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2 - Technology-Driven Disruption of Healthcare and ‘UI Layer’ Privacy-by-Design

from Part I - Platforms, Apps and Digital Health

Published online by Cambridge University Press:  08 September 2022

By
Marcelo Corrales Compagnucci ,
Mark Fenwick ,
Helena Haapio ,
Timo Minssen  and
Erik P. M. Vermeulen
Edited by
Marcelo Corrales Compagnucci ,
Michael Lowery Wilson ,
Mark Fenwick ,
Nikolaus Forgó  and
Till Bärnighausen
Marcelo Corrales Compagnucci
Affiliation:
University of Copenhagen
Michael Lowery Wilson
Affiliation:
University of Turku, Finland
Mark Fenwick
Affiliation:
Kyushu University, Japan
Nikolaus Forgó
Affiliation:
Universität Wien, Austria
Till Bärnighausen
Affiliation:
Universität Heidelberg
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Summary

The use of digital technologies in healthcare is changing how medical treatments are developed by researchers, delivered by medical professionals and experienced by patients. This chapter argues that a defining feature of this disruption is the emergence of medical apps that leverage algorithm-based AI systems. As the use of such apps and AI wearables goes mainstream and new players – notably ‘Super Platforms’ with digital rather than medical expertise – enter the healthcare sector, traditional medical services will be transformed.

These developments pose several challenges for regulators and policymakers, most obviously in terms of privacy and data protection. Here, we examine how the emerging field of Legal Design can provide a more transparent infrastructure that embeds relevant legal protections in the user interfaces of healthcare products and services. A Privacy-by-Design approach focused on the user interface (UI) offers several advantages, most obviously greater transparency, accountability and human choice. The chapter offers real-world examples of design patterns that illustrate the value of UI-focused Privacy-by-Design in protecting sensitive information, enabling people to retain control of their personal data. The chapter concludes with some examples and reflects on the challenges in implementing Legal Design in an eHealth context.

Keywords

AIalgorithmsappsdata protectiondesign patternsGDPRhealthcarelegal designprivacysuper platformsUI layer privacy-by-design
Type
Chapter
Information
AI in eHealth
Human Autonomy, Data Governance and Privacy in Healthcare
 , pp. 19 - 67
Publisher: Cambridge University Press
Print publication year: 2022

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References

Alexander, C, Ishikawa, S, Silverstein, M, Jacobson, M, Fiksdahl-King, I and Angel, S, A Pattern Language: Towns, Buildings, Construction (Oxford University Press 1977).Google Scholar
Alpaydin, E, Machine Learning: The New AI (MIT Press 2016).Google Scholar
Ananthan, A, ‘The Imminent Digital Health Revolution’ (Electronic Design, 4 October 2017), www.electronicdesign.com/embedded-revolution/imminent-digital-health-revolution, accessed 17 August 2021.Google Scholar
Anderson, D, A Question of Trust (Williams Lea Group 2015).Google Scholar
Apple, ‘CareKit’ (Apple Developer), https://developer.apple.com/carekit/, accessed 17 August 2021.Google Scholar
Apple, ‘CareKit’ (Apple ResearchKit & CareKit), www.researchandcare.org/carekit/, accessed 17 August 2021.Google Scholar
