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Cultures of Marriage, Reproduction and Genetic Testing in Japan

Published online by Cambridge University Press:  01 September 2009

Masae Kato  and
Margaret Sleeboom-Faulkner
Masae Kato
Affiliation:
International Institute for Asian Studies, PO Box 9515, 2300 RA Leiden, The Netherlands E-mail: m.kato@let.leidenuniv.nl
Margaret Sleeboom-Faulkner
Affiliation:
University of Sussex, Department of Anthropology, Falmer, nr Brighton BN1 9SN, UK E-mail: M.Sleeboom-Faulkner@sussex.ac.uk
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Abstract

This article discusses how cultural concepts of marriage and reproduction play a primary role in how genetic disorders are regarded in Japan. The article examines the anxieties that accompany the taking of genetic tests in the context of Japanese cultural concepts of family, care and genetic disorders. The analysis draws on data from two studies conducted over two years (2006–2008), based on semi-structured interviews with individuals affected by a genetic disorder, and a study of prenatal decision-making as regards the taking of tests during pregnancy, which also involved interviews with medical professionals, including certified clinical geneticists, genetic counsellors and scholars. A number of studies, as well as governmental documents, have emphasized the importance of respecting culture in dealing with a genetic disorder and genetic information. Though we regard respect for culture as important, we show that respect for culture might hide superstitions and culturally embedded prejudices about genetic disorders. We show this by analysing the given motivations of couples for taking a genetic test and by tracing the ways in which ‘genetic information’ is understood in a socio-cultural context.

Keywords

Genetic DisorderGenetic ExceptionalismGenetic TestingJapanMarriageReproduction
Type
Articles
Information
BioSocieties , Volume 4 , Issue 2-3 , September 2009 , pp. 115 - 127
Copyright
Copyright © London School of Economics and Political Science 2009

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References

Aoki, K. (1998). Iden sôdan ni kansuru kenkyû: Kôsei shô shinshin shôgai kenkyû. Tokyo: The Ministry of Health and Welfare.Google Scholar
Fuess, H. (2004). Divorce in Japan: Family, gender, and the state 1600–2000. Stanford, CA: Stanford UP.Google Scholar
Kiefer, C.W. (1987). Care of the aged in Japan. In Norbeck, E., & Lock, M. (Eds.), Health, illness, and medical care in Japan: Cultural and social dimensions, 89–109. Honolulu: U Hawaii Press.Google Scholar
Lock, M. (1980). East Asian medicine in urban Japan: Varieties of medical experience. Berkeley: U California Press.CrossRefGoogle Scholar
Long, S.O. (2005). Final days: Japanese culture and choice at the end of life. Honolulu: U Hawaii Press.Google Scholar
Ministry of Education, Culture, Sport, Science and Technology, Council for Science and Technology, Bioethics Committee (2000). Fundamental principles of research on the human genome. URL (accessed April 2008): http://www.mext.go.jp/a_menu/shinkou/shisaku/fundamen.htmGoogle Scholar
Ministry of Health, Labour and Welfare (2005). Kekkon to shussan ni kansuru zenkoku chôsa. URL (accessed June 2009): http://www.mhlw.go.jp/shingi/2006/06/dl/s06304f2.pdfGoogle Scholar
Numabe, H. (2007). Iden counselling to tabunka. In Iden shinryô o torimaku shakai: Sono kagakuteki/rinriteki approach, 103–112. Tokyo: Buren shuppan.Google Scholar
Nomaguchi, C., Hasegawa, T., Yamaguchi, M., & Itai, K. (2007). Genetic counselling of a client with MEN [Multiple Endocrine Neoplasia type 1] and his family. Japanese Journal of Genetic Counselling, 57.Google Scholar
Reynolds, D.K. (1987). Japanese models of psychotherapy. In Norbeck, E., & Lock, M. (Eds.), Health, illness, and medical care in Japan: Cultural and social dimensions, 110–129. Honolulu: U Hawaii Press.Google Scholar
Sugiyama-Lebra, T. (1984). Japanese women: Constraint and fulfilment. Honolulu: U Hawaii Press.CrossRefGoogle Scholar
Tajima, S. (1998). Shôgai fukushi ni okeru iden sôdan no ninshiki to rikai ni kansuru kenkyû. In Aoki, K. (Ed.), Iden sôdan ni kansuru kenkyû: Kôsei shô shinshin shôgai kenkyû, 123–162. Tokyo: Ministry of Health and Welfare.Google Scholar
Tamura, C. (2007). Iden counsellor: Gan wa iden suruka—kanja no fuan ni saisentankagaku ga ataeru shishin. In Fukuhara, M. (Ed.), Gan tôbyô to co-medical: Iryô saizensen kara no teigen, 71–87. Tokyo: Kôdansha.Google Scholar
Tomiwa, K. (1998). Chi’iki iden sôdan sentâ no kikaku to kinô ni kansuru kenkyû. In Aoki, K. (Ed.), Iden sôdan ni kansuru kenkyû: Kôsei shô shinshin shôgai kenkyû, 49–64. Tokyo: Ministry of Health and Welfare.Google Scholar
Traphagan, J.W. (1998). Localizing senility: Illness and agency among older Japanese. Journal of Cross-cultural Gerontology, 13, 81–98.CrossRefGoogle ScholarPubMed
Tsukamoto, Y. (2005). Iryô no naka no jikokettei-yôsuikensa: Yôsui kensa o ukeru ninpu tachi. Tokyo: Kôchishobô.Google Scholar
Watanabe, A. (2007). The establishment of an ethics consultation system in clinical genetics: Trial at the Nippon Medical School Main Hospital. Journal of Philosophy and Ethics in Health Care and Medicine, 2, 61–77.Google Scholar
Yoshizumi, K. (1995). Marriage and family: Past and present. In Fujimura-Fanselow, K., & Kameda, A., (Eds.), Japanese women, 183–198. New York: The Feminist Press.Google Scholar