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Level of caregiver burden among relatives of the mentally ill in South Verona

Published online by Cambridge University Press:  16 April 2020

C. Samele
Affiliation:
Section of General Psychiatry, Department of Psychological Medicine, Institute of Psychiatry, De Crespigny Park,LondonSE5 8AFUK
N. Manning*
Affiliation:
School of Social Studies, University of Nottingham, University Park,NottinghamNG7 2RD UK
*
*Correspondence and reprints
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Summary

Identifying the burden of care on relatives of the mentally ill remains an integral part of research in community psychiatric services. The present study aimed to assess the level and extent of burden on relatives in South Verona (northeast Italy). The South Verona catchment area provides a comprehensive, community-based psychiatric service with minimal reliance on the hospital. Patients were selected from the South Verona Psychiatric Case Register and 40 of their relatives were interviewed using structured assessments measuring objective burden, patient behaviour, coping strategies, satisfaction and needs for services. Both positive and negative aspects of burden were apparent, 92% of relatives continued to maintain contact with friends/relatives, 72% had no change to their family income, and 52% could manage any household disruptions during a crisis. The main negative effects for relatives included reduced leisure activities (57%) and psychological problems (67%). The greatest burden was on relatives of patients who were male (P = 0.016), unemployed (P = 0.013) and diagnosed with psychosis (P = 0.041). The implications of employment for patients and its association with lower levels of caregiver burden are discussed.

Type
Original Article
Copyright
Copyright © Éditions scientifiques et médicales Elsevier SAS 2000