Apple, ‘Data and Privacy. Human Interface Guidelines/CareKit’ (Apple Developer), https://developer.apple.com/design/human-interface-guidelines/carekit/overview/data-and-privacy/, accessed 17 August 2021.Google Scholar
Apple, ‘Health and Fitness’ (Apple Developer), https://developer.apple.com/healthkit/, accessed 17 August 2021.Google Scholar
Apple, ‘Introducing ResearchKit’ (ResearchKit), http://researchkit.org, accessed 17 August 2021.Google Scholar
Apple, ‘iOS – Health’, www.apple.com/uk/ios/health/, accessed 17 August 2021.Google Scholar
Apple, ‘iOS – Research’, www.apple.com/ios/research-app, accessed 17 August 2021.Google Scholar
Apple, ‘Resources’ (Apple ResearchKit & CareKit), www.researchandcare.org/resources, accessed 17 August 2021.Google Scholar
Article 29 Data Protection Working Party, ‘Guidelines on the Right to Data Portability’ (16/EN, WP 242 rev.01, 5 April 2017), https://ec.europa.eu/newsroom/document.cfm?doc_id=44099, accessed 17 August 2021.Google Scholar
Article 29 Data Protection Working Party, ‘Guidelines on Transparency under Regulation 2016/679’ (17/EN, WP260 rev.01, 11 April 2018), https://ec.europa.eu/newsroom/document.cfm?doc_id=51025, accessed 17 August 2021.Google Scholar
Barone, V, MacDuffie, W, Guan, Y and Simon, S, ‘The Privacy Toolkit for Mobile Health Research Studies – Providing Biomedical Researchers with a Catalog of Privacy Design Patterns for Their Digital Studies’ (Privacy Forecast 2019), https://privacy.shorensteincenter.org/mobilehealth, accessed 17 August 2021.Google Scholar
Botes, WM, ‘Visual Communication as a Legal-Ethical Tool for Informed Consent in Genome Research Involving the San Community of South Africa’ (Doctoral thesis, University of South Africa 2017).Google Scholar
Breen, C, Secrets of the iPod and iTunes (5th edn, Peachpit Press 2004).Google Scholar
Budin-Ljøsne, I, Teare, HJA, Kaye, J, et al., ‘Dynamic Consent: A Potential Solution to Some of the Challenges of Modern Biomedical Research’ (2017) 18 BMC Medical Ethics art. 4, https://doi.org/10.1186/s12910-016-0162-9, accessed 17 August 2021.Google Scholar
Buvailo, A, ‘Get Ready for “Super-platforms” in Healthcare and Pharmaceutical Research’ (BiopharmaTrend.com, 27 September 2018), www.biopharmatrend.com/post/71-get-ready-for-super-platforms-in-healthcare-and-pharmaceutical-research, accessed 17 August 2021.Google Scholar
CitizenDoc, https://app.citizendoc.fr, accessed 9 March 2021.Google Scholar
Codagnonce, C, Karatzogianni, A and Matthews, J, Platform Economics: Rhetoric and Reality in the ‘Sharing Economy’ (Emerald Publishing 2019).Google Scholar
Corning, C, ‘The Rise of Super Platform’ (Cars.com, 17 October 2018), https://growwithcars.com/blog/2018/10/17/the-rise-of-the-super-platform, accessed 17 August 2021.Google Scholar
Corrales, M, Jurčys, P and Kousiouris, G, ‘Smart Contracts and Smart Disclosure: Coding a GDPR Compliance Framework’ in Corrales, M, Fenwick, M and Haapio, H (eds), Legal Tech, Smart Contracts and Blockchain (Springer 2019).Google Scholar
Corrales Compagnucci, M, Fenwick, M and Haapio, H, ‘Digital Technology, Future Lawyers and the Computable Contract Designer of Tomorrow’ in Corrales Compagnucci, M, Haapio, H and Fenwick, M (eds), The Research Handbook on Contract Design (Edward Elgar Publishing 2022).CrossRefGoogle Scholar
Corrales Compagnucci, M, Haapio, H and Fenwick, M (eds), The Research Handbook on Contract Design (Edward Elgar Publishing 2022).CrossRefGoogle Scholar
