown, R., Bammer, G. and Sibthorpe, B. 2004. Aged care services for indigenous people in the Australian Capital Territory and surrounds: analysing needs and implementing change. Australian and New Zealand Journal of Public Health, 28, 6, 579–83.Google Scholar
De Meijer, C., Wouterse, B., Polder, J. J. and Koopmanschap, M. 2013. The effect of population aging on health expenditure growth: a critical review. European Journal of Ageing, 10, 4, 353–61.Google Scholar
de Sao Jose, J., Barros, R., Samitca, S. and Teixeira, A. 2016. Older persons’ experiences and perspectives of receiving social care: a systematic review of the qualitative literature. Health & Social Care in the Community, 24, 1, 1–11.Google Scholar
Deci, E. L. and Ryan, R. M. 2000. The ‘what’ and ‘why’ of goal pursuits: human needs and the self-determination of behavior. Psychological Inquiry, 11, 4, 227–68.Google Scholar
Denson, L. A., Winefield, H. R. and Beilby, J. J. 2013. Discharge-planning for long-term care needs: the values and priorities of older people, their younger relatives and health professionals. Scandinavian Journal of Caring Sciences, 27, 1, 3–12.Google Scholar
Department of Health 2001. National Service Framework for Older People. Available online at https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/198033/National_Service_Framework_for_Older_People.pdf [Accessed 12 September 2016].Google Scholar
Dijkstra, A., Yont, G. H., Korhan, E. A., Muszalik, M., Kedziora-Kornatowska, K. and Suzuki, M. 2012. The Care Dependency Scale for measuring basic human needs: an international comparison. Journal of Advanced Nursing, 68, , 2341–8.Google Scholar
Eckert, J. K., Morgan, L. A. and Swamy, N. 2004. Preferences for receipt of care among community-dwelling adults. Journal of Aging & Social Policy, 16, 2, 49–65.Google Scholar
Edwards, H., Courtney, M. and Spencer, L. 2003. International Journal of Nursing Practice, 9, 2, 70–7.Google Scholar
Fischer, R. and Schwartz, S. 2011. Whence differences in value priorities? Individual, cultural, or artifactual sources. Journal of Cross-cultural Psychology, 42, 7, 1127–44.Google Scholar
Fishburn, P. C. 1981. Subjective expected utility – a review of normative theories. Theory and Decision, 13, 2, 139–99.Google Scholar
Forbes, S. and Hoffart, N. 1998. Elders’ decision making regarding the use of long-term care services: a precarious balance. Qualitative Health Research, 8, 6, 736–50.Google Scholar
Gaugler, J. E. 2014. Long-term care: multiple methods and multiple perspectives. Journal of Applied Gerontology, 33, 6, 651–4.Google Scholar
Gaugler, J. E. 2016. Innovations in long-term care. In George, L. and Kenneth, F. (eds), Handbook of Aging and the Social Sciences. Academic Press, San Diego, California, 419–439.Google Scholar
Gill, T. M., Murphy, T. E., Gahbauer, E. A. and Allore, H. G. 2013. Association of injurious falls with disability outcomes and nursing home admissions in community-living older persons. American Journal of Epidemiology, 178, 3, 418–25.Google Scholar
Gomes, B., Calanzani, N., Gysels, M., Hall, S. and Higginson, I. J. 2013. Heterogeneity and changes in preferences for dying at home: a systematic review. BMC Palliative Care, 12, 7.Google Scholar
Gu, Y., Lancsar, E., Ghijben, P., Butler, J. R. and Donaldson, C. 2015. Attributes and weights in health care priority setting: a systematic review of what counts and to what extent. Social Science & Medicine, 146, 41–52.Google Scholar
Guo, J., Konetzka, R. T. and Dale, W. 2014. Using time trade-off methods to assess preferences over health care delivery options: a feasibility study. Value in Health, 17, 2, 302–5.Google Scholar
