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Future Concerns Among Families Following Brain Injury in the United States: Views from the Brain Injury Association of America State Affiliates

Published online by Cambridge University Press:  07 November 2013

Mark Tucker  and
Charles Edmund Degeneffe
Mark Tucker
Affiliation:
Interwork Institute San Diego State University
Charles Edmund Degeneffe*
Affiliation:
Associate Professor and Coordinator Rehabilitation Counseling Program San Diego State University
*
Address correspondence to: Charles Edmund Degeneffe Rehabilitation Counseling Program San Diego State University San Diego, CA 92018 E-mail: cdegenef@mail.sdsu.edu
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Abstract

The objective of this study was to examine brain injury professionals’ perspectives on the future concerns of families of persons with brain injuries in the United States of America. A total of 28 persons in leadership positions with the Brain Injury Association of America (BIAA) participated. Through qualitative data analysis of an open-ended question in an electronic survey containing both qualitative and quantitative questions, participants identified future concerns related to future caregiving responsibilities, financial concerns, living arrangements, recovery, access to professional care, relationships and employment. The findings indicate that many families are unprepared to meet the future care and support needs of their injured family members.

Keywords

familiesfinancial concernsliving arrangementsrecoveryaccess to professional care
Type
Articles
Information
The Australian Journal of Rehabilitation Counselling , Volume 19 , Special Issue 2: Family Support and Adjustment Following Acquired Brain Injury: An International Perspective , December 2013 , pp. 135 - 141
Copyright
Copyright © The Author(s), published by Cambridge University Press on behalf of Australian Academic Press Pty Ltd 2013 

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