Corrales Compagnucci, M, Haapio, H, Hagan, M and Doherty, M (eds), Legal Design: Integrating Business, Design and Legal Thinking with Technology (Edward Elgar Publishing 2021).CrossRefGoogle Scholar
Corrales Compagnucci, M, Kono, T and Teramoto, S, ‘Legal Aspects of Decentralized and Platform-Driven Economies’ in Corrales Compagnucci, M, Forgó, N, Kono, T, Teramoto, S and Vermeulen, EPM (eds), Legal Tech and the New Sharing Economy (Springer 2020).Google Scholar
Corrales Compagnucci, M, Minssen, T, Seitz, C and Aboy, M, ‘Lost on the High Seas without a Safe Harbour or a Schield? Navigating Cross-Border Data Transfers in the Pharmaceutical Sector After Schrems II Invalidation of the EU-US Privacy Shield’ (2020) 4(3) European Pharmaceutical Law Review 153.Google Scholar
D’Acquisto, G, Domingo-Ferrer, J, Kikiras, P, Torra, V, de Montjoye, Y-A and Bourka, A, Privacy by Design in Big Data: An Overview of Privacy Enchanting Technologies in the Era of Big Data Analytics (European Union Agency for Network and Information Security ENISA 2015), www.enisa.europa.eu/publications/big-data-protection/at_download/fullReport, DOI: 10.2824/641480, accessed 17 August 2021.Google Scholar
Dankar, FK, Gergely, M, Malin, B, Badji, R, Dankar, SK and Shuaiba, K, ‘Dynamic-Informed Consent: A Potential Solution for Ethical Dilemmas in Population Sequencing Initiatives’ (2020) 18 Computational and Structural Biotechnology Journal 913, https://doi.org/10.1016/j.csbj.2020.03.027, accessed 17 August 2021.Google Scholar
De Arriba-Pérez, F, Caeiro-Rodríguez, M and Santos-Gago, JM, ‘Collection and Processing of Data from Wrist Wearable Devices in Heterogeneous and Multiple-User Scenarios’ (2016) 16(9) Sensors 1538, https://doi.org/10.3390/s16091538, accessed 17 August 2021.Google Scholar
Directive 95/46/EC of the European Parliament and of the Council of 24 October 1995 on the protection of individuals with regard to the processing of personal data and on the free movement of such data [1995] OJ L281/31.Google Scholar
Doerr, M, Suver, C and Wilbanks, J, ‘Developing a Transparent, Participant-Navigated Electronic Informed Consent for Mobile-Mediated Research’ (SageBionetworks, Paper 22 April 2016), https://ssrn.com/abstract_id=2769129, accessed 17 August 2021.Google Scholar
Doherty, M, Corrales Compagnucci, M, Haapio, H and Hagan, M, ‘A New Attitude to Law’s Empire: The Potentialities of Legal Design’ in Corrales Compagnucci, M, Haapio, H, Hagan, M and Doherty, M (eds), Legal Design: Integrating Business, Design and Legal Thinking with Technology (Edward Elgar Publishing 2021).Google Scholar
Eggers, WD, Turley, M and Kishnani, P, ‘The Future of Regulation: Principles for Regulating Emerging Technologies’ (Deloitte Insights, 19 June 2018), www2.deloitte.com/insights/us/en/industry/public-sector/future-of-regulation/regulating-emerging-technology.html, accessed 17 August 2021.Google Scholar
Ernst & Young, ‘A Vision for Platform Based Banking’ (2018), https://assets.ey.com/content/dam/ey-sites/ey-com/en_us/topics/financial-services/ey-a-vision-for-platform-based-banking.pdf, accessed 17 August 2021.Google Scholar
European Commission, ‘Proposal for a Regulation of the European Parliament and of the Council Laying Down Harmonised Rules on Artificial Intelligence (Artificial Intelligence Act) and Amending Certain Union Legislative Acts’ COM (2021) 206 final, https://digital-strategy.ec.europa.eu/en/library/proposal-regulation-european-approach-artificial-intelligence, accessed 17 August 2021.Google Scholar
