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In 2022, assisted suicide (AS) was legalized in Austria. We aimed to investigate the experiences and attitudes of palliative care (PC) and hospice nurses toward AS in Austria after the first year of implementation of the new law.
Methods
A cross-sectional survey was distributed online to nurses in every known specialized and general hospice and PC units in Austria (n = 255 units). The questionnaire included sociodemographic characteristics, the Assisted Suicide Attitude Scale, the Comfort Discussing Assisted Suicide Scale, and questions on recent experiences with AS requests. We used Spearman’s correlation coefficient for determining associations between sociodemographic characteristics and attitudes toward AS, as well as comfort discussing AS. For comparison of frequencies, we applied ꭓ2 tests. We computed a linear regression model to examine predictors for attitudes toward AS.
Results
The total sample were N = 280 nurses. More than half (61.2%) indicated that they had cared for a patient who expressed a wish for AS within the first year of implementation. Though responses varied widely, more nurses expressed support for AS than those were opposed (50.36% and 31.75%, respectively). Factors that statistically contributed to more reluctance toward AS in the regression model were older age, religiousness, and experience of working with patients expressing a wish for AS.
Significance of results
This work provides valuable insight into nurses’ perceptions toward the legislation of AS in the first year since the new law was passed. The results can inform the future development of the AS system and support for nurses in end-of-life care, and critically contribute to international discussions on this controversial topic.
Medical assistance in dying (MAiD) (which includes euthanasia and assisted suicide) is available in an increasing number of countries. In Belgium, The Netherlands and Switzerland (and was due to be implemented in Canada from 2024) eligibility includes mental suffering in the absence of any physical disorder. There are particular ethical and legal issues when considering MAiD for those involuntarily detained in prisons and hospitals. We describe four recent cases that illustrate these complexities, and highlight issues of equivalence of healthcare and self-determination against concerns about the criteria for determining eligibility of those with non-terminal conditions as well as the objections raised by victims and families and the demands for justice.
This chapter discusses whether if Medical Assistance in Dying (MAiD) is available, people working in suicide prevention should continue to strive to prevent all suicides, or if there are some circumstances where we should abstain from preventing a death by suicide, or even encourage people to seek MAiD. Despite mandates and ethical standards to help all suicidal people, in practice, suicide workers face moral dilemmas in some circumstances. Our analysis shows the proposals that present a clear distinction between MAiD and suicide are empirically unjustified, and people requesting MAiD could benefit from suicide prevention interventions that respect autonomy. We conclude that there are no ethically justifiable distinctions between how to respond to people requesting MAiD and suicidal individuals.
A minority of countries or parts of countries have thus far accepted the legal practice of Medical Assistance in Dying (MAiD) (euthanasia and assisted suicide), but legalising MAiD is expanding worldwide. More countries are debating legalisation of euthanasia or assisted suicide, but the nature of laws and legal practices vary greatly and both ethical and empirical assessments of current practices are the subject of much controversy. We examine the premises and evidence in the rhetoric of assisted suicide and euthanasia. We illustrate the trend with the rationale and political concerns that led to the legalisation of euthanasia in Quebec as “Medical Assistance in Dying” (MAiD), and its subsequent expansion in Canada to include persons who do not suffer from a terminal illness, including persons who suffer only from a mental illness. The values of autonomy, “dying with dignity“ and their ethical and legal bases for justifying MAiD are critically analysed. The implications of practicing euthanasia, as opposed to assisted suicide are discussed, as well as proposals for a duty to die in some circumstances. We conclude by proposing that besides debating the legal, moral and practical concerns with MAiD, we should also focus on the psychological roots of our fears and ways to reduce those fears in individuals and societies.
