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Family cohesion, burden, and health-related quality of life among Parkinson’s disease caregivers in Mexico

Published online by Cambridge University Press:  15 October 2018

Stephen K. Trapp ,
Melissa M. Ertl ,
Susana Gonzalez-Arredondo ,
Yaneth Rodriguez-Agudelo  and
Juan Carlos Arango-Lasprilla
Stephen K. Trapp
Affiliation:
Division of Physical Medicine and Rehabilitation, University of Utah, Salt Lake City, UT, USA
Melissa M. Ertl
Affiliation:
Division of Educational and Counseling Psychology, University at Albany–State University of New York, Albany, NY, USA
Susana Gonzalez-Arredondo
Affiliation:
Department of Neuropsychology, National Institute of Neurology and Neurosurgery, Tlalpan, Distrito Federal, Mexico
Yaneth Rodriguez-Agudelo
Affiliation:
Department of Neuropsychology, National Institute of Neurology and Neurosurgery, Tlalpan, Distrito Federal, Mexico
Juan Carlos Arango-Lasprilla*
Affiliation:
IKERBASQUE, Basque Foundation for Science, Bilbao, Spain
*
Correspondence should be addressed to: Juan Carlos Arango-Lasprilla, Ikerbasque Research Professor, University of Deusto, Ikerbasque, Basque Foundation for Science, Avda. de las Universidades 24, 48007 Bilbao, Spain. Phone: +34 94 413 90 03 (ext. 3261). Email: jcalasprilla@gmail.com.
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Abstract

Background:

Informal caregivers of individuals with Parkinson’s disease face a range of responsibilities that increase as the disease progresses. As a result of these stressors, caregivers are vulnerable to decreased health-related quality of life (HRQOL). Guided by the stress process model of caregiving, the present study examined the relations between family cohesion, perceived burden, and mental and physical HRQOL among Parkinson’s disease caregivers in Mexico. It was hypothesized that perceived burden would mediate the relations of family cohesion and mental and physical HRQOL.

Methods:

Ninety-five family caregivers of individuals with Parkinson’s disease in Mexico City, Mexico, participated in the study. Multiple regression was utilized to conduct mediation analyses.

Results:

Results indicated that burden fully mediated the relation between family cohesion and mental HRQOL, and family cohesion was not associated with physical HRQOL.

Conclusions:

Findings extend the stress process model cross-culturally and lend support for the importance of family cohesion and perceived burden in determining caregiver mental HRQOL. Clinical health promotion interventions should target perceived burden and family cohesion together to improve mental HRQOL among familial caregivers in Mexico.

Keywords

caregiverhealth-related quality of lifeParkinson’s diseaseMexicofamily cohesionburden
Type
Original Research Article
Information
International Psychogeriatrics , Volume 31 , Issue 7: Issue Theme: Diverse Approaches to Stemming Cognitive Decline , July 2019 , pp. 1039 - 1045
Copyright
© International Psychogeriatric Association 2018 

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