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Our approach to thriving encompasses not just the growth of individuals but also of collectives. Therefore, when we talk about how people thrive in this chapter and throughout the book, we refer to people in the singular and in the plural. Instead of creating a dichotomy between individual and community, we refer to people as comprising the unique lives of each one of us, the relational bonds that tie us together, and the communities and settings we are a part of. Our definition of thriving acknowledges the primordial role of situational fairness, the phenomenology of worthiness, and the myriad forms of wellness. In other words, thriving consists of context + experiences + outcomes. We submit that the key context impacting our ability to thrive as individuals and collectives is one of fairness. Similarly, we argue that key experiences have to do with mattering and a sense of worth, both of which have to do with feeling valued and opportunities to add value. Finally, we make the point that wellness exists in multiple forms and for people to thrive they should nurture all of them.
This article is about the seminar held at Luiss University in Rome on 17 June 2024. The seminar focused on ‘The End of Christian Democracy: A New Direction for Research’ and was the first milestone and official launch of the PRIN research project ‘The End of Christian Democracy: The Collapse of a Political Dream – Voices from the Margins’, led by a consortium of four universities: Luiss, Roma Tre, Bologna and Suor Orsola Benincasa, Naples.
People with severe mental illness (SMI) are highly vulnerable and more affected by epidemics than the general population. They encounter limited access to care, miss out on infection prevention measures and are more prone to relapses.
Objectives
This study explored the experiences of individuals with SMI and their caregivers in Uganda during the COVID-19 pandemic. Its focus was on the impact of COVID-19 and its response measures on their mental health.
Methods
The study was conducted at three sites; a national referral mental hospital, a regional referral hospital and a district hospital. Participants included persons with SMI, their caregivers and mental health professionals. Data collection involved in-depth interviews, key informant interviews and focus group discussions. Phenomenological thematic analysis was employed.
Results
The key themes identified encompassed challenges in accessing mental health services, disrupted routine care, the impact of lockdown measures and discrimination.
Conclusion
The findings highlight the unique challenges faced by individuals with SMI and their caregivers during the COVID-19 pandemic in Uganda. There is need for interventions focusing on continued access to care, improving information dissemination and addressing the psychological impact of containment measures on people with SMI.
Meeting the needs of people accessing healthcare from ethnic minority (EM) groups is of great importance. An insight into their experience is needed to improve healthcare providers’ ability to align their support with the perspectives and needs of families. This review provides insight into how families from EM backgrounds experience children’s palliative care (CPC) by answering the question, “What are the experiences of EM families of children’s palliative care across developed countries?”
Methods
A systematic search of articles from 6 databases (Scopus, Medline, Web of Science, APA PsycINFO, CINAHL, and Global Health) with no limit to the date of publication. The search was conducted twice, first in June 2022 and again in December 2022. The extracted data were analyzed using thematic synthesis.
Results
Eight studies explored the experiences of families of EM in different high-income countries. Four themes were identified: unmet needs leading to communication gaps, accessibility of hospital services and resources, the attitude of healthcare workers, and the need for survival as an immigrant.
Significance of results
Overall, the study shows EM families rely heavily on healthcare professionals’ cultural competence in delivering palliative care for their children. There is an interplay between EM families’ culture, spiritual ties, communication, and social needs from this review. Understanding how to bridge the communication gap and how families use their culture, faith, and spirituality to manage their pain, and grief and improve their quality of life would be extremely beneficial for healthcare practitioners in increasing their support to EM families accessing CPC.
In the aftermath of earthquakes, the availability of emergency units and operating rooms (OR) in hospitals can make a difference in the survival of those injured. OR professionals’ experience during earthquakes is vital for ensuring safe and effective surgical procedures. This study was conducted to explore perceptions and describe the experiences of OR professionals, aiming to improve OR processes during and after earthquakes.
Methods:
This phenomenological study employed semi-structured interviews to collect qualitative data from 16 OR professionals who experienced the earthquake. Purposeful sampling was utilized for face-to-face interviews, and MAXQDA20 was used for content analysis.