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References

Anderson, C.M.Reiss, D.N.Hogarty, G.E.Schizophrenia and the family: a practitioner's guide to psychoeducation and management New YorkGuildford Press 1986Google Scholar
Bell, M.D.Lysaker, P.H.Clinical benefits of paid work activity in schizophrenia: 1-year follow-up Schizophr Bull 23 1997 317–328CrossRefGoogle Scholar
Bibou-Nakou, I.Dikaiou, M.Bairactaris, C.Psychosocial dimensions of family burden among two groups of carers looking after psychiatric patients Soc Psychiatry Psychiatr Epidemiol 32 1997 104–108CrossRefGoogle ScholarPubMed
Biegel, D.E.Milligan, S.E.Putnam, P.L.Song, L.Y.Predictors of burden among lower socio-economic status caregivers of person with chronic mental illness Community Ment Health J 30 1994 473–494CrossRefGoogle ScholarPubMed
Black, B.J.Work and mental illness: transitions to employment BaltimoreJohn Hopkins 1988Google Scholar
Bulger, M.W.Wandersman, A.Goldman, C.R.Burdens and gratifications of caregiving: appraisal of parental care of adults with schizophrenia Am J Orthopsychiatry 63 1993 255–265CrossRefGoogle ScholarPubMed
Fadden, G.Bebbington, P.Kuipers, L.Caring and its burdens: a study of relatives of depressed patients Br J Psychiatry 150 1987 660–667CrossRefGoogle Scholar
Falloon, I.R.H.Graham-Hole, V.Woodroffe, R.Stress and health of informal carers of people with chronic mental disorders J Ment Health 2 1993 165–173CrossRefGoogle Scholar
Gibbons, J.S.Horn, S.M.Powell, J.M.Gibbons, J.L.Schizophrenic patients and their families: a survey in a psychiatric service based on a DGH unit Br J Psychiatry 144 1984 70–77CrossRefGoogle Scholar
Hoenig, J.Hamilton, M.W.The schizophrenic patient in the community and his effect on the household Int J Soc Psychiatry 12 1966 165–176CrossRefGoogle ScholarPubMed
Jones, S.L.Rother, D.Jones, P.K.Effect of demographic and behavioral variables on burden of caregivers of chronic mentally ill persons Psychiatr Serv 46 1995 141–145Google ScholarPubMed
Lesage, A.D.Pollini, D.A new schedule to assess relatives'satisfaction with psychiatric services: preliminary results on a sample of relatives living with a mentally retarded young adult New Trends Exp Clin Psychiatry 5 1989 151–159Google Scholar
Loukissa, D.A.Family burden in chronic mental illness: a review of research studies J Adv Nurs 21 1995 248–255CrossRefGoogle ScholarPubMed
MacCarthy, B.The role of relativesLavender, AHolloway, FCommunity care in practice LondonJohn Wiley and Sons 207–227 1988Google Scholar
Mc Creadie, R.G.Wiles, D.H.Moore, J.W.Grant, S.M.Crocket, G.T.Livingston, M.G. et al. The Scottish first episode schizophrenia study: IV. Psychiatric and social impact on relatives Br J Psychiatry 150 1987 340–344CrossRefGoogle Scholar
Moos, R.H.Billings, A.G.Conceptualizing and measuring coping resources and processesGoldberger, LBrenizt, SHandbook of stress: theoretical and clinical aspects New YorkMacMillan 212–230 1982Google Scholar
Mosher, L.R.Burti, L.Community mental health. Principles and practice New YorkNorton 1989Google Scholar
Perring, C.Twigg, J.Atkin, K.Families caring for people diagnosed as mentally ill: the literature re-examined LondonHMSO 1990Google Scholar
Platt, S.Measuring the burden of psychiatric illness on the family: An evaluation of some rating scales Psychol M 15 1985 383–393CrossRefGoogle ScholarPubMed
Platt, S.Hirsch, S.Weyman, A.Social behaviour assessment schedule WindsorNFER-Nelson 1983Google Scholar
Rutter, M.Brown, G.W.The reliability and validity of measures of family life and relationships in families containing a psychiatric patient Soc Psychiatry 1 1966 38–53CrossRefGoogle Scholar
Schene, A.H.Objective and subjective dimensions of family burden Soc Psychiatry Psychiatr Epidemiol 25 1990 289–297CrossRefGoogle ScholarPubMed
Schene, A.H.Tessler, R.C.Gamache, G.M.Instruments measuring family or caregiver burden in severe mental illness Soc Psychiatry Psychiatr Epidemiol 29 1994 228–240CrossRefGoogle ScholarPubMed
Stueve, A.Vine, P.Struening, E.L.Perceived burden among caregivers of adults with serious mental illness: comparison of Black, Hispanic, and white families Am J Orthopsychiatry 67 1997 199–209CrossRefGoogle ScholarPubMed
Szmukler, G.I.Burgess, P.Herrman, H.Benson, A.Colusa, S.Bloch, S.Caring for a relative with serious mental illness: the development of the Experience of Caregiving Inventory Soc Psychiatry Psychiatr Epidemiol 31 1996 137–148CrossRefGoogle ScholarPubMed
Szmukler, G.I.Herrman, H.Colusa, S.Benson, A.Bloc, S.A controlled trial of a counselling intervention for caregivers of relatives with schizophrenia Soc Psychiatry Psychiatr Epidemiol 31 1996 149–155CrossRefGoogle ScholarPubMed
Thompson, E.H.Doll, W.The burden of families coping with the mentally ill: an invisible crisis Fam Relat: J Appl Fam Child Stud 35 1982 379–388CrossRefGoogle Scholar
Van Dongen, C.J.Quality of life and self-esteem in working and non-working persons with mental illness Community Ment Health J 32 1996 535–548CrossRefGoogle Scholar
Vaughn, C.E.Leff, J.P.The influence of family and social factors on the course of psychiatric illness: a comparison of schizophrenic and depressed neurotic patients Br J Psychiatry 129 1976 125–137CrossRefGoogle ScholarPubMed
Veltro, F.Magliano, L.Labrace, S.Morocini, P.L.Severely and persistently mentally ill patients in Italy: an overview of epidemiological and psychosocial findings Int J Soc Psychiatry 39 1993 285–302CrossRefGoogle ScholarPubMed
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