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Quality of life in dementia patients: nursing home versus home care

Published online by Cambridge University Press:  24 June 2011

Azlina Wati Nikmat ,
Graeme Hawthorne  and
S. Hassan Al-Mashoor
Azlina Wati Nikmat*
Affiliation:
Department of Psychiatry, The University of Melbourne, Royal Melbourne Hospital, Victoria, Australia
Graeme Hawthorne
Affiliation:
Department of Psychiatry, The University of Melbourne, Royal Melbourne Hospital, Victoria, Australia
S. Hassan Al-Mashoor
Affiliation:
Department of Psychiatry, Faculty of Medicine, University Teknologi MARA Malaysia, Selayang Campus, Selangor, Malaysia
*
Correspondence should be addressed to: Azlina Wati Nikmat, PhD candidate, Department of Psychiatry, The University of Melbourne, Level 1, North Block, Royal Melbourne Hospital, Victoria 3050, Australia. Phone: +61 3 8344 5467; Fax: +61 3 9349 2792. Email: anikmat@pgrad.unimelb.edu.au.
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Abstract

Background: Care management providing a high quality of life (QoL) is a crucial issue in dealing with increasing numbers of dementia patients. Although the transition from informal (home-based) care to formal (institutional) care is often a function of dementia stage, for those with early dementia there is currently no definitive evidence showing that informal or formal care provides a higher QoL, particularly where informal care is favored for local cultural reasons. This paper outlines the research protocol for a study comparing formal and informal care in Malaysia. It seeks to provide evidence regarding which is more appropriate and results in higher QoL in early dementia.

Methods: This is a quasi-experimental study design involving 224 early dementia patients from both nursing home and community settings. Participants will be assessed for cognitive severity, QoL, needs, activities of daily living, depression and social isolation/connectedness by using the Mini-Mental State Examination (MMSE), Cognitive Impairment Scale – 4 items (CIS-4), EUROPE Health Interview Survey-Quality of Life (WHO8), Assessment of Quality of Life (AQoL8), Camberwell Assessment of Need for the Elderly – Short Version (CANE-S), Barthel Index (BI), Cornell Scale for Depression (CSDD), Geriatric Depression Scale – 15 items (GDS-15), and Friendship Scale (FS) respectively.

Conclusion: This study aims to provide a better understanding of care needs in early dementia. Given population aging, the study findings will provide evidence assisting decision-making for policies aimed at reducing the burden of caregiving and preserving the QoL of dementia patients.

Keywords

study protocolagingAlzheirmer's diseasecommunityinstitutional care
Type
PROTOCOL-ONLY PAPER
Information
International Psychogeriatrics , Volume 23 , Issue 10 , December 2011 , pp. 1692 - 1700
Copyright
Copyright © International Psychogeriatric Association 2011

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