Results:
The primary themes included workplace perspectives, during-earthquake experiences, ethical considerations, and post-earthquake experiences. The workplace was described as unique, dynamic, stressful, and disciplined. Participants experienced fear and panic during the earthquake. Abandoning patients was deemed unethical, resulting in ethical quandaries for professionals when their safety was at risk.
Conclusion:
Participants displayed responsibility and ethical conduct while remaining with the patients during the tremor. Implementing practices is crucial in mitigating fear and chaos and improving information management. As such, it is highly recommended that hospital disaster plans incorporate the active participation of OR professionals.
This is a call to engage with the histories of emotions and the senses, as well as with the new history of experiences, in order to write a gendered history of humanitarian action. This Element challenges essentialist interpretations according to which women have undertaken humanitarian action because of their allegedly compassionate nature. Instead, it shows how humanitarianism has allowed women to participate in international politics by claiming their rights as citizens, struggling against class inequalities, racial segregation and sexual discrimination in the light of disparate feelings such as resentment, hope, trust, shame and indignation. Ultimately, these case studies are understood to represent historically created moral economies of care: distinctive ways of feeling, performing and knowing humanitarianism which have evolved in relation to shifting emotional values associated with what it means to be human. This title is also available as Open Access on Cambridge Core.
This chapter brings central elements of the book to the fore, reflects the need for critical thinking, and problematizes the future of agreement-making and the study thereof. In doing so, it addresses critical questions that run through all chapters of the book: Why does it matter to “be there”? How do I navigate closeness and emotions? Is my data ever complete? What will “being there” mean in the future? Global environmental agreement-making is in constant flux, adapting to changing institutional circumstances, power relations, and new emerging environmental problems. Although the multilateral setting with its “old-fashioned” diplomatic practices and formalities creates the impression of stability, routine, and immutability, there is change and the possibility to do global environmental relations differently. We understand critical scholarship to have a vital role in illuminating enduring power relations and revealing potential openings for change and transformation to ensure agreement-making enables better collective stewardship of the Earth. This aspiration nourished the objective of this book to problematize how and why we conduct research at and on global environmental negotiations and to evaluate and expand the concepts and methods available to further this study. The chapter closes with a reflection on future research questions and themes.
Clinical research provides evidence to underpin and inform advancements in the quality of care, services and treatments. Primary care research enables the general patient population access and opportunities to engage in research studies. Nurses play an integral role in supporting the delivery of primary care research, but there is limited understanding of nurses’ experiences of this role and how they can be supported to facilitate the delivery of research.
Aim:
To explore the experiences of nurses delivering research studies in primary care settings.
Methods:
We identified studies published between 2002 and June 2021 from key electronic databases. A two-level inclusion/exclusion and arbitration process was conducted based on study selection criteria. Data extraction and quality appraisal were performed simultaneously. Data were analysed in the form of a narrative synthesis.
Findings:
The key themes identified included: (1) what nurses value about primary care research and their motivations for study engagement, (2) the role of nurses in research, (3) working with research teams, (4) study training, (5) eligibility screening, data collection and study documentation, (6) nurse/participant dynamic, (7) gatekeeping, (8) relationships with colleagues and impact on recruitment, (9) time constraints and workload demands, and (10) health and safety.
Conclusions:
Nurses are integral to the delivery of research studies in primary care settings. The review highlights the importance of good communication by study teams, timely and study-specific training, and support from colleagues to enable nurses to effectively deliver research in primary care.
Education and child development are intrinsically intertwined. For us, development is not a predetermined unmediated unfolding of moves toward maturity. Rather, development is seen in relation to cultural expectations recognizing the potential agency of the learner in relation to these expectations. Hedegaard’s Wholeness Approach with its three different perspectives, the societal, the institutional practices and the person’s perspective is central to how we understand children’s development. The societal perspective, gives the conditions that a society with it cultural traditions and values create for children’s participation in different institutional practices. The practice perspective focuses on children’s participation in the different activity settings that characterize a given institutional practice like the breakfast and leaving for school setting, and the homework setting in a family. The demands children meet through participation in these settings are the focus for understanding children’s interactions with caregivers and their social situations. The person perspective focuses on the children’s intentions, agency and motive orientations, which may be different for children in different age periods. We have argued that age periods and the demands children meet as they move through different societal practices are crucial for understanding their social situation of development. Vygotsky’s account of the neoformation of higher psychological functions is introduced and how their emergence in a child’s consciousness changes a child’s relation to their environment and in particular their emotional relation to their world.