Guo, J., Konetzka, R. T., Magett, E. and Dale, W. 2015. Quantifying long-term care preferences. Medical Decision Making, 35, 1, 106–13.Google Scholar
Halperin, D. 2013. Aging, family, and preferences for care among older Jews and Arabs. Israel Studies Review, 28, 2, 102–21.Google Scholar
Harden, A., Garcia, J., Oliver, S., Rees, R., Shepherd, J., Brunton, G. and Oakley, A. 2004. Applying systematic review methods to studies of people's views: an example from public health research. Journal of Epidemiology and Community Health, 58, 9, 794–800.Google Scholar
Harper, S. 2014. Economic and social implications of aging societies. Science, 346, 6209, 587–91.Google Scholar
Harrefors, C., Savenstedt, S. and Axelsson, K. 2009. Elderly people's perceptions of how they want to be cared for: an interview study with healthy elderly couples in Northern Sweden. Scandinavian Journal of Caring Sciences, 23, 2, 353–60.Google Scholar
Hayase, D., Mosenteen, D., Thimmaiah, D., Zemke, S., Atler, K. and Fisher, A. G. 2004. Age-related changes in activities of daily living ability. Australian Occupational Therapy Journal, 51, 4, 192–8.Google Scholar
Heid, A. R., Eshraghi, K., Duntzee, C. I., Abbott, K., Curyto, K. and Van Haitsma, K. 2014. ‘It depends’: reasons why nursing home residents change their minds about care preferences. The Gerontologist, 56, 2, 243–55.Google Scholar
Heikkila, K. and Ekman, S.-L. 2003. Elderly care for ethnic minorities – wishes and expectations among elderly Finns in Sweden. Ethnicity & Health, 8, 2, 135–46.Google Scholar
Heuchert, M., König, H. H. and Lehnert, T. 2017. Die Rolle von Präferenzen für Langzeitpflege in der sozialen Pflegeversicherung – Ergebnisse von Experteninterviews [The role of preferences in the German long-term care insurance – results from expert interviews]. Gesundheitswesen, 79, 12, 1052–7.Google Scholar
Hoare, S., Morris, Z. S., Kelly, M. P., Kuhn, I. and Barclay, S. 2015. Do patients want to die at home? A systematic review of the UK literature, focused on missing preferences for place of death. PLOS ONE, 10, 11, e0142723.Google Scholar
Imamoglu, C. and Imamoglu, E. 2006. Relationship between familiarity, attitudes and preferences: assisted living facilities as compared to nursing homes. Social Indicators Research, 79, 2, 235–54.Google Scholar
Iwasaki, M., Pierson, M. E., Madison, D. and McCurry, S. M. 2015. Long-term care planning and preferences among Japanese American baby boomers: comparison with non-Japanese Americans. Geriatrics & Gerontology International, 16, 9, 1074–84.Google Scholar
Jang, Y., Kim, G., Chiriboga, D. A. and Cho, S. 2008. Willingness to use a nursing home: a study of Korean American elders. Journal of Applied Gerontology, 27, 1, 110–7.Google Scholar
Jung, H. P., Baerveldt, C., Olesen, F., Grol, R. and Wensing, M. 2003. Patient characteristics as predictors of primary health care preferences: a systematic literature analysis. Health Expectations, 6, 2, 160–81.Google Scholar
Kaambwa, B., Lancsar, E., McCaffrey, N., Chen, G., Gill, L., Cameron, I. D., Crotty, M. and Ratcliffe, J. 2015. Investigating consumers’ and informal carers’ views and preferences for consumer directed care: a discrete choice experiment. Social Science & Medicine, 140, 81–94.Google Scholar
Kane, R. A. 2001. Long-term care and a good quality of life: bringing them closer together. The Gerontologist, 41, 3, 293–304.Google Scholar
Kane, R. L. and Kane, R. A. 2000. Assessment in long-term care. Annual Review of Public Health, 21, 659–86.Google Scholar
