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The Dunedin dementia risk awareness project: pilot study in older adults

Published online by Cambridge University Press:  13 September 2019

Yoram Barak*
Affiliation:
Department of Psychological Medicine, Otago University Medical School, Dunedin, New Zealand
Andrew R. Gray
Affiliation:
Centre for Biostatistics, Division of Health Sciences, University of Otago, Dunedin, New Zealand
Charlene Rapsey
Affiliation:
Department of Psychological Medicine, Otago University Medical School, Dunedin, New Zealand
Kate Scott
Affiliation:
Department of Psychological Medicine, Otago University Medical School, Dunedin, New Zealand
*
Correspondence should be addressed to: Yoram Barak, Department of Psychological Medicine, Dunedin School of Medicine, PO Box 56, Dunedin, New Zealand. Phone: +64 3 4740999 ext. 58117; Fax: +64-3-4709684. Email: yoram.barak@otago.ac.nz.
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Abstract

Aims:

The USA and UK governmental and academic agencies suggest that up to 35% of dementia cases are preventable. We canvassed dementia risk and protective factor awareness among New Zealand older adults to inform the design of a larger survey.

Method:

The modified Lifestyle for Brain Health scale quantifying dementia risk was introduced to a sample of 304 eligible self-selected participants.

Results:

Two hundred and sixteen older adults (≥50 years), with mean ± standard deviation age 65.5 ± 11.4 years (50–93 years), completed the survey (71% response rate). Respondents were mostly women (n = 172, 80%), European (n = 207, 96%), and well educated (n = 100, 46%, with a tertiary qualification; including n = 17, 8%, with a postgraduate qualification). Around half of the participants felt that they were at a future risk of living with dementia (n = 101, 47%), and the majority felt that this would change their lives significantly (n = 205, 95%), that lifestyle changes would reduce their risk (n = 197, 91%), and that they could make the necessary changes (n = 189, 88%) and wished to start changes soon (n = 160, 74%). Only 4 of 14 modifiable risk or protective factors for dementia were adequately identified by the participants: physical exercise (81%), depression (76%), brain exercises (75%), and social isolation (83%). Social isolation was the commonly cited risk factor for dementia, while physical exercise was the commonly cited protective factor. Three clusters of brain health literacy were identified: psychosocial, medical, and modifiable.

Conclusion:

The older adults in our study are not adequately knowledgeable about dementia risk and protective factors. However, they report optimism about modifying risks through lifestyle interventions.

Type
Original Research Article
Copyright
© International Psychogeriatric Association 2019 