Many international pension systems have undergone extensive changes over recent decades, associated with a dominant narrative of the need to respond to the pressures of population ageing. This has resulted in an increasing emphasis on curtailing the role of the state and promoting individual responsibility for pension saving. However, there is currently limited research which considers attitudes and expectations surrounding pension developments and, in particular, the role of state pensions. This is despite these factors influencing pension savings behaviour. Existing research suggests that under-saving is most common amongst women (linked to their more fragmented employment histories throughout the lifecourse) and millennials (born in the early 1980s up to the mid- to late 1990s), indicating the importance of better understanding their attitudes and expectations regarding pensions. This article aims to address this knowledge gap by exploring, in the United Kingdom, millennial women's knowledge, attitudes and expectations regarding state pensions, using 45 qualitative interviews and a focus group. The findings demonstrate that millennial women's situation regarding state pensions is characterised by a lack of knowledge, awareness and certainty, which influences their pensions behaviour. It identifies that, in general, pensions were not perceived as a current financial priority, with more immediate priorities taking precedence. Active engagement with pensions and uncertainties throughout the lifecourse, many of which people cannot control, presented a challenge to pension saving. Retirement was often seen as a distinct stage, with participants struggling to visualise their long-term future. The research contributes to the limited international understanding of attitudes towards pension knowledge and expectations, and their links to pension behaviour. It highlights the need for measures to encourage a greater focus on longer-term saving habits, accompanied by a context of collective policy solutions to pension challenges, as opposed to framing pensions in a purely individualised neo-liberal policy framework which adversely impacts on women's pension prospects.
This chapter defines the term new speaker and develops arguments which support the claim that an emergent new perspective on minority language policy and multilingualism poses fresh challenges for official language and educational strategies. It sets forth the approach and methodology of the investigation and describes how data and evidence on language policy and the new speaker phenomenon have been gathered from official publications and an extensive range of interviews with politicians, senior civil servants, academics and civil society activists. Selected features of new speaker profiles are examined, as are the dynamics involved in seeking to integrate into a host community with an emphasis on issues of role models, authenticity, self-confidence, linguistic skills and opportunities to use the target language in safe, breathable spaces.
The imagination depends not on pictures but on experiences. When we imagine something we conjure up past experiences. This explains the vividness of the imagination, and how it can serve as a creative force. Collective imagination relies on movements and on shared props. Historical examples include German nationalism, social movements, the suffragette movement, movements for decolonization. Today we experience many movements only vicariously, for example, as we watch sports.
The coronavirus disease 2019 (COVID-19) has spread rapidly around the world since the initial outbreak in Wuhan, China. With the emergence of the Omicron variant, South Africa is presently the epicentre of the COVID-19 pandemic in sub-Saharan Africa. Healthcare workers have been at the forefront of the pandemic in terms of screening, early detection and clinical management of suspected and confirmed COVID-19 cases. Since the beginning of the outbreak, little has been reported on how healthcare workers have experienced the COVID-19 pandemic in South Africa, particularly within a low-income, rural primary care context.
Methods:
The purpose of the present qualitative study design was to explore primary healthcare practitioners’ experiences regarding the COVID-19 pandemic at two selected primary healthcare facilities within a low-income rural context in KwaZulu-Natal, South Africa. Data were collected from a purposive sample of 15 participants, which consisted of nurses, physiotherapists, pharmacists, community caregivers, social workers and clinical associates. The participants were both men and women who were all above the age of 20. Data were collected through individual, in-depth face-to-face interviews using a semi-structured interview guide. Audio recordings were transcribed verbatim. Data were analysed manually by thematic analysis following Tech’s steps of data analysis.
Results:
Participants reported personal, occupational and community-related experiences related to the COVID-19 pandemic in South Africa. Personal experiences of COVID-19 yielded superordinate themes of psychological distress, self-stigma, disruption of the social norm, Epiphany and conflict of interest. Occupational experiences yielded superordinate themes of staff infections, COVID-19-related courtesy stigma, resource constraints and poor dissemination of information. Community-related experiences were related to struggles with societal issues, clinician-patient relations and COVID-19 mismanagement of patients.
