Hostname: page-component-cd9895bd7-gxg78 Total loading time: 0 Render date: 2024-12-26T09:12:26.306Z Has data issue: false hasContentIssue false

The New Federal Health Privacy Regulations: How Will States Take the Lead?

Published online by Cambridge University Press:  01 January 2021

Abstract

Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
The Podium
Copyright
Copyright © American Society of Law, Medicine and Ethics 2001

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Elliot Stone is the Executive Director of the Massachusetts Health Data Consortium.Google Scholar
Warren, S. and Brandeis, L., “The Right to Privacy,” Harvard Law Review, 4 (1890): 193220.Google Scholar
Olmstead v. United States, 277 U.S. 438 (1928).Google Scholar
Articulated early on by Westin, A., Privacy and Freedom (New York: Atheneum, 1967).Google Scholar
Berman, J. and Goldman, J., A Federal Right of Information Privacy: The Need for Reform (Washington D.C.: Benton Foundation, 1989): at 2. See also Bloustein, E.J., “Privacy as an Aspect of Human Dignity: An Answer to Dean Prosser,” New York University Law Review, 39 (1964): 962.Google Scholar
Electronic Communications Privacy Act of 1986, 18 U.S.C. § 2510 et seq. (1995).Google Scholar
Right to Financial Privacy Act, 12 U.S.C. § 3401 (1978); Family Educational Rights and Privacy Act, 20 U.S.C. § 1232g (1974); Fair Credit Reporting Act, 15 U.S.C. § 1681 (1970).Google Scholar
Privacy Act of 1974, 5 U.S.C. § 552a (2)(a) (1974); Freedom of Information Act, 5 U.S.C. § 552 (1966).Google Scholar
The Video Privacy Protection Act of 1988, 18 U.S.C. § 2710 (1988).Google Scholar
See Health Privacy Project, Health Privacy Polling Data, at <http://www.healthprivacy.org/info-url_nocat2302/info-url_nocat.htm> (last updated September 13, 2001) (referencing the California HealthCare Foundation survey conducted by Princeton Survey Research Associates in January 1999).+(last+updated+September+13,+2001)+(referencing+the+California+HealthCare+Foundation+survey+conducted+by+Princeton+Survey+Research+Associates+in+January+1999).>Google Scholar
California HealthCare Foundation, Ethics Survey of Consumer Attitudes about Health Web Sites (January 2000), available at <http://www.iftf.org/html/researchareas/hc_research/chcf/index.html>..>Google Scholar
Weiss, R., “Ignorance Undercuts Gene Tests' Potential,” Washington Post, December 2, 2000, at A1.Google Scholar
Hillig, T. and Mannies, J., “Woman Sues Over Posting of Abortion Details,” St. Louis Post-Dispatch, July 3, 2001, at A1.Google Scholar
“Black Eye at the Medical Center,” Washington Post, February 22, 1999, at F5.Google Scholar
O'Harrow, R., “Plans' Access to Pharmacy Data Raises Privacy Issue,” Washington Post, September 27, 1998, at A1.Google Scholar
Medical Records Confidentiality Act of 1995, S. 1360, 104th Cong.Google Scholar
Health Insurance Portability and Accountability Act of 1996, Pub. L. No. 104-191, § 262 (1996).Google Scholar
Standards for Privacy of Individually Identifiable Health Information, 45 C.F.R. pts. 160 and 164 (2000). For an explanation of the regulation, see Office for Civil Rights, Standards for Privacy of Individually Identifiable Health Information, at <http://aspe.hhs.gov/admnsimp/final/pvcguidel.htm> (last revised July 6, 2001).+(last+revised+July+6,+2001).>Google Scholar
Office of the White House Press Secretary, “Statement by the President” (April 12, 2001), available at <http://www.whitehouse.gov/news/releases/2001/04/20010412-1.html>..>Google Scholar
Health Privacy Project, “Myths and Facts about the Health Privacy Regulation,” at <http://www.healthprivacy.org/info-url_nocat2303/info-url_nocat_show.htm?doc_id=53028> (March 5, 2001).+(March+5,+2001).>Google Scholar
Pear, R., “White House Plans to Revise New Medical Privacy Rules,” New York Times, April 8, 2001, at A16.Google Scholar
Safire, W., “The Privacy President?” New York Times, April 19, 2001, Op-Ed.Google Scholar
In fact, DHHS did issue its first guidance on the regulation on July 6, 2001. See Office for Civil Rights, Standards for Privacy of Individually Identifiable Health Information, at <http://aspe.hhs.gov/admnsimp/final/pvcguidel.htm> (last revised July 6, 2001). The thrust of this initial guidance does appear aimed at calming industry fears and directly correcting misstatements and hyperbole.+(last+revised+July+6,+2001).+The+thrust+of+this+initial+guidance+does+appear+aimed+at+calming+industry+fears+and+directly+correcting+misstatements+and+hyperbole.>Google Scholar
45 C.F.R. pts. 160 and 164. For a detailed summary of the regulations, see Health Privacy Project, Summary of HIPAA Privacy Regulations (February 5, 2001), available at <http://www.healthprivacy.org/usr_doc/Final_Summit_Summary2.pdf>..>Google Scholar
Okie, S., “Groups Warn of Breaches in Privacy Laws for Patients,” Washington Post, Apr. 16, 2000, at A2. See 45 C.F.R. pts. 160 and 164, Preamble.Google Scholar
Pritts, J. et al., The State of Health Privacy: An Uneven Terrain (August 8, 1999), available at <http://www.georgetown.edu/research/ihcrp/privacy/statereport.pdf>..>Google Scholar
Texas has been the first state to enact health privacy legislation since the federal rules went into effect. See Health Privacy Project, “New Medical Privacy Law in Texas,” at <http://www.healthprivacy.org/info-url_nocat2303/info-url_nocat_show.htm?doc_id=71582> (July 5, 2001).+(July+5,+2001).>Google Scholar
For example, see O'Harrow, R., “Patient Files Opened to Marketers, Fundraisers,” Washington Post, January 16, 2001, at E1.Google Scholar