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Predictors of Traumatic Brain Injury Caregiver Adjustment and the Role of Irrational Beliefs: Towards a Cognitive Model

Published online by Cambridge University Press:  27 August 2015

Peter Stebbins ,
Kenneth I. Pakenham  and
Paul Leung
Peter Stebbins
Affiliation:
University of Queensland, Australia
Kenneth I. Pakenham*
Affiliation:
University of Queensland, Australia
Paul Leung
Affiliation:
University of North Texas, USA
*
Dr Kenneth Pakenham, Director Behaviour Research and Therapy Centre, School of Psychology, The University of QueenslandQLD 4072, Australia.
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Abstract

The provision of care to a relative with a traumatic brain injury (TBI) has been shown to be distressing for the primary caregiver (usually the spouse or parent). Much research has examined factors which affect caregiver adjustment to brain injury. However, the impact of caregiver cognitions, in particular irrational beliefs, as a potential factor in poor adjustment, has received little if any attention in the TBI caregiving literature. This article provides a review of predictors of TBI caregiver adjustment and a discussion of the cognitive model and the impact of irrational beliefs on adjustment. As caregivers are central to the rehabilitation process, there is a need for research into irrational beliefs and TBI caregivers as well as the development of interventions which focus specifically on the caregiver's beliefs and perceptions of events.

Type
Articles
Information
The Australian Journal of Rehabilitation Counselling , Volume 6 , Issue 1 , 2000 , pp. 33 - 44
Copyright
Copyright © Cambridge University Press 2000