Conclusion:
The findings of this study suggest that primary healthcare practitioners’ experiences around COVID-19 are attributed to the catastrophic effects of the COVID-19 pandemic with the multitude of psychosocial consequences forming the essence of these experiences. Ensuring availability of reliable sources of information regarding the pandemic as well as psychosocial support could be valuable in helping healthcare workers cope with living and working during the pandemic.
Despite the huge effect eating disorders (Eds) have on the lives of sufferers and their families there has been little research on the effect an ED has on siblings even though their lives are repeatedly significantly affected by the situation. It is important to gain more insight into the experiences and needs of siblings as the nature and magnitude of the effect of patients EDs on non-affected siblings is mixed in the current research.
Objectives
To conduct a systematic review allowing an extensive search of the current literature to identify where the current research is lacking. Also, to highlight the need for a greater focus on the effect of EDs on siblings both in research and clinical practice.
Methods
A systematic review is being conducted to gain an understanding of the gaps in the literature.
Results
It is expected that the systematic review will reveal a lack of literature regarding siblings’ experiences of having a brother or sister with an ED. As well as showing the conflicting emotions felt by the siblings, both positive due to the love they feel for their sibling and negative due to the burden they feel.
Conclusions
By raising awareness of the needs of non-affected siblings this research should have a notable impact on their experiences by highlighting the need for specific interventions and support services as well as education about their siblings’ ED.
In 2006, the United Nations Office on Drugs and Crime in South Asia, in partnership with the Ministry of Home Affairs, Government of India, initiated Project IND/S16. In the beginning, five states were selected to train police officials under the “Strengthening the Law Enforcement Response to Human Trafficking” project. The training program resulted from a study done by two researchers, Dr. P. M. Nair and Shanker Seen. Their study recommended training programs to strengthen the law enforcement response to human trafficking and establish anti-human trafficking units (AHTUs) in India. However, no evaluation of the work of functionaries of AHTUs was done until the authors of this article took the initiative with the support of the Additional Director General of Police of Gujarat to identify the major problems in AHTUs at the grassroots level. Their exploratory research covered the 40 AHTUs from all 33 districts of Gujarat, focusing on the experiences and opinions of 214 police authorities (i.e. police inspectors, police sub-inspectors, assistant sub-inspectors, constables, and Lok Rakshak (public guards)) officially assigned to the AHTUs of Gujarat. This article summarizes the research and is based on experiences documented while collecting information in the field.
Using a meta-analytic approach, we evaluate the association between socioeconomic status (SES) and children's experiences measured with the Language Environment Analysis (LENA) system. Our final analysis included 22 independent samples, representing data from 1583 children. A model controlling for LENATM measures, age and publication type revealed an effect size of rz= .186, indicating a small effect of SES on children's language experiences. The type of LENA metric measured emerged as a significant moderator, indicating stronger effects for adult word counts than child vocalization counts. These results provide important evidence for the strength of association between SES and children's everyday language experiences as measured with an unobtrusive recording analyzed automatically in a standardized fashion.
This scoping review describes the existing literature which examines the breadth of healthcare providers’ (HCP's) experiences with the provision of medical assistance in dying (MAiD).
Method
This study employed a scoping review methodology: (1) identify research articles, (2) identify relevant studies, (3) select studies based on inclusion/exclusion criteria, (4) chart the data, and (5) summarize the results.
Results
In total, 30 papers were identified pertaining to HCP's experiences of providing MAiD. Fifty-three percent of the papers were from Europe (n = 16) and 40% of studies were from the USA or Canada (n = 12). The most common participant populations were physicians (n = 17) and nurses (n = 12). This scoping review found that HCPs experienced a variety of emotional responses to providing or providing support to MAiD. Some HCPs experienced positive emotions through helping patients at the end of the patient's life. Still other HCPs experienced very intense and negative emotions such as immense internal moral conflict. HCPs from various professions were involved in various aspects of MAiD provision such as responding to initial requests for MAiD, supporting patients and families, nursing support during MAiD, and the administration of medications to end of life.