European Commission, ‘Report on Safety and Liability Implications of AI, the Internet of Things and Robotics’ COM (2020) 64 final, https://ec.europa.eu/info/sites/info/files/report-safety-liability-artificial-intelligence-feb2020_en_1.pdf, accessed 17 August 2021.Google Scholar
European Commission, ‘Standard Contractual Clauses for International Transfers’ (Directorate-General for Justice and Consumers, 4 June 2021), https://ec.europa.eu/info/law/law-topic/data-protection/international-dimension-data-protection/standard-contractual-clauses-scc/standard-contractual-clauses-international-transfers_en, accessed 14 August 2021.Google Scholar
European Commission, ‘White Paper on Artificial Intelligence: A European Approach to Excellence and Trust’ COM (2020) 65 final, https://ec.europa.eu/info/sites/info/files/commission-white-paper-artificial-intelligence-feb2020_en.pdf, accessed 17 August 2021.Google Scholar
European Data Protection Board, ‘Recommendations 01/2020 on Measures that Supplement Transfer Tools to Ensure Compliance with the EU Level of Protection of Personal Data’ (version 2.0, adopted on 18 June 2021), https://edpb.europa.eu/system/files/2021-06/edpb_recommendations_202001vo.2.0_supplementarymeasurestransferstools_en.pdf, accessed 14 August 2021.Google Scholar
Fenwick, M, McCahery, JA and Vermeulen, EPM, ‘The End of “Corporate” Governance: Hello “Platform” Governance’ (2019) 20 European Business Organization Law Review 171, https://doi.org/10.1007/s40804-019-00137-z, accessed 17 August 2021.Google Scholar
Fenwick, M and Vermeulen, EPM, ‘The New Firm’ (2015) 16(4) European Business Organization Law Review 595, https://doi.org/10.1007/s40804-016-0040-4, accessed 17 August 2021.Google Scholar
Fernandez, E, ‘That Pill Is Watching You – Privacy and Hackability of Ingestible Electronic Sensors’ (Forbes, 3 September 2019), www.forbes.com/sites/fernandezelizabeth/2019/09/03/that-pill-is-watching-youprivacy-and-hackability-of-ingestible-electronic-sensors/#24420a08405e, accessed 17 August 2021.Google Scholar
Galloway, S, The Four: The Hidden DNA of Amazon, Apple, Facebook, and Google (Random House 2017).Google Scholar
Gamma, E, Vlissides, J, Johnson, R and Helm, R, Design Patterns: Elements of Reusable Object-Oriented Software (Addison-Wesley 1995).Google Scholar
GE Digital, ‘IIoT Platform – Predix Platform’, www.ge.com/digital/iiot-platform, accessed 17 August 2021.Google Scholar
Gerke, S, Minssen, T, Yu, H and Cohen, IG, ‘Ethical and Legal Issues of Ingestible Electronic Sensors’ (2019) 2(8) Nature Electronics 329, https://doi.org/10.1038/s41928-019-0290-6, accessed 17 August 2021.Google Scholar
GitHub, ‘Juro-privacy/free-privacy-notice’, https://github.com/juro-privacy/free-privacy-notice, accessed 9 August 2021.Google Scholar
Gjermundrød, H, Dionysiou, I and Costa, K, ‘PrivacyTracker: A Privacy-by-Design GDPR-Compliant Framework with Verifiable Data Traceability Controls’ in Casteleyn, S, Dolog, P and Pautasso, C (eds), Current Trends in Web Engineering. ICWE 2016 (Lecture Notes in Computer Science, vol. 9881, Springer 2016).Google Scholar
Gulamhuseinwala, I, ‘How Banks Could Join the Platform Economy’ (EY Financial Services, 2017), www.ey.com/gl/en/industries/financial-services/fso-insights-how-banks-could-join-the-platform-economy, accessed 25 May 2020.Google Scholar
