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Pain relief, spiritual needs, and family support: Three central areas in intercultural palliative care

Published online by Cambridge University Press:  05 August 2013

Ingrid Hanssen  and
Gry Pedersen
Ingrid Hanssen*
Affiliation:
Lovisenberg Diakonale Høgskole, Oslo, Norway
Gry Pedersen
Affiliation:
Hospice Lovisenberg, Oslo, Norway
*
Address correspondence and reprint requests to: Ingrid Hanssen, Lovisenberg Deaconal University College, Oslo, Norway. E-mail: Ingrid.Hanssen@ldh.no
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Abstract

Objective:

The purpose of this study was to draw out and coalesce the topic-specific information found in research literature regarding the provision of culturally sensitive palliative practice.

Method:

This was a literature study and Gadamerian hermeneutic text analysis.

Results:

It is more difficult to assess the level of pain in ethnic minority patients, and healthcare providers may become frustrated and interpret pain symptoms as fabrication. These patients are more likely to receive inadequate pain medication. Physical symptom management has become the priority in palliative care, but pain must also be viewed from the perspective of its social, cultural, and spiritual significance. Collectivist values may lead to an other-reliant and dependent coping style. This and religious demands may cause the family to rally around the patient. Many dying patients wish to be cared for at home by their families, but as the patient often has complex needs, the family may not be able to cope with the patient's care.

Significance of results:

Formal education and in-service programs are needed for healthcare providers, together with empirical studies regarding how to achieve more culturally appropriate care in intercultural palliative practice. The immigrant population needs to be educated about cancer and the various kinds of palliative and hospice care offered in the society in which they now live.

Keywords

PainSpiritualityFamilyCulturePalliative care
Type
Review Articles
Information
Palliative & Supportive Care , Volume 11 , Issue 6 , December 2013 , pp. 523 - 530
Copyright
Copyright © Cambridge University Press 2013 