Kane, R. L. and Kane, R. A. 2001. What older people want from long-term care, and how they can get it. Health Affairs, 20, 6, 114–27.Google Scholar
Kasper, J. D., Shore, A. and Penninx, B. W. J. H. 2000. Caregiving arrangements of older disabled women, caregiving preferences, and views on adequacy of care. Aging – Clinical and Experimental Research, 12, 2, 141–53.Google Scholar
Kaye, H. S. 2014. Toward a model long-term services and supports system: state policy elements. The Gerontologist, 54, 5, 754–61.Google Scholar
Keirns, C. C. and Goold, S. D. 2009. Patient-centered care and preference-sensitive decision making. JAMA: Journal of the American Medical Association, 302, 16, 1805–6.Google Scholar
Kenrick, D. T., Griskevicius, V., Neuberg, S. L. and Schaller, M. 2010. Renovating the pyramid of needs: contemporary extensions built upon ancient foundations. Perspectives on Psychological Science, 5, 3, 292–314.Google Scholar
Keysor, J. J., Desai, T. and Mutran, E. J. 1999. Elders’ preferences for care setting in short- and long-term disability scenarios. The Gerontologist, 39, 3, 334–44.Google Scholar
Khalaila, R. and Litwin, H. 2011. Modernization and future care preferences: a cross-sectional survey of Arab Israeli caregivers. Journal of Advanced Nursing, 67, 7, 1614–24.Google Scholar
Kim, E.-Y. and Kim, C.-Y. 2004. Who wants to enter a long-term care facility in a rapidly aging non-Western society? Attitudes of older Koreans toward long-term care facilities. Journal of the American Geriatrics Society, 52, 12, 2114–9.Google Scholar
Kim, H. and Choi, W.-Y. 2008. Willingness to use formal long-term care services by Korean elders and their primary caregivers. Journal of Aging & Social Policy, 20, 4, 474–92.Google Scholar
Kim, H. S. and Kollak, I. 2006. Nursing Theories: Conceptual & Philosophical Foundations. Springer, New York.Google Scholar
King, G. and Farmer, J. 2009. What older people want: evidence from a study of remote Scottish communities. Rural Remote Health, 9, 2, 1166.Google Scholar
Kodner, D. L. 2003. Consumer-directed services: lessons and implications for integrated systems of care. International Journal of Integrated Care, 3, e12.Google Scholar
Kovach, C. R., Noonan, P. E., Schlidt, A. M. and Wells, T. 2005. A model of consequences of need-driven, dementia-compromised behavior. Journal of Nursing Scholarship, 37, 2, 134–40.Google Scholar
Laditka, S. B., Pappas-Rogich, M. and Laditka, J. N. 2001. Home and community-based services for well educated older caregivers: gender differences in attitudes, barriers, and use. Home Health Care Services Quarterly, 19, 3, 1–17.Google Scholar
Larsson Ranada, Å. and Hagberg, J. E. 2014. All the things I have – handling one's material room in old age. Journal of Aging Studies, 31, 110–8.Google Scholar
Loh, C.-P. and Shapiro, A. 2013. Willingness to pay for home- and community-based services for seniors in Florida. Home Health Care Services Quarterly, 32, 1, 17–34.Google Scholar
Low, L. F., Yap, M. and Brodaty, H. 2011. A systematic review of different models of home and community care services for older persons. BMC Health Services Research, 11, 93.Google Scholar
Lum, T. 2012. Long-term care in Asia. Journal of Gerontological Social Work, 55, 7, 563–9.Google Scholar
Luppa, M., Luck, T., Weyerer, S., Konig, H. H., Brahler, E. and Riedel-Heller, S. G. 2010. Prediction of institutionalization in the elderly. A systematic review. Age and Ageing, 39, 1, 31–8.Google Scholar
Mahoney, K. J., Desmond, S. M., Simon-Rusinowitz, L., Loughlin, D. M. and Squillace, M. R. 2002. Consumer preferences for a cash option versus traditional services: telephone survey results from New Jersey elders and adults. Journal of Disability Policy Studies, 13, 2, 74–86.Google Scholar