Haapio, H, Next Generation Contracts: A Paradigm Shift (Lexpert Ltd 2013).Google Scholar
Haapio, H, Barton, TD and Corrales Compagnucci, M, ‘Legal Design for the Common Good: Proactive Legal Care by Design’ in Corrales Compagnucci, M, Haapio, H, Hagan, M and Doherty, M (eds), Legal Design: Integrating Business, Design and Legal Thinking with Technology (Edward Elgar Publishing 2021).Google Scholar
Haapio, H and Hagan, M, ‘Design Patterns for Contracts’ in Schweighofer, E, Kummer, F, Hötzendorfer, W and Borges, G (eds), Networks. Proceedings of the 19th International Legal Informatics Symposium IRIS 2016 (Österreichische Computer Gesellschaft 2016).Google Scholar
Haapio, H, Hagan, M, Palmirani, M and Rossi, A, ‘Legal Design Patterns for Privacy’ in Schweighofer, E, Kummer, F, Saarenpää, A and Schafer, B (eds), Data Protection/LegalTech. Proceedings of the 21st International Legal Informatics Symposium IRIS 2018 (Editions Weblaw 2018).Google Scholar
Haapio, H and Passera, S, ‘Contracts as Interfaces: Visual Representation Patterns in Contract Design’ in Katz, DM, Dolin, R and Bommarito, MJ (eds), Legal Informatics (Cambridge University Press 2021).Google Scholar
Haapio, H, Siedel, G and Bernal Fandiño, M, ‘Aplicación del Derecho Proactivo como una Ventaja Competitiva’ (2016) 31 Revista de Derecho Privado 265.Google Scholar
Hadfield, G, ‘Governments Can’t Handle Tech Regulation. It Is Time for Companies to Take Over’ (Quartz, 2 July 2018, updated 31 July 2018), https://qz.com/1316426/weve-disrupted-technology-now-its-time-to-disrupt-its-regulation/, accessed 17 August 2021.Google Scholar
Hagan, M, ‘Making Legal Design a Thing – and an Academic Discipline’ (Legal Design and Innovation Blog/Medium, 14 December 2018), https://medium.com/legal-design-and-innovation/making-legal-design-a-thing-and-an-academic-discipline-5a7e57fa43e8, accessed 17 August 2021.Google Scholar
Hagan, M, ‘6 Core Principles for Good Legal Design’ (Legal Design and Innovation Blog/Medium, 7 November 2016), https://medium.com/legal-design-and-innovation/6-core-principles-for-good-legal-design-1cde6aba866, accessed 17 August 2021.Google Scholar
Herrmann, M, Boehme, P, Mondritzki, T, Ehlers, JP, Kavadias, S and Truebel, H, ‘Digital Transformation and Disruption of the Health Care Sector: Internet-Based Observational Study’ (2018) 20(3) Journal of Medical Internet Research e104, https://doi.org/10.2196/jmir.9498, accessed 17 August 2021.Google Scholar
High-Level Expert Group on Artificial Intelligence, ‘Ethics Guidelines for Trustworthy AI’ (European Commission, 8 April 2019), https://digital-strategy.ec.europa.eu/en/library/ethics-guidelines-trustworthy-ai, accessed 17 August 2021.Google Scholar
Hijmans, H, The European Union as Guardian of Internet Privacy: The Story of Art. 16 TFEU (Springer 2016).Google Scholar
IF, ‘Data Patterns Catalogue’, https://catalogue.projectsbyif.com, accessed 17 August 2021.Google Scholar
IF, ‘Just-in-Time Consent’ (Data Patterns Catalogue), https://catalogue.projectsbyif.com/patterns/just-in-time-consent, accessed 17 August 2021.Google Scholar
Information Commissioner’s Office (ICO), ‘Privacy Notices, Transparency and Control. A Code of Practice on Communicating Privacy Information to Individuals’ (7 October 2016), www.pdpjournals.com/docs/88625.pdf, accessed 17 August 2021.Google Scholar
Juro, ‘The Juro Privacy Policy’, https://juro.com/policy.html, accessed 17 August 2021.Google Scholar