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References

AICR/WCRF (2017). Food, Nutrition, physical Activity, and Prevention of Cancer: a Global Perspective. Continuous Update Project (CUP) reports.Google Scholar
Alzheimer’s Research UK. (2017). Dementia education on risk inspires people in midlife to consider healthier lifestyles. Available at: https://medicalxpress.com/news/2017-08-dementia-people-midlife-healthier-lifestyles.html; accessed 15 August 2018.Google Scholar
Anderson, L.A. and Egge, R. (2014). Expanding efforts to address Alzheimer’s disease: the Healthy Brain Initiative. Alzheimer’s & Dementia, 142, 10S456. Google Scholar
Badertscher, N., Rossi, P. O., Rieder, A., Herter-Clavel, C., Rosemann, T. and Zoller, M. (2012). Attitudes, barriers and facilitators for health promotion in the elderly in primary care. A qualitative focus group study. Swiss Medical Weekly, 142, w13606.Google ScholarPubMed
Baker, D. W. (2006). The meaning and the measure of health literacy. Journal of General Internal Medicine, 21, 878883.CrossRefGoogle ScholarPubMed
Baker, D. W., Gazmararian, J. A., Sudano, J. and Patterson, M. (2000). The association between age and health literacy among elderly persons. Journal of Gerontology: Psychological Sciences and Social Sciences, 55, S368374.CrossRefGoogle ScholarPubMed
Barak, Y., Rapsey, C., Fridman, D. and Scott, K. (2018). The Dunedin Dementia Risk Awareness Project: a convenience sample of general practitioners. The New Zealand Medical Journal, 131, 2734.Google ScholarPubMed
Barnes, D. E. and Yaffe, K. (2011). The projected effect of risk factor reduction on Alzheimer’s disease prevalence. Lancet Neurology, 10, 819828.CrossRefGoogle ScholarPubMed
Bowen, C. E., Kessler, E. M. and Segler, J. (2019). Dementia worry in middle-aged and older adults in Germany: sociodemographic, health-related and psychological correlates. European Journal of Ageing, 16, 3952.CrossRefGoogle ScholarPubMed
Bowling, A. and Dieppe, P. (2005). What is successful ageing and who should define it? BMJ, 331, 15481551.CrossRefGoogle Scholar
Bowling, A. and Iliffe, S. (2011). Psychological approach to successful ageing predicts future quality of life in older adults. Health and Quality of Life Outcomes, 9, 13.CrossRefGoogle ScholarPubMed
Champion, V. L. (1984). Instrument development for health belief model constructs. Advances in Nursing Science, 6, 7385.CrossRefGoogle ScholarPubMed
Chavent, M., Liquet, B., Kuentz-Simonet, V., and Saracco, J. (2012). ClustOfVar: an R package for the clustering of variables. Journal of Statistical Software, 50, 116.CrossRefGoogle Scholar
Dahlin-Ivanoff, S., Klepp, K. I. and Sjostrand, J. (1998). Development of a health education programme for elderly with age-related macular degeneration: a focus group study. Patient Education and Counseling, 34, 6373.CrossRefGoogle ScholarPubMed
Findley, A. (2015). Low health literacy and older adults: meanings, problems, and recommendations for social work. Social Work in Health Care, 54, 6581.CrossRefGoogle ScholarPubMed
Gibney, S. and Doyle, G. (2017). Self-rated health literacy is associated with exercise frequency among adults aged 50+ in Ireland. European Journal of Public Health, 27, 755761.CrossRefGoogle ScholarPubMed
Hebert, L. E., Weuve, J., Scherr, P. A. and Evans, D. A. (2013). Alzheimer disease in the United States (2010-2050) estimated using the 2010 census. Neurology, 80, 17781783.CrossRefGoogle ScholarPubMed
Hurd, M. D., Martorell, P. and Langa, K. M. (2013). Monetary costs of dementia in the United States. The New England Journal of Medicine, 369, 489490.Google ScholarPubMed
Institute of Medicine, Board on Neuroscience and Behavioral Health, and Committee on Health Literacy. (2004). Health Literacy: A Prescription to End Confusion. Edited by Kindig, D.A., Panzer, A.M., and Nielsen-Bohlman, L.. Washington, DC: The National Academies Press.Google Scholar
International., W. H. O. a. A. s. D. (2012). Dementia: A Public Health Priority. Geneva: World Health Organization.Google Scholar
Janz, N. K. and Becker, M. H. (1984). The health belief model: a decade later. Health Education Quarterly, 11, 147.CrossRefGoogle ScholarPubMed
Kim, Y. S., Rhee, T. G., Lee, H. Y., Park, B. H. and Sharratt, M. L. (2017). Mental health literacy as a mediator in use of mental health services among older Korean adults. International Psychogeriatrics, 29, 269279.CrossRefGoogle ScholarPubMed
Kobayashi, L. C. and Steptoe, A. (2018). Social isolation, loneliness, and health behaviors at older ages: longitudinal cohort study. Annals of Behavioral Medicine, 52, 582593.CrossRefGoogle ScholarPubMed
Koops van ‘t Jagt, R., Hoeks, J. C., Jansen, C. J., de Winter, A. F. and Reijneveld, S. A. (2016). Comprehensibility of health-related documents for older adults with different levels of health literacy: a systematic review. Journal of Health Communication, 21, 159177.CrossRefGoogle ScholarPubMed
Lin, Y. C., Huang, L. H., Young, H. M. and Chen, Y. M. (2007). Beliefs about physical activity−focus group results of Chinese community elderly in Seattle and Taipei. Geriatric Nursing, 28, 236244.CrossRefGoogle ScholarPubMed
Livingston, G. et al. (2017). Dementia prevention, intervention, and care. Lancet, 390, 26732734.CrossRefGoogle Scholar
National Academies of Sciences, Engineering, and Medicine. (2017). Preventing Cognitive Decline and Dementia: A Way Forward. Washington, DC: The National Academies Press.Google Scholar
Sayegh, P. and Knight, B. G. (2013). Cross-cultural differences in dementia: the Sociocultural Health Belief Model. International Psychogeriatrics, 25, 517530.CrossRefGoogle ScholarPubMed
Scazufca, M., Almeida, O. P. and Menezes, P. R. (2010). The role of literacy, occupation and income in dementia prevention: the Sao Paulo Ageing & Health Study (SPAH). International Psychogeriatrics, 22, 12091215.CrossRefGoogle Scholar
Schiepers, O. J. G. et al. (2018). Lifestyle for Brain Health (LIBRA): a new model for dementia prevention. International Journal of Geriatric Psychiatry, 33, 167175.CrossRefGoogle Scholar
Sorensen, K. et al. (2015). Health literacy in Europe: comparative results of the European health literacy survey (HLS-EU). European Journal of Public Health, 25, 10531058.CrossRefGoogle Scholar
Sun, F., Gao, X. and Coon, D. W. (2015). Perceived threat of Alzheimer’s disease among Chinese American older adults: the role of Alzheimer’s disease literacy. Journal of Gerontology: Psychological Sciences and Social Sciences, 70, 247257.Google ScholarPubMed
Tausch, A. P. and Menold, N. (2016). Methodological aspects of focus groups in health research: results of qualitative interviews with focus group moderators. Global Qualitative Nursing Research, 3, 2333393616630466.CrossRefGoogle ScholarPubMed
Wei, Y., McGrath, P. J., Hayden, J. and Kutcher, S. (2015). Mental health literacy measures evaluating knowledge, attitudes and help-seeking: a scoping review. BMC Psychiatry, 15, 291.CrossRefGoogle ScholarPubMed
Werner, P. (2005). Lay perceptions about mental health: where is age and where is Alzheimer’s disease? International Psychogeriatrics, 17, 371382.CrossRefGoogle ScholarPubMed
Wildenbos, G. A., Peute, L. and Jaspers, M. (2017). Facilitators and barriers of electronic health record patient portal adoption by older adults: a literature study. Studies in Health Technology and Informatics, 235, 308312.Google ScholarPubMed
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