Significance of results
This review consolidates many of the experiences of HCPs in relation to the provision of MAiD. Specifically, this review elucidates many of the emotions that HCPs experience through participation in MAiD. In addition to describing the emotional experiences, this review highlights some of the roles that HCPs participate in with relation to MAiD. Finally, this review accentuates the importance of team supports and self-care for all team members in the provision of MAiD regardless of their degree of involvement.
Psychophysics as Mach understood it could be explained in several ways. This reflects the central conundrum that psychophysics held the potential to resolve: the communication of an individual’s subjective experience. This chapter surveys the many ways in which Mach described psychophysical experiences, from demonstrations on his Bösendorfer grand piano to differential equations. These descriptions were often multi-modal, using sound and images in tandem. Mach also employed analogies, mathematical derivations, and descriptions of the subjective experience of such phenomena as accommodation, acceleration, and visual after-images. A comparison of how Mach discusses psychophysics in popular lectures, scientific publications, and personal correspondence suggests that he made a number of assumptions about how best to communicate scientific ideas to different audiences. Further, this chapter argues that Mach’s techniques of presentation/argumentation, celebrated both in his time and subsequently, went far towards cultivating a psychophysical imaginarium similar to a mind’s eye. That is, by asking his readers or listeners to imagine specific psychophysical experiences, Mach established the broad outlines of a new way of thinking about subjectivity.
Persistent inequalities exist in how individuals from minority ethnic groups access mental health care. A failure to investigate how these inequalities are experienced and what they mean to people with psychosis has privileged professional narratives and hindered our understanding of how they are sustained and what could be done to reduce them. The aim of this study was to investigate the long-term experience of living with psychosis and navigating mental health services within different ethnic groups.
Method
Our approach was informed by work on narrative analysis and prioritised the meaning that mental health services held for participants. In-depth interviews with 17 black Caribbean, 15 white British and 3 non-British white people with psychosis as part of AESOP-10, a 10-year follow-up of an ethnically diverse cohort of individuals with first-episode psychosis in the UK. Thematic narrative analysis was used to examine experiences at the personal level within and then across the individual accounts.
Results
Service users shared many defining experiences and narratives frequently returned to individuals' first contact with mental health services, first hospital admission, the experience of impatient wards, and the meaning of medication and diagnosis in their lives. We found that experiences of powerlessness punctuated the journey through mental health services and this appeared to dominate the accounts of black Caribbean, and to a lesser extent, white British participants. The findings reveal how negative expectations and experiences of mental health services are compounded over time, creating a vicious cycle of disempowerment and mistrust that manifests for many in resistance to – or at the best passive acceptance of – intervention by mental health services. High levels of need, coupled with alienation from services, contributed to negative patterns of service use among black Caribbean participants. White participants recounted substantial, though fewer, experiences of disempowerment and more instances of shared decision making that for some helped protect positive aspects of their lives.
Conclusions
Against a background of entrenched social and economic disempowerment, services were experienced as disempowering by many black Caribbean people, compounding and perpetuating a sense of alienation. Concerted efforts by services to more systematically target social needs and to share power through partnership working may reduce the mistrust that many with psychosis feel when entering services and in turn reduce persistent inequalities across ethnic groups.
Over the past few years, much has been written on the changing world of work, with discussions focusing, for instance, on the rise of automation (Spencer 2018), changes in the nature of the employment relationship (Sweet and Meiksins 2013), the (failed) promises of the gig economy (Cant 2019; Wood, Graham, Lehdonvirta & Hjorth 2019) or new ways of collaborating and co-producing (de Vaujany, Leclerq-Vandelannoitte & Holt 2020). Importantly though, these discussions are not novel, neither are the phenomena they seek to describe. The history of work is full of déjà vu. Communities, participatory systems, horizontality, democracy at work and nomadism are far from being new topics per se. In the nineteenth century, the Arts and Crafts Movement, socialist utopian communities, anarchy and Marxism had already involved public debates around these topics (see Granter 2016; Leone and Knauf 2015; Tilly 2019). Yet, there is clearly a renewed interest for these themes in research attempting to grapple with the multifaceted nature and the complex meaning of contemporary work (see for instance Aroles, Mitev & de Vaujany 2019; Fayard 2019; Simms 2019; Susskind 2020).