Landi, H, ‘Disruption and the Future of Healthcare: Industry Leaders Parse the Challenges, and Strategic Opportunities’ (Healthcare Innovation, 4 April 2018), www.hcinnovationgroup.com/population-health-management/article/13030041/disruption-and-the-future-of-healthcare-industry-leaders-parse-the-challenges-and-strategic-opportunities, accessed 17 August 2021.Google Scholar
Lannerö, P, ‘Fighting the Biggest Lie on the Internet: Common Terms Beta Proposal’ (Metamatrix 2013), http://commonterms.org/commonterms_beta_proposal.pdf, accessed 17 August 2021.Google Scholar
Luxton, DD, June, JD, Sano, A and Bickmore, T, ‘Intelligent Mobile, Wearable, and Ambient Technologies for Behavioral Health Care’ in Luxton, DD (ed.), Artificial Intelligence in Behavioral and Mental Healthcare (Academic Press 2016).Google Scholar
Lynskey, O, The Foundations of EU Data Protection Law (Oxford University Press 2015).Google Scholar
Maeda, J, The Laws of Simplicity: Design, Technology, Business and Life (MIT Press 2006).Google Scholar
McNealy, J and Flowers, A, ‘Privacy Law and Regulation: Technologies, Implications and Solutions’ in Zeadally, S and Badra, M (eds), Privacy in a Digital, Networked World: Technologies, Implications and Solutions (Springer 2015).Google Scholar
Mehmood, R, Faisal, MA and Altowaijri, S, ‘Future Networked Healthcare Systems: A Review and Case Study’ in Boucadair, M and Jackenet, C (eds), Handbook of Research on Redesigning the Future of Internet Architectures (IGI Global 2015).Google Scholar
Moore, S and Doerr, M, ‘The Elements of Informed Consent: A Toolkit’. Sage Bionetworks Governance Consent Toolkit (Megan Doerr ed., v3.0, Sage Bionetworks 2020), https://sagebionetworks.org/wp-content/uploads/2020/01/SageBio_EIC-Toolkit_V3_21Jan20_final.pdf, accessed 17 August 2021.Google Scholar
Murphy, K and Jain, N, ‘Riding the Disruption Wave in Healthcare’ (Forbes, 1 May 2018), www.forbes.com/sites/baininsights/2018/05/01/riding-the-disruption-wave-in-healthcare/#184a33652846, accessed 17 August 2021.Google Scholar
Nanos, I, Manthou, V and Androutsou, E, ‘Cloud Computing Adoption Decision in E-Government’ in Sifaleras, A and Petridis, K (eds), Operational Research in the Digital Era – ICT Challenges (Springer 2019).Google Scholar
Obar, JA and Oeldorf-Hirsch, A, ‘The Biggest Lie on the Internet: Ignoring the Privacy Policies and Terms of Service Policies of Social Networking Services’ (2020) 23(1) Information, Communication & Society 128.Google Scholar
Paine, J, ‘How These 3 Technologies Are Disrupting the Health Care Industry’ (Inc., 28 November 2017), www.inc.com/james-paine/3-disruptive-technologies-shaping-future-of-healthcare.html, accessed 17 August 2021.Google Scholar
Parker, GG, Van Alsyne, MW and Choudary, SP, Platform Revolution: How Networked Markets Are Transforming the Economy and How to Make Them Work for You (W. W. Norton 2016)Google Scholar
Passera, S, Beyond the Wall of Contract Text – Visualizing Contracts to Foster Understanding and Collaboration within and across Organizations (Doctoral Dissertation, Aalto University 2017).Google Scholar
Passera, S, ‘Juro Privacy Policy’, https://stefaniapassera.com/portfolio/juro/, accessed 17 August 2021.Google Scholar
Peyrou, B, Vignaux, J-J and André, A, ‘Artificial Intelligence and Healthcare’ in André, A (ed.), Digital Medicine (Springer 2019).Google Scholar