Mahoney, K. J., Simon-Rusinowitz, L., Loughlin, D. M., Desmond, S. M. and Squillace, M. R. 2004. Determining personal care consumers’ preferences for a consumer-directed cash and counseling option: survey results from Arkansas, Florida, New Jersey, and New York elders and adults with physical disabilities. Health Services Research, 39, 3, 643–64.Google Scholar
Majercsik, E. 2005. Hierachy of needs of geriatric patients. Gerontology, 51, 3, 170–3.Google Scholar
Maloney, S. K., Finn, J., Bloom, D. L. and Andresen, J. 1996. Personal decisionmaking styles and long-term care choices. Health Care Financing Review, 18, 1, 141–55.Google Scholar
Maslow, A. H. 1943. A theory of human motivation. Psychological Review, 50, 4, 370–96.Google Scholar
Matsuda, S. and Yamamoto, M. 2001. Long-term care insurance and integrated care for the aged in Japan. International Journal of Integrated Care, 1, e28.Google Scholar
Matsumoto, H., Naruse, T., Sakai, M. and Nagata, S. 2015. Who prefers to age in place? Cross-sectional survey of middle-aged people in Japan. Geriatrics & Gerontology International, 16, 5, 631–7.Google Scholar
McCaffrey, N., Gill, L., Kaambwa, B., Cameron, I. D., Patterson, J., Crotty, M. and Ratcliffe, J. 2015. Important features of home-based support services for older Australians and their informal carers. Health & Social Care in the Community, 23, 6, 654–64.Google Scholar
McCormick, W. C., Ohata, C. Y., Uomoto, J., Young, H. M., Graves, A. B., Kukull, W., Teri, L., Vitaliano, P., Mortimer, J. A., McCurry, S. M., Bowen, J. D. and Larson, E. B. 2002. Similarities and differences in attitudes toward long-term care between Japanese Americans and Caucasian Americans. Journal of the American Geriatrics Society, 50, 6, 1149–55.Google Scholar
McEachreon, S., Salmoni, A., Pong, R., Garg, R. and Viverais-Dresler, G. 2000. Anticipated choices among self-, informal, and formal care by older Canadians. Journal of Health Psychology, 5, 4, 457–72.Google Scholar
Min, J. W. 2005. Preference for long-term care arrangement and its correlates for older Korean Americans. Journal of Aging and Health, 17, 3, 363–95.Google Scholar
Min, J. W. and Barrio, C. 2009. Cultural values and caregiver preference for Mexican-American and non-Latino White elders. Journal of Cross-cultural Gerontology, 24, 3, 225–39.Google Scholar
Morley, J. E., Caplan, G., Cesari, M., Dong, B., Flaherty, J. H., Grossberg, G. T., Holmerova, I., Katz, P. R., Koopmans, R., Little, M. O., Martin, F., Orrell, M., Ouslander, J., Rantz, M., Resnick, B., Rolland, Y., Tolson, D., Woo, J. and Vellas, B. 2014. International survey of nursing home research priorities. Journal of the American Medical Directors Association, 15, 5, 309–12.Google Scholar
Neville, K. L. 2003. Uncertainty in illness. An integrative review. Orthopedic Nursing, 22, 3, 206–14.Google Scholar
Nieboer, A. P., Koolman, X. and Stolk, E. A. 2010. Preferences for long-term care services: willingness to pay estimates derived from a discrete choice experiment. Social Science & Medicine, 70, 9, 1317–25.Google Scholar
Nord, C. 2016. Free choice in residential care for older people – a philosophical reflection. Journal of Aging Studies, 37, 59–68.Google Scholar
Norton, E. C. 2000. Long-term care. In Culyer, A. J. and Newhouse, J. P. (eds), Handbook of Health Economics. Elsevier, Amsterdam, 955–94.Google Scholar
Organisation of Economic Co-operation and Development (OECD) 2005. Long-term Care for Older People. OECD Publishing, Paris.Google Scholar
