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Chapter 5 discusses some of the groups of children and young people who are most vulnerable to mental health challenges. These include children and young people with intellectual disabilities; children and young people with physical health difficulties; children and young people with gender identity difficulties and a range of sexual orientations as well as young carers.
To review the literature on the emotional and mental health needs of young carers of parents with mental illness and the extent to which such needs are recognised and supported by professionals. Three databases were systematically searched from 2008 to 2018, and five studies met the inclusion criteria.
Results
The key findings were that young caregivers had a significantly higher dose-response mortality risk than their peers; were at increased risk of mental health difficulties, especially where the ill family member was a parent and had mental illness or misused substances; were overlooked by professionals owing to a lack of awareness; but could derive benefits from their caring role when appropriately supported.
Clinical implications
Young carers are at increased risk regarding emotional and mental health needs; this risk could be mitigated by professionals recognising the young carer's role and including them in their parent's treatment plan.
Children of patients with young onset dementia (YOD) who are confronted with a parent who has a progressive disease, often assist in caregiving tasks, which may have a great impact on their lives. The objective of the present study is to explore the experiences of children living with a young parent with dementia with a specific focus on the children's needs.
Methods:
Semi-structured interviews with 14 adolescent children between the ages of 15 and 27 years of patients with YOD were analyzed using inductive content analysis. Themes were identified based on the established codes.
Results:
The emerging categories were divided into three themes that demonstrated the impact of dementia on daily life, different ways of coping with the disease, and children's need for care and support. The children had difficulties managing all of the responsibilities and showed concerns about their future. To deal with these problems, they demonstrated various coping styles, such as avoidant or adaptive coping. Although most children were initially reluctant to seek professional care, several of them expressed the need for practical guidance to address the changing behavior of their parent. The children felt more comfortable talking to someone who was familiar with their situation and who had specific knowledge of YOD and the available services.
Conclusion:
In addition to practical information, more accessible and specific information about the diagnosis and the course of YOD is needed to provide a better understanding of the disease for the children. These findings underline the need for a personal, family-centered approach.
from
Part VI
-
Models for collaborative services and staff training
By
Clare Mahoney, National Institute for Mental Health (North-West Team) UK
Edited by
Michael Göpfert, Webb House Democratic Therapeutic Community, Crewe,Jeni Webster, 5 Boroughs Partnership, Warrington,Mary V. Seeman, University of Toronto
This chapter accounts on how organizations in Liverpool, UK, are working with children and families to implement the recommendations of a recent consultation with service users. A small development project called 'Keeping the family in mind' (KFIM) and run by Barnardos Action with Young Carers has been set up to facilitate and coordinate the change agenda. Adult and child services do not habitually connect and communicate. The chapter illustrates how this separateness can sometimes result in disservice to families. Learning from the KFIM consultation and its follow-up development project is used to illustrate how service users identify key problems in the existing service regime and point to those areas of work that would benefit from change. Increased participation of parents, carers and their children is required in planning and design of services in order to evaluate whether services help in the way they are supposed to.
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