Hostname: page-component-cd9895bd7-mkpzs Total loading time: 0 Render date: 2024-12-28T04:03:52.386Z Has data issue: false hasContentIssue false
  • English
  • Français

Speech language pathologists’ practice with children of parents with an acquired communication disability: A preliminary study

Published online by Cambridge University Press:  07 August 2020

Kirstine Shrubsole Open the ORCID record for Kirstine Shrubsole [Opens in a new window] ,
Rachelle Pitt ,
Kirsty Till ,
Emma Finch  and
Brooke Ryan
Kirstine Shrubsole*
Affiliation:
School of Health and Human Sciences, Southern Cross University, Gold Coast, Australia
Rachelle Pitt
Affiliation:
School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia
Kirsty Till
Affiliation:
School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia
Emma Finch
Affiliation:
School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia Speech Pathology Department, Princess Alexandra Hospital, Woolloongabba, Australia Centre for Functioning and Health Research, Metro South Health, Brisbane, Australia
Brooke Ryan
Affiliation:
School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia Centre for Research Excellence in Aphasia Recovery and Rehabilitation, Bundoora, Australia
*
*Corresponding author. Email: kirstine.shrubsole@scu.edu.au
Get access

Abstract

Background:

Parental acquired communication disability has long-lasting impacts on children, including increased child stress and behavioural problems. However, speech-language pathologists’ (SLPs) current practice in providing information, education and counselling support to these children is unknown. Therefore, we explored SLPs’ perceived needs, current practices and barriers and facilitators to working with children of people with acquired communication disability (PwCD).

Methods:

An online survey sought information on Australian SLPs’ current practices in providing education and counselling to children of PwCD. Perceived barriers and facilitators were mapped to the COM-B, a model that considers Capability, Opportunity and Motivation as domains that influence behaviour.

Results:

75% of participants (n = 76) perceived a need to provide both information and counselling, but ‘never’ or ‘rarely’ provided either aspect of care. Barriers relating to ‘Opportunity’ were most frequently identified, such as not having access to children in therapy and lack of parental support/engagement. Capability (e.g., knowledge and skills) and Motivation (e.g., confidence) barriers were also identified.

Conclusions:

There is potential for SLPs to provide services to children of PwCD either directly through information and/or counselling-type interactions or indirectly through referral to other services. This study highlights the need for more research into these areas of practice.

Keywords

Language/communicationfamily/caregiverstroketraumatic brain injury
Type
Articles
Information
Brain Impairment , Volume 22 , Issue 2 , September 2021 , pp. 135 - 151
Copyright
© Australasian Society for the Study of Brain Impairment 2020