This chapter summarises the book, focusing on our analyses of ethical challenges based upon the three core ethical perspectives we presented in Chapter 1: moralist, libertarian and relativist. The moralists, who contend that suicide is always unacceptable and must be prevented, have occupied the mainstream position through a long period of history. Attacks on the moralistic point of view were highlighted in the twentieth century by the libertarian writings of such anti-psychiatrists as Szasz, who argued that all suicide prevention should be abandoned, and thereafter by more philosophical critics such as Foucault. Today, relativist approaches often predominate, where some people are seen as needing suicide prevention and with others, their wanting to die is ignored or facilitated, as in the case of Medical Assistance in Dying (MAiD), euthanasia and assisted suicide. Suicide prevention should be seen as a central issue that has to be assessed alongside the anti-paternalism promotion of freedom of choice. The concern of this book has not been to find a middle ground. We have sought a social and moral conscience that mandates a duty to respond to suicide and the desire to end life prematurely, first and foremost, by responding to cries for help, rather than to a clarion call for freedom
With growing numbers of countries legalizing euthanasia or assisted suicide (EAS), there is a debate as to whether EAS should also be available to people with severe, treatment-resistant mental illness. Excluding mental illness as a legitimate reason to receive EAS has been framed as discriminating against people with mental illness.
Aims
We examine whether approval or opposition to psychiatric EAS are related to stigma toward people with mental illness.
Method
We asked a representative sample of the general population in Germany (N = 1515) whether they would approve of EAS for someone with severe, treatment-resistant mental illness. Stigma was assessed with the Value-Based Stigma Inventory (VASI), addressing rejection of people with mental illness in relation to different personal values.
Results
A total of 19% of the German population approved of psychiatric EAS. Higher stigma scores were associated with greater approval of EAS (Spearman rank correlation coefficient, 0.28; P < 0.001). This association held true when controlling for sociodemographic variables. It was strongest for stigma related to perceived threats to one's security, reputation and meritocratic values.
Conclusions
Our results highlight that, although opposing psychiatric EAS is sometimes framed as discriminatory, approval of psychiatric EAS might also carry hidden, stigmatising motives. To avoid any unintended negative consequences for people with severe, treatment-resistant mental illness, any legislation on psychiatric EAS needs to be crafted with particular caution.
This chapter documents the array of tools and techniques judges use when carrying out their adjudicative role as part of a broader collaborative enterprise. Whilst the theoretical literature often presents courts as speaking in prospective, prescriptive, and peremptory terms, this chapter uncovers a vast array of collaborative devices which courts use in subtle but significant ways. Presenting the courts ’as catalyst’, and foregrounding the idea of ’judge as nudge’, this chapter explores the varied phenomena of judicial alerts, prods and pleas, soft suggestions, and judicial advice. It uses the controversial Nicklinson case on assisted suicide as a vehicle through which to examine collaborative constitutionalism before the courts. The chapter concludes by arguing that the devices canvassed in this chapter are best conceived as collaborative devices, rather than the ’passive virtues’ defended in Alexander Bickel’s canonical account of adjudication by the US Supreme Court.
This chapter discusses the right to life and the prohibition of the death penalty as laid down in the European Convention on Human Rights, in Council of Europe instruments, in EU law and in international instruments. It also pays attention to matters such as the beginning and end of life and preventive and investigative positive obligations. In the final section, a short comparison between the different instruments is made.
It is often argued by health professionals working within the field of palliative care that palliative care and euthanasia/assisted suicide are incompatible. Across the literature, this claim is grounded on the three claims that (1) palliative care and euthanasia/assisted suicide have different aims, (2) euthanasia/assisted suicide is at odds with the doctor’s fundamental role as a healer, and (3) euthanasia/assisted suicide constitutes patient abandonment. Furthermore, even if palliative care and euthanasia/assisted suicide are compatible, it is often argued that the availability of palliative care renders euthanasia/assisted suicide redundant. This depends on two claims that (1) palliative care is always available and effective, and (2) palliative care is always preferable to euthanasia/assisted suicide. This article argues that all of these claims are false, ultimately aiming to establish that palliative care and euthanasia/assisted suicide are complementary rather than mutually exclusive.