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References

REFERENCES

Alpers, L.-M. & Hanssen, I. (2009). Etniske minoritetspasienter i psykiatrien – en studie av helsearbeideres kompetanse. [Ethnic Minority Patients Within Psychiatric Care – a Study of Health Care Providers' Competency. Norwegian]. Research report. Oslo: Lovisenberg Deaconal University College.Google Scholar
Alpers, L.-M. & Hanssen, I. (2008). Sykepleieres kompetanse om etniske minoritetspasienter. [Nurses' Competency Regarding Ethnic Minority Patients. Norwegian]. Research report. Oslo: Lovisenberg Deaconal University College.Google Scholar
Andrews, M.M. (1999). Transcultural nursing care. In Transcultural Concepts in Nursing Care, 2nd ed.Andrews, M.M. & Boyle, J.S. (eds.), pp. 49–96. Philadelphia: Lippincott.Google Scholar
Bhanumathi, P.P. (1983). Nurses' conception of ‘sick role’ and ‘good patient behavior: A cross-cultural comparison. International Nurse Review, 24, 20–24.Google Scholar
Barkwell, D. (2005). Cancer pain: Voices of the Ojibway people. Journal of Pain and Symptom Management, 30, 454–464.Google Scholar
Beck, S. (2000). An ethnographic study of factors influencing cancer pain management in South Africa. Cancer Nursing, 23, 91–99.Google Scholar
Chan, L.S., MacDonald, M.E. & Cohen, S.R. (2009). Moving culture beyond ethnicity: Examining dying in hospital through a cultural lens. Journal of Palliative Care, 25, 117–124.Google Scholar
Chen, C.H., Tang, S.T. & Chen, C.H. (2012). Meta-analysis of cultural differences in Western and Asian patient-perceived barriers to managing cancer pain. Palliative Medicine, 26, 206–221.Google Scholar
Cohen, M.Z., Musgrave, C.F., Musell, M.F., et al. (2005). The cancer pain experience of Israeli and American patients 65 years and older. Journal of Pain and Symptom Management, 30, 254–263.Google Scholar
Corà, A., Partinico, M., Manufò, M., et al. (2012). Health risk factors in caregiving of terminally ill cancer patients: A pilot study. Cancer Nursing, 35, 38–47.Google Scholar
Dahl, Ø., Jensen, I. & Nynäs, P. (2006). Bridges of Understanding. Perspectives on Intercultural Communication. Oslo: Oslo Academic Press.Google Scholar
Dawes, T. & Thoner, G. (1996). Aldring og etnisitet. [Aging and Ethnicity. Norwegian]. Oslo: GerArt No. 4.Google Scholar
de Graaff, F.M. & Francke, A.L. (2003). Home care for terminally ill Turks and Moroccans and their families in the Netherlands: Carers’ experience and factors influencing ease of access and use of services. International Journal of Nursing studies, 40, 797–805.Google Scholar
DeMartinis, V. (1998). Tvärkulturell vård i livets slutskede. [Transcultural Care at The End of life. Swedish]. Lund: Studentlitteratur.Google Scholar
Dias, S., Gama, A., Cargaleiro, H., et al. (2012). Health workers' attitudes toward immigrant patients: a cross-sectional survey in primary health care services. Human Resources of Health, 10, 14.Google Scholar
Ekblad, S., Marttila, A. & Emilsson, M. (2000). Cultural challenges in end-of-life care: Reflections from focus groups' interviews with hospital staff in Stockholm. Journal of Advanced Nursing, 31, 623–630.Google Scholar
Firth, S. (2001). Wider Horizons. Care of the Dying in a Multicultural Society. London: The National Council for Hospice and Specialist Palliative Care Services.Google Scholar
Forrest, D.V. (1983). The eye in the heart. Psychoanalytic keys to Vietnam. The Journal of Psychoanalytic Anthropology, 5, 259–299.Google Scholar
Gadamer, H.G. (1989). Truth and Method. 2nd revised ed.London: Sheed and Ward.Google Scholar
Gerrish, K. & Papadopoulos, I. (1999). Transcultural competence: The challenge for nurse education. British Journal of Nursing, 8, 1453–1457.CrossRefGoogle ScholarPubMed
Green, C.R., Anderson, K.O., Baker, T.A., et al. (2003). The unequal burden of pain: confronting racial and ethnic disparities in pain. Pain Medicine, 4, 277–294.Google Scholar
Gunaratnam, Y. (2007). Intercultural palliative care: do we need cultural competence? International Journal of Palliative Nursing, 13, 470–477.Google Scholar
Hanssen, I. (2004). An intercultural nursing perspective on autonomy. Nursing Ethics, 11, 28–41.Google Scholar
Hanssen, I. (2010). Facing Differentness. Ethical Challenges in Intercultural Nursing. Saaebrücken: VDM Verlag Dr. Müller.Google Scholar
Hanssen, I. & Alpers, L.-M. (2010). Interpreters in intercultural health care settings: Health professionals' and professional interpreters' cultural knowledge, and their reciprocal perception and collaboration. Journal of Intercultural Communication, 23.Google Scholar
Higginson, I.J., Simon, S.T., Benalla, H., et al. (2012). Which questions of two commonly used multidimensional palliative care patient reported outcome measures are most useful? Results from the European and African PRISMA survey. Support in Palliative Care, 2, 36–42.Google Scholar
Hobara, M. (2005). Beliefs about appropriate pain behavior: Cross-cultural and sex differences between Japanese and Euro-Americans. European Journal of Pain, 9, 389–393.Google Scholar