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References

Abrams, M. & Ellis, A. (1994). Rational Emotive Behaviour Therapy in the treatment of stress. British Journal of Guidance and Counselling, 22, 39 B 50.CrossRefGoogle Scholar
Anderson-Parente, J., DeCesare, A., & Parente, R. (1990). Spouses who stayed. Journal of Cognitive Rehabilitation, 8, 22 B 25.Google Scholar
Australian Bureau of Statistics (ABS), (1993) Disability, Ageing & Carers, Australia: Brain Injury & Stroke. Canberra: Government Printer.Google Scholar
Beck, A. (1964). Thinking and Depression II: Theory and Therapy. Archives of General Psychiatry, 10, 56–571.CrossRefGoogle ScholarPubMed
Beck, J. (1995). Cognitive therapy: Basics and Beyond. New York: Guilford Press.Google Scholar
Brooks, N., Campsie, L., Symington, C., Beattie, A., & McKinlay, W. (1986). The five year outcome of severe blunt head injury: A relative's view. Journal of Neurological & Neurosurgical Psychiatry, 49, 764–770.CrossRefGoogle ScholarPubMed
Camplair, P., Kreutzer, J., & Doherty, K. (1990). Family outcome following adult traumatic brain injury: A critical review of the literature. In Kreutzer, J. & Wheman, P. (Ed.s). Community Integration Following Traumatic Brain Inury. Paul H Brookes, Baltimore.Google Scholar
Clark, A. (1991). Anxiety states: panic and generalised anxiety. In Hawton, K., Salkovskis, P.Kirk, J., & Clark, D. (Eds.) Cognitive Behaviour Therapy for Psychiatric Problems: A Practical Guide: London: Oxford Medical Publications.Google Scholar
DiGuiseppe, R. (1996). The nature of irrational and rational beliefs: progress in rational emotive theory. Journal of Rational Emotive and Cognitive Behaviour Therapy, 14, 5 B 28.Google Scholar
Douglas, J., & Spellacy, F. (1996). Indicators of long term family functioning following severe traumatic brain injury in adults. Brain Injury, 10, 819–839.CrossRefGoogle ScholarPubMed
Ellis, A. (1962). Reason and Emotion in Psychotherapy. Citadel: New York.Google Scholar
Ellis, A. (1995). How to stubbornly refuse to make yourself miserable about anything, yes anything! Sydney: Sun Publishers.Google Scholar
Ellis, A. & Harper, R. (1975). A new guide to rational living. New Jersey: Wilshire Book Co.Google Scholar
Edwards, P. (1997). Providing long term support for brain injured people and their families: A role for community mental heath nurses. Unpublished Manuscript.Google Scholar
Eysenck, H. (1982). Personality, Genetics & Behaviour. Praeger Publishers: New York.Google ScholarPubMed
Fennell, M. (1991). Depression. In Hawton, K., Salkovskis, P.Kirk, J. & Clark, D. (Eds.) Cognitive Behaviour Therapy for Psychiatric Problems: A Practical Guide. London: Oxford Medical Publications.Google Scholar
Florian, V., Katz, S. & Lahav, V. (1989). Impact of traumatic brain damage on family dynamics and functioning: A review. Brain Injury, 3, 219–233.CrossRefGoogle ScholarPubMed
Florian, V. & Katz, S. (1991). The other victims of traumatic brain injury: Consequences for family members. Neuropsychology, 5, 267–279.CrossRefGoogle Scholar
Frosch, S., Gruber, A., Jones, C., Myers, S., Noel, E., Westerlund, A., & Zavsin, T. (1997). The longterm effects of traumatic brain injury on the roles of caregivers. Brain Injury, 11, 891–906.Google ScholarPubMed
Godfrey, H., Knight, R., & Partridge, F. (1996). Emotional adjustment following taumatic brain injury: A stress–appraisal coping formulation. Journal of Head Trauma Rehabilitation, 11, 29–40.CrossRefGoogle Scholar
Hall, K., Karzmrak, P., Stevens, M., Englander, J., O'Hare, P., & Wright, J. (1994). Family stressors in traumatic brain injury: A two year follow up. Archives of Physical Medicine and Rehabilitation, 75, 876–884.CrossRefGoogle ScholarPubMed
Harran, S. & Ziegler, D. (1991). Cognitive Appraisal of Daily Hassles in college students displaying high and low irrational beliefs. Journal of Rational Emotive and Cognitive Behaviour Therapy, 9, 265 B 271.Google Scholar
Howlett, B. (1994). An investigation of the relationship between general belief patterns and well being. Journal of Rational Emotive and Cognitive Behavoiur Therapy, 12, 205 B218.CrossRefGoogle Scholar
Jacobs, H. (1989). Adult community integration. In Bach-y-Rita, P. (Ed.), Traumatic Brain Injury, New York: Demos Publications.Google Scholar
Knight, R., Devereux, R., & Godfrey, H. (1998). Caring for a family member with a traumatic brain injury. Brain Injury, 12, 467–481.CrossRefGoogle ScholarPubMed
Koopermans, P., Sanderman, R., Timmerman, I., & Emmelkamp, P. (1994). The Irrational Beliefs Inventory (IBI): Development and Psychometric Evaluation. European Journal of Psychological Assessment, 10, 15 B 27.Google Scholar
Kosciulek, J. (1997). Relationship of family schema to family adaptation to brain injury. Brain Injury, 11, 821–830.CrossRefGoogle ScholarPubMed
Kreutzer, J., Serio, C., & Berquist, S. (1994). Family needs after brain injury: A quantitative analysis. Journal of Head Trauma Rehabilitation, 9, 104–115.CrossRefGoogle Scholar
Kreutzer, J.Gervasio, A. & Camplair, P. (1994). Primary caregivers' psychological status and family functioning after traumatic brain injury. Brain Injury, 8, 197–210.CrossRefGoogle ScholarPubMed
Kwon, S. & Oei, T. (1994). The roles of 2 levels of cognitions in the development, maintenance and treatment of depression. Clinical Psychology Review, 14, 331 B 358.CrossRefGoogle Scholar
Lazarus, R., & Folkman, S. (1984). Stress, appraisal and coping. New York: Springer.Google Scholar
Leathern, J., Heath, E., & Woolley, C. (1996). Relatives' perceptions of role change, social support and stress traumatic brain injury. Brain Injury, 10, 27–38.Google Scholar
Lezak, M. (1978). Living with the characterologically altered brain injured patient. Journal of Clinical Psychiatry. 39, pp. 592–598.Google ScholarPubMed
