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Impact on women who care for those with schizophrenia

Published online by Cambridge University Press:  02 January 2018

Marcia Scazufca
Affiliation:
Department of Psychology, Institute of Psychiatry, De Crespigny Park, London SE5 8AF
Elizabeth Kuipers*
Affiliation:
Department of Psychology, Institute of Psychiatry, De Crespigny Park, London SE5 8AF
*
Correspondence
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Abstract

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This study examined the impact of caring on women who were primary care-givers to those with schizophrenia. From the 46 women and 21 men carers assessed for the study, women were considered primary care-givers more often than men (83% v. 57%). Higher levels of burden among women primary carers were associated with living with patients, and more hours in contact with them. Worse perception of patients' social functioning was associated with higher levels of burden. The findings of the study showed that women primary carers have particular needs, and services should consider how to provide support for them in their multiple roles, and over longer periods of time.

Type
Women's Mental Health
Creative Commons
Creative Common License - CCCreative Common License - BY
This is an Open Access article, distributed under the terms of the Creative Commons Attribution (CC-BY) license (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
Copyright
Copyright © 1997 The Royal College of Psychiatrists

References

American Psychiatric Association (1987) Diagnostic and Statistical Manual of Mental Disorders (3rd edn. revised) (DSM–III–R). Washington, DC: APA.Google Scholar
Biegel, D. E., Milligan, S. E., Putnam, P. L., et at (1994) Predictors of burden among lower socioeconomic status caregivers of persons with chronic mental illness. Community Mental Health Journal, 30, 473494.Google Scholar
Brewin, C. R., Wing, J. K., Mangen, S. P., et al (1987) Principles and practice of measuring needs in the long-term mentally ill: the MRC Needs for Care Assessment. Psychological Medicine, 17, 971981.CrossRefGoogle ScholarPubMed
Brewin, C. R., Veltro, F., Wing, J. K., et al (1990) The assessment of psychiatric disability in the community. A comparison of clinical, staff, and family interviews. British Journal of Psychiatry, 157, 671674.Google Scholar
Carpentier, N., Lesage, A., Goulet, J., et al (1992) Burden of care of families not living with young schizophrenic relatives. Hospital and Community Psychiatry, 43, 3843.Google Scholar
Creer, C. & Wing, J. K. (1975) Living with a schizophrenic patient. British Journal of Hospital Medicine, 14, 7382.Google Scholar
Deasy, L. S. & Quinn, O. W. (1955) The wife of the mental patient and hospital psychiatrist. Journal of Social Issues, 11, 4960.Google Scholar
Gibbons, J. S., Horn, S. H., Powell, J. M., et al (1984) Schizophrenic patients and their families: a survey in a psychiatric service based on a DGH unit. British Journal of Psychiatry, 144, 7077.CrossRefGoogle Scholar
Grad, J. & Sainsbury, P. (1968) The effects that patients have on their families in the community care and a control psychiatric service: a two year follow-up. British Journal of Psychiatry, 114, 265278.Google Scholar
Kuipers, L., MacCarthy, B., Hurry, J., et al (1989) Counselling the relatives of the long-term adult mentally ill. II. A low-cost supportive model. British Journal of Psychiatry, 154, 775782.CrossRefGoogle Scholar
MacCarthy, B., Lesage, A., Brewin, C. R., et al (1989) Needs for care among the relatives of long-term users of day care. Psychological Medicine, 19, 725736.Google Scholar
Melzer, D., Hale, A. S., Malik, S. J., et al (1991) Community care for patients with schizophrenia one year after hospital discharge. British Medical Journal, 303, 10231026.CrossRefGoogle ScholarPubMed
Platt, S. (1985) Measuring the burden of psychiatric illness on the family: an evaluation of some rating scales. Psychological Medicine, 15, 383393.Google Scholar
Platt, S., Weyman, A., Hirsch, S., et al (1980) The Social Behavior Assessment Schedule (SBAS): rationale, contents. scoring and reliability of a new interview schedule. Social Psychiatry, 15, 4355.Google Scholar
Scazufca, M. & Kuipers, E. (1996) Links between expressed emotion and burden of care in relatives of patients with schizophrenia. British Journal of Psychiatry, 168, 580587.Google Scholar
Stevens, B. C. (1972) Dependence of schizophrenic patients on elderly relatives. Psychological Medicine, 2, 1732.CrossRefGoogle ScholarPubMed
Tessler, R. & Gamache, G. (1994) Continuity of care, residence, and family burden in Ohio. Milbank Quarterly, 72, 149169.Google Scholar
Thompson, E. H. & Doll, W. (1982) The burden of families coping with the mentally ill: an invisible crisis. Family Relations, 35, 379389.Google Scholar
Thurer, S. L. (1983) Deinstitutionalization and women: where the buck stops. Hospital and Community Psychiatry, 34, 11621163.Google Scholar
Vaughn, C. E. & Left, J. P. (1976) The measurement of expressed emotion in the families of psychiatric patients. British Journal of Social and Clinical Psychology, 15, 157165.Google Scholar
Wykes, T. & Sturt, E. (1986) The measurement of social behaviour in psychiatric patients: an assessment of the reliability and validity of the SBS schedule. British Journal of Psychiatry, 148, 111.Google Scholar
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