Pollari, I, ‘The Rise of Digital Platforms in Financial Services’ (KPMG 2018), https://assets.kpmg.com/content/dam/kpmg/xx/pdf/2018/02/kpmg-rise-of-digital-platforms.pdf, accessed 17 August 2021.Google Scholar
Privacypatterns.org, ‘About’, https://privacypatterns.org/about/, accessed 17 August 2021.Google Scholar
Quelle, C, ‘Not Just User Control in the General Data Protection Regulation: On the Problems with Choice and Paternalism, and on the Point of Data Protection’ in Lehmann, A, Whitehouse, D, Fischer-Hübner, S, Fritsch, L and Raab, C (eds), Privacy and Identity Management: Facing Up to Next Steps (Springer 2016).Google Scholar
Raisinghani, M, Idemudia, EC, Chekuri, M, Fisher, K and Hanna, J, ‘Cloud Computing in the 21st Century: A Managerial Perspective for Policies and Practices’ in Aljawarneh, S (ed.), Advanced Research on Cloud Computing Design and Applications (Idea Group 2015).Google Scholar
Rijcken, C, ‘Sequoias of Artificial Intelligence’ in Rijcken, C (ed.), Pharmaceutical Care in Digital Revolution: Insights Towards Circular Innovation (Academic Press/Elsevier 2019).Google Scholar
Rose, D, Enchanted Objects: Innovation, Design, and the Future of Technology (Simon and Schuster Inc 2015).Google Scholar
Rossi, A, ‘Legal Design for the General Data Protection Regulation. A Methodology for the Visualization and Communication of Legal Concepts’ (Dottorato di Ricerca in Law, Science and Technology, Alma Mater Studiorum Università di Bologna 2019).Google Scholar
Rossi, A, Ducato, R, Haapio, H and Passera, S, ‘When Design Met Law: Design Patterns for Information Transparency’ (2019) (122–123) Droit de la Consommation – Consumentenrecht DCCR 79.Google Scholar
Rossi, A, Ducato, R, Haapio, H, Passera, S and Palmirani, M, ‘Legal Design Patterns: Towards A New Language for Legal Information Design’ in Schweighofer, E, Kummer, F and Saarenpää, A (eds), Internet of Things. Proceedings of the 22nd International Legal Informatics Symposium IRIS 2019 (Editions Weblaw 2019).Google Scholar
Rossi, A and Haapio, H, ‘Proactive Legal Design for Health Data Sharing Based on Smart Contracts’ in Corrales Compagnucci, M, Fenwick, M and Wrbka, S (eds), Smart Contracts: Technological, Business and Legal Perspectives (Hart-Bloomsbury 2021).Google Scholar
Rossi, A and Lenzini, G, ‘Transparency by Design in Data-Informed Research: A Collection of Information Design Patterns’ (2020) 37 Computer Law & Security Review 105402, https://doi.org/10.1016/j.clsr.2020.105402, accessed 17 August 2021.Google Scholar
Sage Bionetworks, ‘Informed Consent’ (Privacy Toolkit), https://designmanual.sagebionetworks.org/informed-consent.html, accessed 17 August 2021.Google Scholar
Sage Bionetworks, ‘Just-in-Time Permission’ (Privacy Toolkit), https://designmanual.sagebionetworks.org/just-in-time-permission.html, accessed 17 August 2021.Google Scholar
Sage Bionetworks, ‘Overview’ (mPower 2.0), https://parkinsonmpower.org/study/overview, accessed 17 August 2021.Google Scholar
Sage Bionetworks, ‘Privacy Toolkit for Mobile Health Research Studies’, https://sagebionetworks.org/tools_resources/privacy-toolkit-for-mobile-health-research-studies, accessed 17 August 2021.Google Scholar
Schumacher, E, ‘Norway Consumer Council Completes 32-hour App Terms Read-a-thon’ (DW.com, 25 May 2016), www.dw.com/en/norway-consumer-council-completes-32-hour-app-terms-read-a-thon/a-19283288, accessed 17 August 2021.Google Scholar
