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Professional characteristics and the prevalence of advance directives among palliative care professionals: A cross-sectional study

Published online by Cambridge University Press:  29 October 2020

Ana Cláudia Mesquita Garcia Open the ORCID record for Ana Cláudia Mesquita Garcia [Opens in a new window] ,
Luciana Dadalto ,
Isabelle Cristinne Pinto Costa ,
Denismar Alves Nogueira ,
Silvia Caldeira Open the ORCID record for Silvia Caldeira [Opens in a new window] ,
Aoife O'Mahony  and
Guilherme Antonio Moreira de Barros
Ana Cláudia Mesquita Garcia*
Affiliation:
School of Nursing, Federal University of Alfenas, Alfenas, Brazil
Luciana Dadalto
Affiliation:
Law School, Newton Paiva University Center, Belo Horizonte, Brazil
Isabelle Cristinne Pinto Costa
Affiliation:
School of Nursing, Federal University of Alfenas, Alfenas, Brazil
Denismar Alves Nogueira
Affiliation:
Institute of Exact Sciences, Federal University of Alfenas, Alfenas, Brazil
Silvia Caldeira
Affiliation:
Universidade Católica Portuguesa, Centre for Interdisciplinary Research in Health, Lisboa, Portugal
Aoife O'Mahony
Affiliation:
School of Psychology, Cardiff University, Cardiff, UK
Guilherme Antonio Moreira de Barros
Affiliation:
Medical School, São Paulo State University – UNESP, Botucatu, Brazil
*
Author for correspondence: Ana Cláudia Mesquita Garcia, School of Nursing, Federal University of Alfenas (UNIFAL-MG), Rua Gabriel Monteiro da Silva, 700 - Centro - Alfenas/MG, Brazil. E-mail: ana.mesquita@unifal-mg.edu.br
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Abstract

Objective

This study aimed to investigate the association between professional characteristics and the prevalence of advance directives among palliative care professionals.

Methods

This is a descriptive cross-sectional study. A diverse sample of 327 healthcare professionals completed an online survey investigating demographic variables, length of time working in palliative care, post-graduate qualifications in palliative care, and development of their own advance directives.

Results

The prevalence of advance directives among professionals working in palliative care was associated with factors such as higher academic qualifications, holding a post-graduate qualification in palliative care, and working in palliative care for a longer time. Furthermore, psychologists were most likely to have registered their own advance directives, compared with other healthcare professionals.

Significance of results

Post-graduate palliative care education and professional experience in this area appear to be important factors associated with palliative care professionals writing of their own advance directives. However, our study suggests that just being involved in or familiar with the context of palliative and end-of-life care does not guarantee that health professionals register their advance directives.

Keywords

Advance directivesPalliative carePatient care team
Type
Original Article
Information
Palliative & Supportive Care , Volume 19 , Issue 4 , August 2021 , pp. 415 - 420
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Copyright
Copyright © The Author(s), 2020. Published by Cambridge University Press