Organisation of Economic Co-operation and Development (OECD) 2013 a. Health at a Glance 2013: OECD Indicators. OECD Publishing, Paris.Google Scholar
Organisation of Economic Co-operation and Development (OECD) 2013 b. Public spending on health and long-tem care: a new set of projections. OECD Economic Policy Papers 6, OECD Publishing, Paris.Google Scholar
Organisation of Economic Co-operation and Development (OECD) and European Commission 2013. A Good Life in Old Age? Monitoring and Improving Quality in Long-term care. OECD Health Policy Studies, OECD Publishing, Paris.Google Scholar
Ottmann, G., Allen, J. and Feldman, P. 2013. A systematic narrative review of consumer-directed care for older people: implications for model development. Health & Social Care in the Community, 21, 6, 563–81.Google Scholar
Parker, S. M., Clayton, J. M., Hancock, K., Walder, S., Butow, P. N., Carrick, S., Currow, D., Ghersi, D., Glare, P., Hagerty, R. and Tattersall, M. H. 2007. A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: patient/caregiver preferences for the content, style, and timing of information. Journal of Pain and Symptom Management, 34, 1, 81–93.Google Scholar
Phillips, K. A., Johnson, F. R. and Maddala, T. 2002. Measuring what people value: a comparison of ‘attitude’ and ‘preference’ surveys. Health Services Research, 37, 6, 1659–79.Google Scholar
Pinquart, M. and Sorensen, S. 2002. Older adults’ preferences for informal, formal, and mixed support for future care needs: a comparison of Germany and the United States. International Journal of Aging & Human Development, 54, 4, 291–314.Google Scholar
Pinquart, M., Sorensen, S. and Davey, A. 2003. National and regional differences in preparation for future care needs: a comparison of the United States and Germany. Journal of Cross-cultural Gerontology, 18, 1, 53–78.Google Scholar
Pope, N. D. and Riley, J. E. 2013. ‘Keep dignity intact’: exploring desires for quality long-term care among midlife women. Journal of Gerontological Social Work, 56, 8, 693–708.Google Scholar
Rathert, C., Wyrwich, M. D. and Boren, S. A. 2012. Patient-centered care and outcomes: a systematic review of the literature. Medical Care Research and Review, 70, 4, 351–79.Google Scholar
Rittirong, J., Prasartkul, P. and Rindfuss, R. R. 2014. From whom do older persons prefer support? The case of rural Thailand. Journal of Aging Studies, 31, 171–81.Google Scholar
Robinson, S. M., Ni Bhuachalla, B., Ni Mhaille, B., Cotter, P. E., O'Connor, M. and O'Keeffe, S. T. 2015. Home, please: a conjoint analysis of patient preferences after a bad hip fracture. Geriatrics & Gerontology International, 15, 10, 1165–70.Google Scholar
Rudel, M., Abraham, M. and Gortler, E. 2017. Pflegepräferenzen und regionale Mobilität [Care preferences and spatial mobility]. Zeitschrift für Gerontologie und Geriatriatrie, 50, 3, 200–209.Google Scholar
Ruggiano, N. 2012. Consumer direction in long-term care policy: overcoming barriers to promoting older adults’ opportunity for self-direction. Journal of Gerontological Social Work, 55, 2, 146–59.Google Scholar
Ryan, M., Scott, D. A., Reeves, C., Bate, A., van Teijlingen, E. R., Russell, E. M., Napper, M. and Robb, C. M. 2001. Eliciting public preferences for healthcare: a systematic review of techniques. Health Technology Assessment, 5, 5, 1–186.Google Scholar
Salzburg Global 2011. Salzburg statement on shared decision making. BMJ, 342, d1745.Google Scholar