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Adams, A. S., Soumerai, S. B., Lomas, J., & Ross-Degnan, D. (1999). Evidence of self-report bias in assessing adherence to guidelines. International Journal for Quality in Health Care, 11(3), 187–192. doi: 10.1093/intqhc/11.3.187.CrossRefGoogle ScholarPubMed
Baker, C., Worrall, L., Rose, M., & Ryan, B. (2019). Stroke health professionals’ management of depression after post-stroke aphasia: A qualitative study. Disability and Rehabilitation, 1–12. doi: 10.1080/09638288.2019.1621394.Google ScholarPubMed
Baker, R., Camosso-Stefinovic, J., Gillies, C., Shaw, E., Cheater, F., Flottorp, S., … Jäger, C. (2015). Tailored interventions to address identified determinants of practice. Cochrane Database of Systematic Reviews (4, CD005470). doi: 10.1002/14651858.CD005470.pub3.CrossRefGoogle Scholar
Baker, R., Camosso-Stefinovic, J., Gillies, C., Shaw, E. J., Cheater, F., Flottorp, S., & Robertson, N. (2010). Tailored interventions to overcome identified barriers to change: Effects on professional practice and health care outcomes. Cochrane Database of Systematic Reviews (Online) (3).CrossRefGoogle Scholar
Barker, F., Atkins, L., & de Lusignan, S. (2016). Applying the COM-B behaviour model and behaviour change wheel to develop an intervention to improve hearing-aid use in adult auditory rehabilitation. International Journal of Audiology, 55, S90–S98. doi: 10.3109/14992027.2015.1120894.CrossRefGoogle ScholarPubMed
Butow, P., Price, M. A., Shaw, J. M., Turner, J., Clayton, J. M., Grimison, P., … Kirsten, L. (2015). Clinical pathway for the screening, assessment and management of anxiety and depression in adult cancer patients: Australian guidelines. Psycho-Oncology, 24(9), 987–1001. doi: 10.1002/pon.3920.CrossRefGoogle ScholarPubMed
Coppock, C., Ferguson, S., Green, A., & Winter, D. (2018). ‘It’s nothing you could ever prepare anyone for’: The experiences of young people and their families following parental stroke. Brain Injury, 32(4), 474–486. doi: 10.1080/02699052.2018.1426879.CrossRefGoogle ScholarPubMed
Dyson, J., Lawton, R., Jackson, C., & Cheater, F. (2013). Development of a theory-based instrument to identify barriers and levers to best hand hygiene practice among healthcare practitioners. Implementation Science, 8, 111.CrossRefGoogle ScholarPubMed
Eccles, M. P., Grimshaw, J. M., Johnston, M., Steen, N., Pitts, N. B., Thomas, R., … Walker, A. (2007). Applying psychological theories to evidence-based clinical practice: Identifying factors predictive of managing upper respiratory tract infections without antibiotics. Implementation Science, 2, 26. doi: 10.1186/1748-5908-2-26.CrossRefGoogle ScholarPubMed
Eysenbach, G., & Schonlau, M. (2004). Improving the quality of web surveys: The checklist for reporting results of internet e-surveys (CHERRIES). Journal of Medical Internet Research, 6(3), E34. doi: 10.2196/jmir.6.3.e34.CrossRefGoogle Scholar
Grawburg, M., Howe, T., Worrall, L., & Scarinci, N. (2014). Describing the impact of aphasia on close family members using the ICF framework. Disability and Rehabilitation, 36(14), 1184–1195.CrossRefGoogle ScholarPubMed
Hallé, M. C., Le Dorze, G., & Mingant, A. (2014). Speech–language therapists’ process of including significant others in aphasia rehabilitation. International Journal of Language & Communication Disorders, 49(6), 748–760. doi: 10.1111/1460-6984.12108.CrossRefGoogle ScholarPubMed
Handley, M. A., Harleman, E., Gonzalez-Mendez, E., Stotland, N. E., Althavale, P., Fisher, L., … Rios, C. (2016). Applying the COM-B model to creation of an IT-enabled health coaching and resource linkage program for low-income Latina moms with recent gestational diabetes: The STAR MAMA program. Implementation Science, 11. doi: 10.1186/s13012-016-0426-2.Google Scholar
Hsieh, H.-F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288. doi: 10.1177/1049732305276687.CrossRefGoogle ScholarPubMed
Manders, E., Marien, A., & Jansse, V. (2011). Informing and supporting partners and children of persons with aphasia: A comparison of supply and demand. Logopedics, Phoniatrics, Vocology, 36(4), 139–144.CrossRefGoogle ScholarPubMed