Hofstede, G. (1991). Culture and Organizations: Software of the Mind. London: McGraw-Hill.Google Scholar
Holloway, M. (2006). Death as the great leveller? Towards a transcultural spirituality of dying and bereavment. Journal of Clinical Nursing, 15, 833–839.Google Scholar
Hospice Information Service, The (2012). http://www.helpthehospices.org.uk/our-services/international/the-need/Google Scholar
Iliffe, S. & Manthorpe, J. (2004). The debate on ethnicity and dementia: From category fallacy to person-centred care? Aging & Mental Health, 8, 283–292.Google Scholar
Im, E.-O., Ho, T.-H., Brown, A., et al. (2009). Acculturaltion and the cancer pain experience. Journal of Transcultural Nursing, 20, 358–370.Google Scholar
Khanjari, S., Oskouie, F. & Langius–Eklöf, A. (2012). Lower sense of coherence, negative religious coping, and disease severity as indicators of a decrease in Quality of Life in Iranian family caregivers of relatives with breast cancer during the first 6 months after diagnosis. Cancer Nursing, 35, 148–156.Google Scholar
Khoshrouy-Sefat, H. (1985). Islam – Der Glaube, seine Gesetze und seine Auswirkung [Islam – the Faith, commandments and development. German]. Krankenpflege, Fachzeitschrift des Deutschen Berufsverbandtes für Krankenpflege, 1, 19–20.Google Scholar
Koffman, J., Higginson, I.J. & Donaldson, N. (2003). Symptom severity in advanced cancer, assessed in two ethnic groups by interviews with bereaved family members and friends. Journal of the Royal Society of Medicine, 96, 10–16.CrossRefGoogle ScholarPubMed
Koffman, J., Morgan, M. & Higginson, I.J. (2008). Cultural meanings of pain: A qualitative study of Black Caribbean and White British patients with advanced cancer. Palliative Medicine, 22, 350–359.Google Scholar
Lasch, K.E. (2000). Culture, pain, and culturally sensitive pain care. Pain Management Nursing, 1, Suppl. 1, 16–22,Google Scholar
Leininger, M. (1994). Transcultural nursing education: A worldwide imperative. Nursing & Health Care, 15, 254–257.Google ScholarPubMed
Leininger, M.M. (1990). Ethical and Moral Dimensions of Care. Detroit: Wayne State University Press.Google Scholar
Lovering, S. (2006). Cultural attitudes and beliefs about pain. Journal of Transcultural Nursing, 17, 389–395.Google Scholar
Monivais, D. & McNeill, J. (2007). Multicultural influences on pain medication attitudes and beliefs in patients with nonmalignant chronic pain syndromes. Pain Management Nursing, 8, 64–71.Google Scholar
More, R.J. & Butow, P. (2004). Culture and oncology. Impact of context effects. In Cancer, Culture, and Communication. Moore, R.J. & Spiegel, D. (eds.), pp. 15–54. New York: Kluwer Academic/Plenum Publishers.CrossRefGoogle Scholar
Muircroft, M., McKimm, J., William, L., et al. (2010). A New Zealand perspective on palliative care for Maori. Journal of Palliative Care, 26, 54–58.Google Scholar
Paice, J.A. & O'Donnell, J.F. (2004). The cultural experience of cancer pain. In Cancer, Culture, and Communication. Moore, R.J. & Spiegel, D. (eds.), pp. 187–219. New York: Kluwer Academic/Plenum Publishers.CrossRefGoogle Scholar
Papps, E. & Ramsden, I. (1996). Cultural safety in nursing: The New Zealand experience. International Journal for Quality Health Care, 8, 491–497.CrossRefGoogle ScholarPubMed
Pedersen, G. (2006). Sykepleieres erfaringer fra arbeid med alvorlig syke og døende pasienter med minoritetsbakgrund i hjemmesykepleien [Community nurses' experiences caring for terminally ill patients with ethnic minority backgrounds. Norwegian]. Master's thesis, University of Oslo, Faculty of Medicine.Google Scholar
Philips, L. & Taylor, V. (2012). Addressing the palliative care needs of minority groups. District Nursing, 22, 26–30.Google Scholar
Sandelowski, M. (2008). Reading, writing and systematic review. Journal of Advanced Nursing, 64, 104–110.Google Scholar
Shanmugasundaram, S. & O'Connor, M. (2009). Palliative care services for Indian migrants in Australia: Experiences of the family of terminally ill patients. Indian Journal of Palliative Care, 15, 76–83.CrossRefGoogle ScholarPubMed
Sheikh, A. & Gatrad, A.R. (2000). Caring for Muslim Patients. Ozon: Radcliffe Medical Press.Google Scholar
Todd, J. & Baldwin, C.M. (2006). Palliative care and culture: An optimistic view. The Journal of Multicultural Nursing & Health, 12, 2.Google Scholar
Tong, E., McGraw, S.A., Dobihal., E., et al. (2003). What is a good death? Minority and non-minority perspectives. Journal of Palliative Care, 19, 168–175.Google Scholar
Weissman, D.E., Gordon, D. & Bidar-Sielaff, S. (2002). Fast Fact and Concept #78: Cultural aspects of pain management. End of Life/Palliative Education Resource Center: http://www.mywhatever.com/cifwriter/library/eperc/fastfact/ff78.htmlGoogle Scholar
Wikan, U. (2003). For ærens skyld. Fadime til ettertanke. [For Honour' Sake. In Memory of Fadime. Norwegian.] Oslo: Universitetsforlaget.Google Scholar
World Health Organzation (WHO) (1990). Cancer Pain Relief and Palliative Care. Technical Report Series No. 804. Geneva: WHO.Google Scholar