Hostname: page-component-cd9895bd7-7cvxr Total loading time: 0 Render date: 2024-12-28T03:08:58.940Z Has data issue: false hasContentIssue false
  • English
  • Français

Self-reported outcome measures in the health of older people: from research to standard clinical practice

Published online by Cambridge University Press:  08 June 2011

Yasser El Miedany  and
Mathias Toth
Yasser El Miedany*
Affiliation:
Darent Valley Hospital, Dartford, UK Faculty of Medicine, Ain Shams University, Cairo, Egypt
Mathias Toth
Affiliation:
Darent Valley Hospital, Dartford, UK
*
Address for correspondence: Dr Y. El Miedany, Consultant Rheumatologist, Darent Valley Hospital, Dartford, Kent DA2 8DA, UK. Email: yasser_elmiedany@yahoo.com
Get access Rights & Permissions [Opens in a new window]

Summary

Ageing is creating policy challenges for most developed countries and increasing the pressure on health and social care systems. The health status of patients is best described based on their own reports and quantitative data concerning factors such as functional disability, psychological status, pain, falls or cardiovascular risk, are critical to follow changes in patients’ condition and response to therapy. Standardized information concerning health status and co-morbidity risks can be collected easily and effectively from a ‘patient reported outcome measures (PROMs) questionnaire’ completed by the patient. Such data allow accurate description, months or years later, of changes in status. Without such records, neither the patient nor the health professional can remember the patient's earlier status reliably. This article will discuss the concept of PROMs and how they can be implemented into standard clinical practice.

Keywords

gerontologyPROMspatient reported outcomefalls risk
Type
Psychological and social gerontology
Information
Reviews in Clinical Gerontology , Volume 21 , Issue 4 , November 2011 , pp. 361 - 368
Copyright
Copyright © Cambridge University Press 2011