Michie, S., Atkins, L., & West, R. (2014). The Behaviour Change Wheel: A guide to designing interventions (1st ed.). London: Silverback Publishing.Google Scholar
Michie, S., Johnston, M., Abraham, C., Lawton, R., Parker, D., Walker, A., & Psychological Theory, G. (2005). Making psychological theory useful for implementing evidence based practice: A consensus approach. Quality and Safety in Health Care, 14(1), 26–33. doi: 10.1136/qshc.2004.011155.CrossRefGoogle ScholarPubMed
Michie, S., Johnston, M., Francis, J., Hardeman, W., & Eccles, M. (2008). From theory to intervention: Mapping theoretically derived behavioural determinants to behaviour change techniques. Applied Psychology, 57(4), 660–680. doi: 10.1111/j.1464-0597.2008.00341.x.CrossRefGoogle Scholar
Michie, S., van Stralen, M., & West, R. (2011). The behaviour change wheel: A new method for characterising and designing behaviour change interventions. Implementation Science, 6(1). doi: 10.1186/1748-5908-6-42.CrossRefGoogle ScholarPubMed
Nilsen, P. (2015). Making sense of implementation theories, models and frameworks. Implementation Science, 10, 53. doi: 10.1186/s13012-015-0242-0.CrossRefGoogle ScholarPubMed
Northcott, S., Simpson, A., Moss, B., Ahmed, N., & Hilari, K. (2018). Supporting people with aphasia to ‘settle into a new way to be’: Speech and language therapists’ views on providing psychosocial support. International Journal of Language and Communication Disorders, 53, 16–29.CrossRefGoogle ScholarPubMed
Owens, R. E., Farinella, K. A., & Metz, D. E. (2015). Introduction to communication disorders: A lifespan evidence-based perspective (5th Global edition). London: Pearson.Google Scholar
Redolfi, A., Bartolini, G., Gugliotta, M., Maietti, A., Pietrapiana, P., Sapienza, S., … Mazzucchi, A. (2017). When a parent suffers ABI: Investigation of emotional distress in children. Brain Injury, 31(8), 1050–1060. doi: 10.1080/02699052.2017.1297486 CrossRefGoogle ScholarPubMed
Ryan, B., Bohan, J., & Kneebone, I. (2019). Help-Seeking and people with aphasia who have mood problems after stroke: Perspectives of speech-language pathologists. International Journal of Language & Communication Disorders, Early online. doi: 10.1111/1460-6984.12476.CrossRefGoogle ScholarPubMed
Ryan, B., & Pitt, R. (2018). “It took the spark from him for a little while”: A case study on the psychological impact of parental stroke and aphasia on a young boy. Aphasiology, 32, 189–190. doi: 10.1080/02687038.2018.1485858.CrossRefGoogle Scholar
Sedgwick, P. (2013). Snowball sampling. British Medical Journal, 347, f7511. doi: 10.1136/bmj.f7511.CrossRefGoogle Scholar
Speech Pathology Australia (2011). Competency-based Occupational Standards for Speech Pathologists: Entry Level – Revised July 2017. Melbourne, Australia: The Speech Pathology Association of Australia Ltd. Retrieved from https://www.speechpathologyaustralia.org.au/SPAweb/SPAweb/Resources_for_Speech_Pathologists/CBOS/CBOS.aspx Google Scholar
Speech Pathology Email Chats (SPECS). Retrieved from https://groups.google.com/group/specs?hl=en Google Scholar
SurveyMonkey Inc. (2018). SurveyMonkey. Retrieved from www.surveymonkey.com Google Scholar
Tiar, A., & Dumas, J. (2015). Impact of parental acquired brain injury on children: Review of the literature and conceptual model. Brain Injury, 29(9), 1005–1017. doi:https://doi.org/10.3109/02699052.2014.976272 CrossRefGoogle ScholarPubMed
Threats, T. (2008). Use of the ICF for clinical practice in speech-language pathology. International Journal of Speech-Language Pathology, 10(1), 50–60.CrossRefGoogle Scholar
Visser-Meily, A., Post, M. M., Meijer, M. A., Van De PortMaas, M.M. C. Maas, I , M. C., & Lindeman, M. E. (2005). When a parent has a stroke: Clinical course and prediction of mood, behavior problems, and health status of their young children. Stroke, 36(11), 2436–2440. doi: 10.1161/01.STR.0000185681.33790.0a.CrossRefGoogle Scholar
World Health Organisation (WHO) (2001). International classification offunctioning, disability and health (ICF). Geneva, Switzerland: World Health Organisation.Google Scholar
Supplementary material: File

Shrubsole et al. supplementary material

Shrubsole et al. supplementary material

Download Shrubsole et al. supplementary material(File)
File 19.1 KB