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19 - Information Management and Adolescent Health

Privacy and Disclosure

from Part IV - Applications

Published online by Cambridge University Press:  12 December 2024

Judith G. Smetana
Affiliation:
University of Rochester, New York
Nicole Campione-Barr
Affiliation:
University of Missouri, Columbia
Lauree C. Tilton-Weaver
Affiliation:
Örebro University
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Summary

Adolescents’ ability to access health care depends on sharing accurate information about concerns, needs, and conditions. Parents and other adults serve as both resources and gatekeepers in adolescents’ ability to access and manage care. Understanding information sharing between adolescents and parents, adolescents and providers, and parents and providers is thus critical. This chapter distinguishes between adolescents’ routine and self-disclosure of information. The former refers to sharing information required for the partner to perform their role. The latter refers to voluntarily sharing more information than required. Because the roles of parent and provider are distinct relative to the adolescent, disclosure decisions can conflict. These differences are discussed in the context of communication privacy management theory and the literature on legitimacy of authority. A framework for understanding information sharing processes is developed that considers stage of care, type of care, stigma/privacy associated with the condition, and the age of the adolescent.

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References

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