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Walking the Moral Tightrope: Respecting and Protecting Children in Health-Related Research

Published online by Cambridge University Press:  17 May 2002

PAUL B. MILLER  and
NUALA P. KENNY
PAUL B. MILLER
Affiliation:
Faculty of Law and Department of Philosophy at the University of Toronto, Department of Bioethics at Dalhousie University, and Massey College in Toronto, Canada.
NUALA P. KENNY
Affiliation:
Pediatrics and Department of Bioethics at Dalhousie University, Halifax, Nova Scotia, Canada.
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Extract

Special moral, regulatory, and scientific questions surround the inclusion of children in health-related research. These questions arise from a fundamental moral tension between the obligation to expose children to research participation to ensure that they share in the benefits that arise from it and the obligation to protect them from the harms associated with their inappropriate involvement in research. This tension is felt in the development of moral and regulatory frameworks for the protection of child research subjects and in the implementation and interpretation of these frameworks by institutional review boards (IRBs).

Type
SPECIAL SECTION: AUTONOMY: THE DELICATE BALANCE
Information
Cambridge Quarterly of Healthcare Ethics , Volume 11 , Issue 3 , July 2002 , pp. 217 - 229
Copyright
© 2002 Cambridge University Press

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