Lezak, M. (1988). Brain damage is a family affair. Journal of Clinical and Experimental Neuropsychology, 10, 111–123.CrossRefGoogle ScholarPubMed
Lezak, M. (1995). Neuropsychological Assessment. New York: Oxford University Press.Google Scholar
Livingston, M., Brooks, D., & Bond, M. (1985). Three months after severe head trauma: Psychiatric and social impact on relatives. Journal Of Neurological & Neurosurgical Psychiatry, 48, 870–875.CrossRefGoogle ScholarPubMed
Lichtenberg, J., Johnson, D., & Arachtingi, B. (1992). Physical illness and subscription to Ellis's Irrational Beliefs. Journal of Counselling and Development, 71, 157 B 163.CrossRefGoogle Scholar
Linn, R., Allen, K., & Willer, B. (1994). Affective symptoms in the chronic stage of traumatic brain injury: A study of married couples. Brain Injury, 8, 135 B 147.CrossRefGoogle ScholarPubMed
Mathias, M. (1984). Personal needs of family members of critically ill patients with and without brain injury. Journal of Neurosurgical Nursing, 16, 36–44.CrossRefGoogle Scholar
McKinlay, W., Brooks, N., Bond, M., Martinage, D., & Marshall, M. (1981). The short-term outcome of severe blunt head injury as reported by relatives of the injured person. Journal of Neurological & Neurosurgical Psychiatry, 44, 527–533.CrossRefGoogle Scholar
McNaughton, M.Patterson, T., Smith, T., & Grant, I. (1995). The relationship among stress, depression, locus of control, irrational beliefs, social support and health in Alzheimer's disease caregivers. Journal of Nervous and Mental Disorders, 183, 78–85.CrossRefGoogle ScholarPubMed
Moore, A., Stambrook, M., & Peters, L. (1989). Coping strategies and adjustment after closed head injury: A cluster analytical approach. Brain Injury, 3, 171–175.CrossRefGoogle ScholarPubMed
Muir, C., & Haffey, W. (1984). Psychological and neuropsychological interventions in the mobile mourning process. In Edelstein, B. A. & Couture, E. T. (Eds.) Behavioural assessment and rehabilitation of the traumatically brain damaged. New York: Plenum Press.Google Scholar
Nelson Jones, R. (1995). Counselling and Personality: Theory and Practice. Sydney: Allen & Unwin.Google Scholar
Novack, T., Bergquist, T., Bennett, G., & Gouvier, W. (1991). Primary caregiver distress following sever head injury. Journal Of Head Trauma Rehabilitation, 6, 69 B77.Google Scholar
Oddy, M., Humphrey, M. & Uttley, D. (1978). Stress upon the relatives of head injured patients. British Journal of Psychiatry, 133, 507–518.CrossRefGoogle ScholarPubMed
Oddy, M., & Humphrey, M. (1980). Social recovery during the year following severe head injury. Journal of Neurological & Neurosurgical Psychiatry, 43, 789–802.CrossRefGoogle ScholarPubMed
Panting, A., & Merry, P. (1972). The long term rehabilitation of severe head injuries with particular reference to the need for social and medical support for the patients family. Rehabilitation, 38, 33 B37.Google Scholar
Patterson, J., & Mc Cubbin, H. (1983). Chronic Illness: family stress and coping. In Figley, C., & Cubbin, H. Mc, (Eds.) Stress and the Family. Vol. 2. Coping with Catastrophe. New York: Brunner Mazel.Google Scholar
Perlesz, A., Furlong, M., & McLachlan, D. (1992). Family work and acquired brain damage. Australian and New Zealand Journal of Family Therapy, 13, 145–153.CrossRefGoogle Scholar
Rosenthal, M., & Young, T. (1988). Effective family intervention after traumatic brain injury: Theory and practice. Journal of Head Trauma Rehabilitation, 3, 42–50.CrossRefGoogle Scholar
Sanders, A., High, W., Hannays, H., & Sherer, M. (1997). Predictors of psychological health in caregivers of patients with closed head injury. Brain Injury, 11, 235–249.CrossRefGoogle Scholar
Selye, H. (1974). Stress and distress. Philadelphia: JB Lippincott.Google Scholar
Serio, C., Kreutzer, J., & Gervasio, A. (1995). Predicting family needs after brain injury: Implications for intervention. Journal of Head Trauma Rehabilitation, 10, 32 B 45.CrossRefGoogle Scholar
Stebbins, P. (1997a). Long term changes in family needs after brain injury: A preliminary review. The Australian Journal of Rehabilitation Counselling, 3, 30–39.CrossRefGoogle Scholar
Stebbins, P. (1997b). Longterm changes in family needs after brain injury: A preliminary investigation. Unpublished Honours Thesis.CrossRefGoogle Scholar
Stebbins, P., & Leung, P. (1998). Changing family needs after brain injury. The Journal of Rehabilitation, 64, 15–23.Google Scholar
Thomsen, I. (1972). The patient with severe head injury and his family.Google Scholar
Scandirmvian Journal of Rehabilitation Medicine, 6, 180–183.Google Scholar
Thomsen, I. (1984). Late outcome of very severe blunt head trauma: A 10–15 year second follow-up. Journal of Neurological and Neurosurgical Psychiatry, 47, 260–268.CrossRefGoogle ScholarPubMed
Waaland, P., Burns, C., & Cockrell, J. (1993). Evaluation of needs of high and low income families following paediatric brain injury. Brain Injury, 7, 135 B 146.CrossRefGoogle Scholar
Walen, S., Di Guiseppe, R., & Dryden, W. (1992). A practitioner's guide to rational emotive therapy (2nd Ed.) New York: Oxford University Press.Google Scholar
Wallace, C., Bogner, J., Corrigan, J., Clinchot, D., Mysiw, J., & Fugate, L. (1998). Primary care-giver's of persons with brain injury: Life change 1 year after injury. Brain Injury, 12, 483 B 493.CrossRefGoogle Scholar
Wilton, N. (1981). The viewpoint of the parents of the brain damaged patient. In Dinning, T. & Connelly, T. (Eds.) Head Injuries: An Integrated Approach. Brisbane: Watson, Fergueson & Co.Google Scholar
Yeatman, A. (1996). Getting Real: The interim report of the Commonwealth/State Disability Agreement. Canberra: Government Printer.Google Scholar