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References

REFERENCES

Brazil (2012) Federal Council of Medicine. Resolução 1995/2012. Available at: http://www.portalmedico.org.br/resolucoes/CFM/2012/1995_2012.pdf (accessed January 14, 2020).Google Scholar
Bussinguer, ECA and Barcellos, IA (2013) The right to live one's own death and its constitutionality. Ciência & Saúde Coletiva 18, 2691–2698.CrossRefGoogle ScholarPubMed
Cassol, PB, Quintana, AM and Velho, MTAdC (2015) Anticipated policy will: Perception of nursing staff of blood-oncology. Journal of Nursing and Health 5, 04–13.Google Scholar
Cogo, SB and Lunardi, VL (2018) Advance directives: A documentary analysis in the global context. Texto Contexto - Enfermagem 27, e1880014.Google Scholar
Cogo, SB, Lunardi, VL, Quintana, AM, et al. (2016) Challenges to implementation of advance directives of will in hospital practice. Revista Brasileira de Enfermagem 69, 969–976.Google ScholarPubMed
Dadalto, L (2020) Testamento Vital, 5th ed. Indaiatuba: Foco.Google Scholar
Duke, G and Thompson, S (2007) Knowledge, attitudes and practices of nursing personnel regarding advance directives. International Journal of Palliative Nursing 13, 109–115.CrossRefGoogle ScholarPubMed
Fagerlin, A and Schneider, CE (2004) Enough — The failure of the living will. Hastings Center Report 34, 30–42.CrossRefGoogle ScholarPubMed
Forte, DN, Vincent, JL, Velasco, IT, et al. (2012) Association between education in EOL care and variability in EOL practice: A survey of ICU physicians. Intensive Care Medicine 38, 404–412.CrossRefGoogle ScholarPubMed
Germany (2009) Bun-des-ge-setz-blatt. Ge-setz zur Ände-rung des Be-treu-ungs-rechts vom 29.07.2009. Available at: https://www.bgbl.de/xaver/bgbl/start.xav?startbk=Bundesanzeiger_BGBl&bk=Bundesanzeiger_BGBl&start=//*%255B@attr_id=%2527bgbl109s2286.pdf%2527%255D#__bgbl__%2F%2F*%5B%40attr_id%3D%27bgbl109s2286.pdf%27%5D__1589309095310 (accessed May 12, 2020).Google Scholar
Gimeno, MLM, Escribano, CC, Fernández, TH, et al. (2018) Knowledge and attitudes of health care professionals in advance healthcare directives. Journal of Healthcare Quality Research 33, 270–277.Google Scholar
Go, RS, Hammes, BA, Lee, JA, et al. (2007) Advance directives among health care professionals at a community-based cancer center. Mayo Clinic Proceedings 82, 1487–1490.CrossRefGoogle Scholar
Haugen, DF, Nauck, F, Caraceni, A, et al. (2015) The core team and the extended team. In Cherny, NI, Fallon, MT and Kaasa, S (eds.), Oxford Textbook of Palliative Medicine. Oxford: Oxford University Press, pp. 139–145.Google Scholar
Italy (2018) Fascicolo Iter DDL S. 2801. Norme in materia di consenso informato e di disposizioni anticipate di tratamento. Available at: www.senato.it/leg/17/BGT/Schede/FascicoloSchedeDDL/ebook/47964.pdf (accessed January 14, 2020).Google Scholar
Jünger, S and Payne, S (2011) Guidance on postgraduate education for psychologists involved in palliative care. European Journal of Palliative Care 18, 238–252.Google Scholar
Kasl-Godley, JE, King, DA and Quill, TE (2014) Opportunities for psychologists in palliative care working with patients and families across the disease continuum. American Psychologist 69, 364–376.CrossRefGoogle ScholarPubMed
Lazenby, M, Ercolano, E, Schulman-Green, D, et al. (2012) Validity of the end-of-life professional caregiver survey to assess for multidisciplinary educational needs. Journal of Palliative Medicine 15, 427–431.CrossRefGoogle ScholarPubMed
Luck, GR, Eggenberger, T, Newman, D, et al. (2017) Advance directives in hospice healthcare providers: A clinical challenge. The American Journal of Medicine 130, e487–e489.CrossRefGoogle ScholarPubMed
Nunes, MI and Trovo, MM (2018) Advance directives: advancement for palliative care in Brazil. Hospice & Palliative Medicine International Journal 2, 58–59.CrossRefGoogle Scholar
Paal, P, Brandstötter, C, Lorenzl, S, et al. (2019) Postgraduate palliative care education for all healthcare providers in Europe: Results from an EAPC survey. Palliative and Supportive Care 17, 495–506.CrossRefGoogle ScholarPubMed
Pautex, S, Herrmann, FR and Zulian, GB (2008) Role of advance directives in palliative care units: a prospective study. Palliative Medicine 22, 835–841.CrossRefGoogle ScholarPubMed
Peicius, E, Blazeviciene, A and Kaminskas, R (2017) Are advance directives helpful for good end of life decision making: A cross sectional survey of health professionals. BMC Medical Ethics 18, 40.CrossRefGoogle ScholarPubMed
Portugal (2012) Lei 25/2012. Available at: http://dre.pt/pdf1sdip/2012/07/13600/0372803730.pdf (accessed January 14, 2020).Google Scholar
Portugal (2019) National Health Service. Testamento Vital - 24.400 registados. 2019. Available at: https://www.sns.gov.pt/noticias/2019/03/06/testamento-vital-24-400-registados/ (accessed January 14, 2020).Google Scholar
Ryan, K, Connolly, M, Charnley, K, et al. (2014) Palliative care competence framework steering group. In Palliative Care Competence Framework. Dublin: Health Service Executive. pp. 156–169.Google Scholar
Simon, ST, Ramsenthaler, C, Bausewein, C, et al. (2009) Core attitudes of professionals in palliative care: A qualitative study. International Journal of Palliative Nursing 15, 405–11.CrossRefGoogle ScholarPubMed
Spain (2002) Govierno. LEY 41/2002, de 14 de noviembre. Básica reguladora de la autonomía del paciente y de derechos y obligaciones en materia de información y documentación clínica. Available at: https://www.boe.es/eli/es/l/2002/11/14/41/com (accessed January 14, 2020).Google Scholar
Thompson, TD, Barbour, RS and Schwartz, L (2003) Health professionals’ views on advance directives: A qualitative interdisciplinary study. Palliative Medicine 17, 403–409.CrossRefGoogle ScholarPubMed
United States of America (1990). Patient Self Determination Act of 1990. Available at: https://www.congress.gov/bill/101st-congress/house-bill/4449/text (accessed January 14, 2020).Google Scholar
Van Scoy, LJ, Howrylak, J, Nguyen, A, et al. (2014) Family structure, experiences with end-of-life decision making, and who asked about advance directives impacts advance directive completion rates. Journal of Palliative Medicine 17, 1099–1106.CrossRefGoogle ScholarPubMed
von Elm, E, Altman, DG, Egger, M, et al. (2008) The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) statement: Guidelines for reporting observational studies. Journal of Clinical Epidemiology 61, 344–349.CrossRefGoogle ScholarPubMed
White, B, Tilse, C, Wilson, J, et al. (2014) Prevalence and predictors of advance directives in Australia. Internal Medical Journal 44, 975–980.CrossRefGoogle ScholarPubMed
Wiseman, M (2017) Palliative care dentistry: Focusing on quality of life. Compendium of Continuing Education in Dentistry 38, 529–534.Google ScholarPubMed
Yadav, KN, Gabler, NB, Cooney, E, et al. (2017) Approximately one in three us adults completes any type of advance directive for end-of-life care. Health Affairs 36, 1244–1251.CrossRefGoogle ScholarPubMed