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Patients, users, caregivers, and citizens' involvement in local health technology assessment unit in Quebec: a survey

Published online by Cambridge University Press:  29 September 2020

Thomas G. Poder Open the ORCID record for Thomas G. Poder [Opens in a new window] ,
Catherine Safianyk ,
Monique F. Fournier ,
Isabelle Ganache ,
Moustapha Touré ,
Marie-Pascale Pomey Open the ORCID record for Marie-Pascale Pomey [Opens in a new window]  and
Marie-Pierre Gagnon Open the ORCID record for Marie-Pierre Gagnon [Opens in a new window]
Thomas G. Poder*
Affiliation:
School of Public Health, Université de Montréal, Montreal, Canada Centre de recherche de l'IUSMM, CIUSSS de l'Est de l'île de Montréal, Montreal, Canada
Catherine Safianyk
Affiliation:
CIUSSS de la Capitale Nationale, Quebec, Canada
Monique F. Fournier
Affiliation:
Research Consultant, Montreal, Canada
Isabelle Ganache
Affiliation:
Institut national d'excellence en santé et en services sociaux, Montreal, Canada
Moustapha Touré
Affiliation:
School of Public Health, Université de Montréal, Montreal, Canada Department of Economics, Business School, University of Sherbrooke, Sherbrooke, Canada
Marie-Pascale Pomey
Affiliation:
School of Public Health, Université de Montréal, Montreal, Canada
Marie-Pierre Gagnon
Affiliation:
Faculty of Nursing Sciences, Université Laval, Quebec, Canada
*
Author for correspondence: Thomas G. Poder, E-mail: thomas.poder@umontreal.ca
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Abstract

Objectives

Increasing emphasis is given on involving patients in health technology assessment (HTA). While this is mainly done at the level of regional and national HTA agencies, this tendency is also emerging in local HTA units. In this study, we provide the results of a survey conducted in local HTA units in the province of Quebec, Canada. The aim of the survey was to provide an overview of local HTA unit practices to involve patients, users, caregivers, and citizens in their process, their interest in doing so, and their information needs for this.

Methods

The survey was conducted in 2017 with a response rate of eleven units over a possibility of twelve.

Results

Three units out of eleven (27.3 percent) never involved patients or members of the public in their processes and all indicated that they will involve them in the next few years. The three most important needs for support identified in the HTA units were in: recruiting and selecting patients; integrating experiential knowledge; and knowing and implementing the best methods and practices for partnership.

Conclusion

Patient involvement in local HTA units is quickly evolving and that is why they urgently need tools to involve more effectively patients and members of the public in their process.

Keywords

Local HTA unitHospital-based HTAPatientsProcessSurveyQuebec
Type
Assessment
Information
International Journal of Technology Assessment in Health Care , Volume 37 , Issue 1 , 2021 , e5
Copyright
Copyright © The Author(s), 2020. Published by Cambridge University Press

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