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

1Phillips, RS, Hamel, MB, Covinsky, KE, Lynn, J. Findings from SUPPORT and HELP. An introduction. Study to understand prognoses and preferences for outcomes and risks of treatment. Hospitalized Elderly Longitudinal Project. J Am Geriatr Soc 2000; 48: S1–5.Google ScholarPubMed
2Schulz, R, Newsom, J, Mittelmark, M, Burton, L, Hirsch, C, Jackson, S. Health effects of caregiving: The caregiver health effects study: An ancillary study of the Cardiovascular Health Study. Ann Behav Med 1997; 19: 110–16.CrossRefGoogle ScholarPubMed
3Schulz, R, Beach, S. Caregiving as a risk factor for mortality. The caregiver health effects study. JAMA 1999; 282: 2215–19.CrossRefGoogle ScholarPubMed
4Field, MJ, Cassel, CK (eds). Approaching Death. Improving care at the end of life. Washington, DC: National Academy Press, 1997.Google Scholar
5Cleeland, CS. Cross-cutting research issues. A research agenda for reducing distress of patients with cancer. In Foley, K, Gelband, H (eds). Improving Palliative Care for Cancer. Washington, DC: National Institute of Medicine, 2001; pp. 233–74.Google Scholar
6Department of Health. High Quality Care for All: NHS Next Stage Review Final Report. London, Department of Health, June 2008, chapter 4. Available at: http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_092625.pdf (accessed 9 April 2011).Google Scholar
7Van Tubergen, A, Debats, I, Ryser, L. The use of numerical rating scale as an answer modality in ankylosing spondylitis specific questionnaires. Arthritis Care Res 2002; 47: 242–48.CrossRefGoogle ScholarPubMed
8Idler, EL, Benyamini, Y. Self-rated health and mortality: A review of twenty-seven community studies. J Health Soc Behav 1997; 38: 21–37.CrossRefGoogle ScholarPubMed
9Idler, EL. Self-assessments of health: the next stage of studies. Res Aging 1999; 21: 387–91.CrossRefGoogle Scholar
10Strawbridge, WJ, Wallhagen, MI. Self-rated health and mortality over three decades: results from a time-dependent covariate analysis. Res Aging 1999; 21: 402–16.CrossRefGoogle Scholar
11Schnittker, J. When mental health becomes health: age and the shifting meaning of self-evaluations of general health. Milbank Q 2005; 83: 397–423.CrossRefGoogle ScholarPubMed
12Pincus, T, Callahan, LF, Sale, WG, Brooks, AL, Payne, LE, Vaughn, WK. Severe functional declines, work disability, and increased mortality in seventy-five rheumatoid arthritis patients studied over nine years. Arthritis Rheum 1984; 27: 864–72.CrossRefGoogle ScholarPubMed
13Palmer, D, El Gaafary, M, El Miedany, Y. Improving patient care: measurement of outcome in rheumatoid arthritis. Br J Nurs 2007; 16: 1010–16.Google ScholarPubMed
14Mossey, JM, Shapiro, E. Self-rated health: A predictor of mortality among the elderly. Am J Public Health 1982; 72: 800–8.CrossRefGoogle Scholar
15Picavet, HSJ, Hazes, JMW. Prevalence of self-reported musculoskeletal disease is high. Ann Rheum Dis 2003; 62: 644–50.CrossRefGoogle ScholarPubMed
16Hitchcock, NP, Williams, JW, Unutzer, J. Depression and comorbid illness in elderly primary care patients: impact on multiple domains of health status and well being. Ann Fam Med 2004; 2: 555–62.Google Scholar
17Schaardenburg, D, Van den Brande, KJ, Lighart, GJ, Breedveld, FC, Hazes, JM. Musculoskeletal disorders and disability in persons aged 85 and older: a community survey. Ann Rheum Dis 1994; 53: 807–11.CrossRefGoogle Scholar
18Michet, CJ, Evans, JM, Fleming, KC, O'Duffy, JD, Jurisson, ML, Hunder, GG. Common rheumatologic diseases in elderly patients. Mayo Clin Proc 1995; 70: 1205–14.CrossRefGoogle ScholarPubMed
19Denham, MJ, Barnett, NL. Drug therapy and the older person. Role of the pharmacist. Drug Saf 1998; 19: 243–50.CrossRefGoogle ScholarPubMed
20Palmer, D, El Miedany, Y. Self-helplessness in arthritis: an important but overlooked index. Br J Nurs 2010; 19: 965–71.Google Scholar
21Anderson, J, Sayles, H, Curtis, J, Wolfe, F, Michaud, K. Converting Modified Health Assessment Questionnaire (HAQ), Multidimensional HAQ, and HAQII Scores into original HAQ scores using models developed with a large cohort of rheumatoid arthritis patients. Arthritis Care Res 2010; 62: 1481–88.CrossRefGoogle ScholarPubMed
22El, Miedany, Palmer, D, Youssef, S, El Gaafary, M. Toward unifying functional disability measurement: interconversion of HAQ and the combined inflammatory arthritis questionnaire for functional disability. Rheumatology 2011; 50 (suppl 3): iii93–104.Google Scholar
23El Miedany, Y, El Gaafary, M, Toth, M. Falls risk assessment score (FRAS): time to rethink. J Clin Gerontol Ger 2011; 2: 21–26.Google Scholar
24El Miedany, Y, Toth, M. Osteoporosis, fracture prevention and falls risk assessment – closing the gap between treatment guidelines and clinical practice. Eur Musculoskel Rev 2011; 6: 14–17.Google Scholar
25El Miedany, Y, Palmer, D, El Gaafary, M, Toth, M. Gerontorheumatology: Do we need a special outpatient service? A comparative study. Ann Rheum Dis 2009; 68 (SIII): 571.Google Scholar
26El, Miedany, Palmer, D, Toth, M. Further analysis of helplessness measurement in inflammatory arthritis/spondyloarthritis: the development of the modified rheumatology attitude index. Rheumatology 2010; 49 (suppl 1): i162.Google Scholar
27Wood, D, Wray, R, Poulter, N et al. Joint British societies’ guidelines on prevention of cardiovascular disease in clinical practice. Heart 2005; 91 (suppl V): v1–52.Google Scholar
28El Miedany, Y, El Gaafary, M, Youssef, S, Palmer, D. Incorporating patient reported outcome measures in clinical practice: development and validation of a questionnaire for inflammatory arthritis. Clin Exp Rheum 2010; 28: 734–44.Google ScholarPubMed
29Palmer, D, El Gaafary, M, El Miedany, Y. Improving patient care: measurement of outcome in rheumatoid arthritis. Br J Nurs 2007; 16: 1010–15.Google ScholarPubMed
30Sutton, E. Patient joint counts in rheumatoid arthritis: Cents-ible or cents-less. J Rheumatol 2007; 34: 1212–13.Google ScholarPubMed
31Levy, G, Cheetham, C, Cheatwood, A, Burchette, R. Validation of patient-reported joint counts in rheumatoid arthritis and the role of training. J Rheumatol 2007; 34: 1261–65.Google ScholarPubMed
32Palmer, D, El Miedany, Y. EROMIA in inflammatory arthritis: the next step in standard practice.Br J Nurs 2010; 19: 42–45.CrossRefGoogle ScholarPubMed
33El Miedany, Y, El Gaafary, M, Palmer, D. Assessment of the utility of the visual feedback in the treatment of early rheumatoid arthritis: A pilot study. Rheumatology 2011; 50 (suppl 3): iii93–104.Google Scholar