Medical assistance in dying (MAID) is legal in Canada but cannot be accessed through an advance request. Some data suggest that informal care-givers of persons with dementia support the legalisation of advance requests for MAID. Opponents argue that care-givers' support is due to society's failure to address their well-documented burden and unmet needs. To our knowledge, this assumption has never been tested. To fill this knowledge gap, we conducted a survey among 204 Canadian informal care-givers of persons with dementia to (a) elicit their attitudes towards allowing no longer competent adults to access MAID through an advance request, and (b) test the hypothesis that attitudes are in part driven by the level of burden experienced by care-givers and unmet needs for support. Attitudes were elicited with a clinical vignette involving a woman with Alzheimer's disease who requests MAID while still competent, or through an advance request for the time after she would lose decisional capacity. Informal care-givers' support for MAID ranged from 60 per cent in the scenario where the person is still competent and likely has several more years to live, to 87 per cent when she is depicted as no longer competent, in severe distress and close to death. Quality-of-life considerations and the value of self-determination were key arguments in support of legalising advance requests for MAID. Using multivariable logistic regression, we found no evidence that burden and unmet support needs influence attitudes towards advance requests for MAID, after controlling for other determinants. These findings contribute new insights into people's attitudes towards the sensitive issue of whether MAID should be extended to persons with dementia-induced decisional incapacity.
Several countries have legalized euthanasia on the basis of medically diagnosable suffering over the last decennial; the criteria to which they adhere differ. The topic of this article is euthanasia on the basis of existential suffering. This article presents a recent proposal to legalize euthanasia for people who experience such suffering and then discusses the issue of what the value of life may be, and whether the standard that life is normally something positive should be accepted. This provides the foundation to answer the question of whether euthanasia on the basis of existential suffering should be allowed.
Irremediability is a key requirement for euthanasia and assisted suicide for psychiatric disorders (psychiatric EAS). Countries like the Netherlands and Belgium ask clinicians to assess irremediability in light of the patient's diagnosis and prognosis and ‘according to current medical understanding’. Clarifying the relevance of a default objective standard for irremediability when applied to psychiatric EAS is crucial for solid policymaking. Yet so far, a thorough examination of this standard is lacking.
Methods
Using treatment-resistant depression (TRD) as a test case, through a scoping review in PubMed, we analyzed the state-of-the-art evidence for whether clinicians can accurately predict individual long-term outcome and single out irremediable cases, by examining the following questions: (1) What is the definition of TRD; (2) What are group-level long-term outcomes of TRD; and (3) Can clinicians make accurate individual outcome predictions in TRD?
Results
A uniform definition of TRD is lacking, with over 150 existing definitions, mostly focused on psychopharmacological research. Available yet limited studies about long-term outcomes indicate that a majority of patients with long-term TRD show significant improvement over time. Finally, evidence about individual predictions in TRD using precision medicine is growing, but methodological shortcomings and varying predictive accuracies pose important challenges for its implementation in clinical practice.
Conclusion
Our findings support the claim that, as per available evidence, clinicians cannot accurately predict long-term chances of recovery in a particular patient with TRD. This means that the objective standard for irremediability cannot be met, with implications for policy and practice of psychiatric EAS.
Circumvention tourism is a form of medical tourism that occurs when individuals travel abroad to receive treatments that are a prohibited in their home county but permitted in a destination country. This paper explores this question: Should individuals be punished by their home countries for engaging in circumvention tourism? Guido Pennings, Richard Huxtable, and I. Glenn Cohen have all argued for what I call “formalist accounts” of circumvention tourism. That is, they try to show that certain types of circumvention tourism should or should not be punished in principle. Against them, I show that questions about circumvention tourism’s punishability cannot be answered in the abstract. Whether individuals should be punished depends too much on the prima facie morality of the treatments being performed and the prohibitions being circumvented.