Sawamura, K., Sano, H. and Nakanishi, M. 2015. Japanese public long-term care insured: preferences for future long-term care facilities, including relocation, waiting times, and individualized care. Journal of the American Medical Directors Association, 16, 4, 350.e9–20.Google Scholar
Schroder-Butterfill, E. and Fithry, T. S. 2014. Care dependence in old age: preferences, practices and implications in two Indonesian communities. Ageing & Society, 34, 3, 361–87.Google Scholar
Schwartz, S. H., Cieciuch, J., Vecchione, M., Davidov, E., Fischer, R., Beierlein, C., Ramos, A., Verkasalo, M., Lonnqvist, J. E., Demirutku, K., Dirilen-Gumus, O. and Konty, M. 2012. Refining the theory of basic individual values. Journal of Personality and Social Psychology, 103, 4, 663–88.Google Scholar
Sciegaj, M., Capitman, J. A. and Kyriacou, C. K. 2004. Consumer-directed community care: race/ethnicity and individual differences in preferences for control. The Gerontologist, 44, 4, 489–99.Google Scholar
Sepucha, K. and Ozanne, E. M. 2010. How to define and measure concordance between patients’ preferences and medical treatments: a systematic review of approaches and recommendations for standardization. Patient Education and Counseling, 78, 1, 12–23.Google Scholar
Shin, D. S. 2008. Residential and caregiver preferences of older Korean Americans. Journal of Gerontological Nursing, 34, 6, 48–54.Google Scholar
Spangenberg, L., Glaesmer, H., Brahler, E., Kersting, A. and Straus, B. 2013. Considering housing arrangements in elderly life. Factors influencing plans concerning future housing arrangements and preferences in a representative sample of 45+ year olds. Zeitschrift fur Gerontologie und Geriatrie, 46, 3, 251–9.Google Scholar
Spangenberg, L., Glaesmer, H., Brähler, E. and Strauß, B. 2012. Use of family resources in future need of care. Care preferences and expected willingness of providing care among relatives: a population-based study. Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz, 55, 8, 954–60. (In German).Google Scholar
Spencer, S. M., Patrick, J. H. and Steele, J. C. 2009. An exploratory look at preferences for seven long-term care options. Senior Housing & Care Journal, 17, 1, 91–9.Google Scholar
Sudha, S. 2014. Intergenerational relations and elder care preferences of Asian Indians in North Carolina. Journal of Cross-cultural Gerontology, 29, 1, 87–107.Google Scholar
Swartz, K., Miake, N. and Farag, N. 2012. Long-term care: common issues and unknowns. Journal of Policy Analysis and Management, 31, 1, 139–52.Google Scholar
Swift, J. K. and Callahan, J. L. 2009. The impact of client treatment preferences on outcome: a meta-analysis. Journal of Clinical Psychology, 65, 4, 368–81.Google Scholar
Tang, C. S.-k., Wu, A. M. S., Yeung, D. and Yan, E. 2009. Attitudes and intention toward old age home placement: a study of young adult, middle-aged, and older Chinese. Ageing International, 34, 4, 237–51.Google Scholar
ten Bruggencate, T., Luijkx, K. G. and Sturm, J. 2017. Social needs of older people: a systematic literature review. Ageing & Society. Published online 3 April, doi:10.1017/S0144686X17000150.Google Scholar
Tse, M. M. 2007. Nursing home placement: perspectives of community-dwelling older persons. Journal of Clinical Nursing, 16, 5, 911–7.Google Scholar
United Nations Department of Economics and Social Affairs 2013. World Population Ageing 2013. ST/EAS/SER.A/348, United Nations Department of Economics and Social Affairs, Population Division, New York.Google Scholar
Unroe, K. T., Hickman, S. E., Torke, A. M. and Group, A. R. C. W. 2016. Care consistency with documented care preferences: methodologic considerations for implementing the measuring what matters quality indicator. Journal of Pain and Symptom Management, 52, 4, 453–8.Google Scholar
