Hostname: page-component-78c5997874-m6dg7 Total loading time: 0 Render date: 2024-11-11T00:08:03.251Z Has data issue: false hasContentIssue false
  • English
  • Français

Portuguese Patient Dignity Question: A cross-sectional study of palliative patients cared for in primary care

Published online by Cambridge University Press:  10 March 2020

Mafalda Lemos Caldas Open the ORCID record for Mafalda Lemos Caldas [Opens in a new window] ,
Miguel Julião Open the ORCID record for Miguel Julião [Opens in a new window] ,
Ana João Santos  and
Harvey Max Chochinov
Mafalda Lemos Caldas*
Affiliation:
USF Travessa da Saúde, ACeS Loures Odivelas, Portugal Faculdade de Medicina da Universidade de Lisboa, Lisboa, Portugal
Miguel Julião
Affiliation:
Equipa Comunitária de Suporte em Cuidados Paliativos de Sintra, Portugal
Ana João Santos
Affiliation:
Departamento de Epidemiologia, Instituto Nacional de Saúde Doutor Ricardo Jorge, Lisboa, Portugal Centro de Investigação em Saúde Pública, Escola Nacional de Saúde Pública, Universidade Nova de Lisboa, Lisboa, Portugal
Harvey Max Chochinov
Affiliation:
Department of Psychiatry, Research Institute of Oncology and Hematology, Cancer Care Manitoba, Manitoba, Canada
*
Author for correspondence: Mafalda Lemos Caldas, USF Travessa da Saúde, ACeS Loures Odivelas, Portugal, Faculdade de Medicina da Universidade de Lisboa, Lisboa, Portugal, E-mail: mafalda@caldas.pt
Get access Rights & Permissions [Opens in a new window]

Abstract

Introduction

The Patient Dignity Question (PDQ) is a clinical tool developed with the aim of reinforcing the sense of personhood and dignity, enabling health care providers (HCPs) to see patients as people and not solely based on their illness.

Objective

To study the acceptability and feasibility of the Portuguese version of the PDQ (PDQ-PT) in a sample of palliative care patients cared for in primary care (PC).

Method

A cross-sectional study using 20 palliative patients cared for in a PC unit. A post-PDQ satisfaction questionnaire was developed.

Results

Twenty participants were included, 75% were male; average age was 70 years old. Patients found the summary accurate, precise, and complete; all said that they would recommend the PDQ to others and want a copy of the summary placed on their family physician's medical chart. They felt the summary heightened their sense of dignity, considered it important that HCPs have access to the summary and indicated that this information could affect the way HCPs see and care for them. The PDQ-PT's took 7 min on average to answer, and 10 min to complete the summary.

Significance of results

The PDQ-PT is well accepted and feasible to use with palliative patients in the context of PC and seems to be a promising tool to be implemented. Future trials are now warranted.

Keywords

DignityPalliative carePatient Dignity QuestionPersonhoodPrimary care
Type
Original Article
Information
Palliative & Supportive Care , Volume 18 , Issue 6 , December 2020 , pp. 658 - 661
Check for updates
Copyright
Copyright © Cambridge University Press 2020

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

André, P (2018) Prevalência e características das pessoas com necessidades paliativas internadas em serviços hospitalares generalizados: contributo para a tradução e validação da ferramenta NECPAL-CCOMS-ICO© para a população portuguesa (Master dissertation). Faculdade de Medicina da Universidade de Lisboa, Lisbon.Google Scholar
Chochinov, HM (2007) Dignity and the essence of medicine: The A, B, C, and D of dignity conserving care. BMJ 335, 184–187.CrossRefGoogle Scholar
Chochinov, H, Hassard, T, McClement, S, et al. (2008) The patient dignity inventory: A novel way of measuring dignity-related distress in palliative care. Journal of Pain and Symptom Management 36(6), 559–571.CrossRefGoogle ScholarPubMed
Chochinov, HM, McClement, S, Hack, T, et al. (2015) Eliciting personhood within clinical practice: Effects on patients, families, and health care providers. Journal of Pain and Symptom Management 49(6), 974–980.CrossRefGoogle ScholarPubMed
Julião, M, Courelas, C, Costa, MJ, et al. (2018) The Portuguese versions of the This Is ME Questionnaire and the Patient Dignity Question: Tools for understanding and supporting personhood in clinical care. Annals of Palliative Medicine 7(Suppl 3), S187–S195.CrossRefGoogle ScholarPubMed
Lemos Caldas, M and Julião, M (2018) The use of the patient dignity question in palliative patients cared for in the primary care setting: Preliminary results. Journal of Palliative Medicine 21(8), 1062–1063.CrossRefGoogle ScholarPubMed
Lopez, C, Bertram-Farough, A, Heywood, D, et al. (2017) Knowing about you: Eliciting dimensions of personhood within tuberculosis care. International Journal of Tuberculosis and Lung Disease 21(2), 149–153.CrossRefGoogle ScholarPubMed
Maguire, P, Faulkner, A, Booth, K, et al. (1996) Helping cancer patients disclose their concerns. European Journal of Cancer 32, 78–81.CrossRefGoogle Scholar
Pichert, J, Hickson, G and Moore, I. (2008) Using patient complaints to promote patient safety. In Henriksen, KBJ, Keyes, MA, Grady, ML (eds.), Advances in Patient Safety: New Directions and Alternative Approaches. Rockville: Agency for Healthcare Research and Quality.Google ScholarPubMed
Sage, W (2003) Medical liability and patient safety. Health Affairs 22, 26–36.CrossRefGoogle ScholarPubMed
Thom, DH, Hall, MA and Pawlson, LG (2004) Measuring patients’ trust in physicians when assessing quality of care. Health Affairs 23, 124–132.CrossRefGoogle ScholarPubMed
Supplementary material: File

Lemos Caldas et al. Supplementary Materials

Lemos Caldas et al. Supplementary Materials

Download Lemos Caldas et al. Supplementary Materials(File)
File 14.5 KB