Siegel, A and Etzkorn, I, Simple: Conquering the Crisis of Complexity (Twelve 2013).Google Scholar
Sobkow, B, ‘Forget Me, Forget Me Not – Redefining the Boundaries of the Right to be Forgotten to Address Current Problems and Areas of Criticism’ in Schweighofer, E, Leitold, H, Mitrakas, A and Rannenberg, K (eds), Privacy Technologies and Policy. APF 2017 (Lecture Notes in Computer Science, vol. 10518, Springer 2016).Google Scholar
Stanford Medicine, ‘Stanford Medicine 2018 Health Trends Report: The Democratization of Health Care’ (December 2018), https://med.stanford.edu/content/dam/sm/school/documents/Health-Trends-Report/Stanford-Medicine-Health-Trends-Report-2018.pdf, accessed 17 August 2021.Google Scholar
Svantesson, D, Extraterritoriality in Data Privacy Law (Ex Tuto Publishing 2013).Google Scholar
Tencent, ‘Tencent Open Platform’, http://open.qq.com/eng/, accessed 17 August 2021.Google Scholar
Thouvenin, F, ‘Big Data of Complex Networks and Data Protection Law: An Introduction to an Area of Mutual Conflict’ in Dehmer, M, Emmert-Streib, F, Pickl, S and Holzinger, A (eds), Big Data of Complex Networks (CRC Press 2017).Google Scholar
Voigt, P and von dem Bussche, A, The EU General Data Protection Regulation (GDPR): A Practical Guide (Springer 2017).Google Scholar
Wisman, THA, ‘Privacy, Data Protection and E-Commerce’ in Lodder, AR and Murray, AD (eds), EU Regulation of E-Commerce. A Commentary (Edward Elgar Publishing 2017).Google Scholar
WorldCC (World Commerce and Contracting), Passera, S and Haapio, H, ‘FAQ-Style Headings’ (WorldCC Contract Design Pattern Library), https://contract-design.worldcc.com/FAQ-headings?, accessed 17 August 2021.Google Scholar
WorldCC (World Commerce and Contracting), Passera, S and Haapio, H, ‘Layering’ (WorldCC Contract Design Pattern Library), https://contract-design.worldcc.com/library/layering, accessed 17 August 2021.Google Scholar
WorldCC (World Commerce and Contracting), Passera, S and Haapio, H, ‘Navigation’ (WorldCC Contract Design Pattern Library), https://contract-design.worldcc.com/library/navigation, accessed 17 August 2021.Google Scholar
WorldCC (World Commerce and Contracting), Passera, S and Haapio, H, ‘Organizing’ (WorldCC Contract Design Pattern Library), https://contract-design.worldcc.com/library/organizing, accessed 17 August 2021.Google Scholar
WorldCC (World Commerce and Contracting), Passera, S and Haapio, H, ‘Pattern Families’ (WorldCC Contract Design Pattern Library), https://contract-design.worldcc.com/families-overview, accessed 17 August 2021.Google Scholar
WorldCC (World Commerce and Contracting), Passera, S and Haapio, H, ‘Summarizing’ (WorldCC Contract Design Pattern Library), https://contract-design.worldcc.com/library/summarizing, accessed 17 August 2021.Google Scholar
WorldCC (World Commerce and Contracting), Passera, S and Haapio, H, ‘Timeline’ (WorldCC Contract Design Pattern Library), https://contract-design.worldcc.com/timeline?, accessed 17 August 2021.Google Scholar
WorldCC (World Commerce and Contracting), Passera, S and Haapio, H, ‘WorldCC Contract Design Pattern Library’, https://contract-design.worldcc.com, accessed 17 August 2021.Google Scholar
Your.MD, www.your.md, accessed 17 August 2021.Google Scholar
Zuboff, S, The Age of Surveillance Capitalism: The Fight for a Human Future at the New Frontier of Power (Public Affairs 2019).Google Scholar

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