Van Haitsma, K., Abbott, K. M., Heid, A. R., Carpenter, B., Curyto, K., Kleban, M., Eshraghi, K., Duntzee, C. I. and Spector, A. 2014. The consistency of self-reported preferences for everyday living implications for person-centered care delivery. Journal of Gerontological Nursing, 40, 10, 34–46.Google Scholar
Walsh, K. and Callan, A. 2011. Perceptions, preferences, and acceptance of information and communication technologies in older-adult community care settings in Ireland: a case-study and ranked-care program analysis. Ageing International 36, 1, 102–22.Google Scholar
Wang, Y. C., Chung, M. H., Lai, K. L., Chou, C. C. and Kao, S. 2004. Preferences of the elderly and their primary family caregivers in the arrangement of long-term care. Journal of the Formosan Medical Association, 103, 7, 533–9.Google Scholar
Werner, P. and Segel-Karpas, D. 2014. Factors associated with preferences for institutionalized care in elderly persons: comparing hypothetical conditions of permanent disability and Alzheimer's Disease. Journal of Applied Gerontology, 35, 4, 444–64.Google Scholar
Wielink, G. and Huijsman, R. 1999. The relationship between attitudes towards care and care preferences of elderly community residents in the Netherlands. Canadian Journal on Aging, 18, 4, 493–512.Google Scholar
Wielink, G., Huijsman, R. and McDonnell, J. 1997. Preferences for care – a study of the elders living independently in the Netherlands. Research on Aging, 19, 2, 174–98.Google Scholar
Wiles, J. L., Leibing, A., Guberman, N., Reeve, J. and Allen, R. E. 2012. The meaning of ‘aging in place’ to older people. The Gerontologist, 52, 3, 357–66.Google Scholar
Winn, K., Ozanne, E. and Sepucha, K. 2015. Measuring patient-centered care: an updated systematic review of how studies define and report concordance between patients’ preferences and medical treatments. Patient Education and Counseling, 98, 7, 811–21.Google Scholar
Wolff, J. L., Kasper, J. D. and Shore, A. D. 2008. Long-term care preferences among older adults: a moving target? Journal of Aging and Social Policy, 20, 2, 182–200.Google Scholar
World Health Organization (WHO) 2000. Towards an International Consensus on Policy for Long-term Care of the Ageing. Ageing and Health Programme, WHO. Available online at http://www.who.int/ageing/publications/long_term_care/en/ [Accessed 10 October 2016].Google Scholar
World Health Organization (WHO) 2007. Financing Long-term Care Programmes in Health Systems. With a Situation Assessment in Selected High-, Middle-, and Low-income Countries. Available online at http://www.who.int/health_financing/documents/dp_e_07_6-longtermcare.pdf [Accessed 15 October 2016].Google Scholar
Wu, A. M. S., Tang, C. S.-k. and Yan, E. C.-w. 2004. Psychosocial factors associated with acceptance of old age home placement: a study of elderly Chinese in Hong Kong. Journal of Applied Gerontology, 23, 4, 487–504.Google Scholar
Wyer, R. S. 2006. Three models of information processing: an evaluation and conceptual integration. Psychological Inquiry, 17, 3, 185–94.Google Scholar
Zhai, X. and Qiu, R. Z. 2007. Perceptions of long-term care, autonomy, and dignity, by residents, family and caregivers: the Beijing experience. Journal of Medicine and Philosophy, 32, 5, 425–45.Google Scholar
Zsembik, B. A. and Bonilla, Z. 2000. Eldercare and the changing family in Puerto Rico. Journal of Family Issues, 21, 5, 652–74.Google Scholar
Supplementary material: File

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Table S4

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