The chapter focuses the attention, firstly, on the origins of the right to die and its intersections with the development of life-maintaining medical technologies. Then, the analysis goes on by distinguishing between a right to refusal (current or by an advance directive) medical supports, and the recognition of some form of active aid in suiciding, taking into account the principal elements of the American, Canadian, European and Chinese legal frameworks.
On February 26, 2020, the German Federal Constitutional Court (BVerfG) declared—for the first time in its history—a criminal prohibitory law (strafrechtliche Verbotsnorm) from the German Criminal Code null and void.1 The provision in question—Section 217 of the German Criminal Code—dealt with the controversial issue of assisted suicide. This case study will briefly examine the previous regulation pertaining to assisted suicide in Germany under Section 217, before scrutinizing its subsequent unconstitutionality as a consequence of the BVerfG’s landmark decision. In order to do so, this article will explore the legal background of the decision, the fundamental rights which were held to have been infringed by Section 217, and propose potential ways of regulating assisted suicide in Germany in the future.
UK law on assisted suicide is stuck in a cycle: courts uphold its illegality and defer to parliaments to enact change, but parliaments are reluctant to cross that threshold. This chapter deconstructs the case law on maintaining the status quo and constitutionally deferring to the legislature. It also considers reasons why legislators have declined to enact legal reform – autonomy issues, safeguards, palliative alternatives and the slippery slope. It looks at three jurisdictions in which this matter is overtly constitutional, and finds similarities among the criminal provisions that litigants sought to overturn and the rights on the basis of which they were overturned, leading to legislative change. The contested criminal provisions reflect the Suicide Act 1961 and the constitutional provisions against which they were considered to mirror the Human Rights Act. Currently, the only evidence of escape from liminality is a de facto policy of non-prosecution. With the UK Supreme Court poised to declare incompatibility with the European Convention on Human Rights, the ground has been laid for a constitutional answer that forces the legislature’s hand and enables a move beyond liminality.
In 1993, Sue Rodriguez was unsuccessful in her efforts to persuade the Supreme Court of Canada that the Canadian Criminal Code prohibitions on voluntary euthanasia and assisted suicide violated her rights under the Canadian Charter of Rights and Freedoms. Some twenty years later, in February 2015, the Supreme Court of Canada unanimously struck down the very same prohibitions in Carter v. Canada (Attorney General). The next year, the Canadian Parliament passed Bill C-14 – An Act to amend the Criminal Code and to make related amendments to other Acts (medical assistance in dying). Medical assistance in dying is now legal in Canada and it has become an illuminating case study for other jurisdictions contemplating assisted dying. This chapter describes the journey from Rodriguez to Carter to Bill C-14 and reflects on the lessons to be learned from the two interconnected yet distinct pathways to law reform taken in Canada (a court challenge and federal legislation). While there are obviously critical differences between jurisdictions such that the Canadian path cannot simply be replicated, this chapter draws out transferable lessons about law reform in this area.
An Act Respecting End of Life Care came into force in the province of Québec, Canada on 10 December 2015. This new law aimed to ensure that all adults with decisional capacity in Québec had access to the full range of health care options at the end of their lives including for the first time, medical assistance in dying (euthanasia). This chapter describes how the province’s medical regulator, the Collège des Médecins du Québec (CMQ), laid the groundwork for the passage of this law. Although not necessarily setting out to play a role in law reform as such, the CMQ’s proposal to frame assisted dying as a therapeutic act enabled the legislator to introduce a bill which already had the support of the medical profession as well as a regulatory structure in place to guide practice. This allowed the regulator to be more than a stakeholder in a process of law reform but a driver of reform itself.
This chapter describes the content and protection of the right to life with respect to both euthanasia (active and passive, as well as voluntary, non-voluntary, and involuntary) and suicide, including assisted suicide. In most States, euthanasia is punishable as murder. But State practice is evolving, gradually, towards more permissive regulation of either euthanasia or assisted suicide or both.