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The integrated palliative care outcome scale for patients with palliative care needs: Factors related to and experiences of the use in acute care settings

Published online by Cambridge University Press:  07 March 2019

Susanne Lind*
Affiliation:
Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, Stockholm, Sweden
Lars Wallin
Affiliation:
Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet, Huddinge, Sweden School of Education, Health and Social Science, Dalarna University, Dalarna, Sweden Department of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden
Carl Johan Fürst
Affiliation:
Institute for Palliative Care, Lund University and Region Skåne, Sweden Faculty of Medicine, Department of Clinical Sciences Lund, Lund University, Oncology, Lund, Sweden
Ingela Beck
Affiliation:
Institute for Palliative Care, Lund University and Region Skåne, Sweden Faculty of Medicine, Department of Clinical Sciences Lund, Lund University, Oncology, Lund, Sweden Faculty of Health Sciences, Department of Nursing and Integrated Health Sciences, Kristianstad University, Kristianstad, Sweden
*
Author for correspondence: Susanne Lind, Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, P.O. Box 111 89, SE-100 61 Stockholm. Sweden. E-mail: susanne.lind@esh.se

Abstract

Objective

Implementation of patient-reported outcome measures for patients with palliative care needs is characterized by both enablers and barriers. The ways in which healthcare professionals experience the use of assessment tools is important. Our aims were to explore factors contributing to or hindering patients with palliative care needs in assessing their symptoms with the Integrated Palliative Care Outcome Scale (IPOS) and to explore healthcare professionals’ experiences of the use of IPOS in acute care settings.

Method

Data were collected as a part of the evaluation of the feasibility of an implementation strategy for introducing IPOS. Data from three participating acute care units were included. We used descriptive and analytical statistics; a qualitative content analysis was also performed.

Result

A total of 309 patients were eligible to be offered assessment of symptoms with IPOS. Of these 69 (22%) had completed IPOS. A significant positive association was found between healthcare professionals’ participation in training sessions and completed IPOS. The experiences of IPOS were split into two categories: “IPOS acting as a facilitator” and “barriers to the use of IPOS.” The use of IPOS was described as contributing to person-centered care of patients with palliative care needs and inspiration to improved routines. Healthcare professionals’ feelings of uncertainty about how to approach severely ill patients and their family members appear to have hindered their use of IPOS.

Significance of results

We found an association between healthcare professionals’ participation in training sessions and patients who completed IPOS, indicating the need for a high degree of attendance at the training to achieve successful implementation. The healthcare professionals expressed feelings of insecurity concerning the use of IPOS indicating a need for further education and clinical support in its use of IPOS. Nevertheless, use of IPOS was considered to contribute to improved care of patients with palliative care needs.

Type
Original Article
Copyright
Copyright © Cambridge University Press 2019 

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