Hostname: page-component-cd9895bd7-8ctnn Total loading time: 0 Render date: 2024-12-26T17:05:15.892Z Has data issue: false hasContentIssue false
  • English
  • Français

Satisfaction with Post-Acute-Care Rehabilitation Services Following Acquired Brain Injury: Family Perspectives

Published online by Cambridge University Press:  09 January 2018

Charles Edmund Degeneffe ,
Richard Green  and
Clair Jones
Charles Edmund Degeneffe*
Affiliation:
San Diego State University, San Diego, California, USA
Richard Green
Affiliation:
Sharp Rehabilitation Center, San Diego, California, USA
Clair Jones
Affiliation:
San Diego Brain Injury Foundation, San Diego, California, USA
*
Address for correspondence: Charles Edmund Degeneffe, Rehabilitation Counseling Program, Department of Administration, Rehabilitation, and Postsecondary Education, San Diego State University, 5500 Campanile Drive, EBA-227a, San Diego, CA 92182, USA. Email: cdegenef@mail.sdsu.edu
Get access

Abstract

The study is aimed to better understand how post-acute-care services help persons with acquired brain injury (ABI) and their families following acute-care discharge. Participants included 21 primary family caregivers of persons with ABI. Participants reported their level of satisfaction with 14 different post-acute-care ABI services following discharge from an acute-care ABI facility in a large south-western city in the United States. Participants completed a survey following the discharge (on average 8.1 months) of their family member from acute-care services. Surveys included both quantitative and open-ended questions. The present study focused on participant satisfaction ratings and perceptions of helpfulness among the 14 different service areas. The average satisfaction rating across the 14 service areas was 73.4%. Professional consultation and assessment (81.8%) received the highest satisfaction rating, followed by therapy and intervention (77.9%), and peer support (51.9%). Open-ended question responses on the helpfulness of post-acute-care services focused on (a) therapy and intervention and (b) professional consultation and assessment. Study findings highlight the need to track the use of ABI services from the acute-phase through long-term community adjustment. Findings also underscore the importance of targeting interventions and services specific to the post-acute phase of ABI rehabilitation.

Keywords

acquired brain injuryoutpatient servicesacute rehabilitationfamily caregivingrehabilitation service satisfaction
Type
Articles
Information
The Australian Journal of Rehabilitation Counselling , Volume 23 , Issue 2 , December 2017 , pp. 90 - 97
Copyright
Copyright © The Author(s) 2018 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Footnotes

This study was supported with funding from the San Diego State University, University Grants Program.

References

Cunningham, J.M., Chan, F., Jones, J., Kamnetz, B., & Stoll, J.A. (2005). Traumatic brain injury rehabilitation. In Chan, F., Leahy, M. J., & Saunders, J. L. (eds.). Case Management for Rehabilitation Health Professionals. (2nd ed.) (pp. 91–131). Osage Beach, MO: Aspen Professional Services.Google Scholar
Degeneffe, C.E., & Tucker, M. (2014). Community-based support and unmet needs among families of persons with brain injuries: A mixed methods study with the Brain Injury Association of America state affiliates. In Wadsworth, S.M. & Riggs, D.S. (eds.). Military Deployment and its Consequences for Families. (pp. 293–313). New York: Springer Publishing.Google Scholar
Degeneffe, C.E., Boot, D., Kuehne, J., Kuraishi, A., Maristela, F., Noyes, J., . . . Will, H. (2008). Community-based interventions for persons with traumatic brain injury: A primer for rehabilitation counselors. Journal of Applied Rehabilitation Counseling, 39 (1), 42–52.CrossRefGoogle Scholar
Degeneffe, C.E., & Bursnall, S. (2015). Quality of professional services following traumatic brain injury: Adult sibling perspectives. Social Work, 60, 19–28.Google Scholar
Degeneffe, C.E., Green, R., & Jones, C. (2016a). Service use and barriers with post-acute care rehabilitation following acquired brain injury: Family caregiver perspectives. Australian Journal of Rehabilitation Counselling, 22 (2), 128–134.Google Scholar
Degeneffe, C.E., Green, R., & Jones, E.C. (2016b). Service use and satisfaction following acquired brain injury: A preliminary analysis of family caregiver outcomes. Rehabilitation Research, Policy, and Education, 30 (4), 421–428.Google Scholar
Degeneffe, C.E., & Lee, G. (2015). Brain injury and the family. A guide for rehabilitation counselors. In Millington, M. & Marini, I. (eds.), Families in Rehabilitation Counseling: A Community-based Rehabilitation Approach. (pp. 153–170). New York: Springer Publishing.Google Scholar
Epstein, N.B., Baldwin, L.M., & Bishop, D.S. (1983). The McMaster family assessment device. Journal of Marital and Family Therapy, 9 (2), 171–180.Google Scholar
Greenwald, B.D. (2010). Traumatic Brain Injury and Acute Inpatient Rehabilitation. Retrieved from http://uwmsktc.washington.edu/sites/uwmsktc/files/files/TBI_Inpatient_Rehab.pdf.Google Scholar
Kendall, E., & Marshall, C.A. (2004). Factors that prevent equitable access to rehabilitation for Aboriginal Australians with disabilities: The need for culturally safe rehabilitation. Rehabilitation Psychology, 49 (1), 5–13.CrossRefGoogle Scholar
Kreutzer, J.S., & Marwitz, J. (1989). The Family Needs Questionnaire. Richmond, VA: The National Resource Center for Traumatic Brain Injury.Google Scholar
Kuipers, P., Gauld, S., Kendall, M., Smith, S., & Bowen, R. (2013). The international community-based rehabilitation model: A way of assisting people with brain injuries, their families, and communities. In Muenchberger, H., Kendall, E., & Wright, J. (eds.). Health and Healing after Traumatic Brain Injury. (pp. 203–213). Santa Barbara, CA: Praeger.CrossRefGoogle Scholar
McCabe, P., Lippert, C., Weiser, M., Hilditch, M., Hartridge, C., & Villamere, J. (2007). Community reintegration following acquired brain injury. Brain Injury, 21 (2), 231–257.CrossRefGoogle ScholarPubMed
Radloff, L.S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401.CrossRefGoogle Scholar
Schneider, V. (2010). Brain Injury Australia: Submission to the Productivity Commission's Inquiry into Disability Care and Support. Retrieved from http://www.pc.gov.au/inquiries/completed/disability-support/submissions/sub0371.pdf.Google Scholar
Sillito, J. (2010). Saturate: Tool Support for Collaborative Qualitative Analysis. Retrieved from http://research.microsoft.com/enus/um/redmond/groups/connect/CSCW_10/docs/p635.pdf.Google Scholar
Uomoto, J.M., & McLean, A. (1989). Care continuum in traumatic brain injury rehabilitation. Rehabilitation Psychology, 34 (2), 71–79.Google Scholar