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15 - Children with developmental disabilities and their parents

Published online by Cambridge University Press:  21 August 2009

By
Jeremy Turk
Edited by
Philip J. Graham
Jeremy Turk
Affiliation:
St. George's Hospital Medical School, London, UK
Philip J. Graham
Affiliation:
Institute of Child Health, University College London
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Summary

The term ‘developmental disabilities’ as used in this chapter refers to inborn, early-onset developmental delays leading to substantial impairments in mental functioning; in the case of ‘intellectual disability’ (also known widely throughout the UK as ‘learning disability’), these are consistent with performance on a test of intellectual functioning which would give an intelligence quotient (IQ) of below 70. The term is synonymous with the older terms ‘mental handicap’, ‘mental subnormality’ and ‘mental retardation’. It must be distinguished from the North American use of the term ‘learning disability’ which corresponds to what is usually described as ‘specific developmental delays’ such as dyslexia or dyscalculia. Having a marked and generalized learning difficulty is associated with an increased risk of emotional and behavioural disturbance for a variety of reasons (see Turk, 1996a for review). Having a child with severe learning difficulties also causes great problems for parents (Gath, 1977; Dupont, 1986; Romans-Clarkson et al., 1986) and siblings (Gath and Gumley, 1987; Gath, 1989). The major determinants of familial adjustment are the associated behavioural disturbances rather than the level of intellectual impairment. However, there is good evidence that the likelihood of having a psychiatric disorder, and of its being severe, are associated with the degree of learning difficulty and the related central nervous system dysfunction (Rutter et al., 1970; Bernal and Hollins, 1995).

Type
Chapter
Information
Cognitive Behaviour Therapy for Children and Families , pp. 244 - 262
Publisher: Cambridge University Press
Print publication year: 2004

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References

Alloy, L. B., Peterson, C., Abramson, L. Y. and Seligman, M. E. (1984). Attributional style and the generality of learned helplessness. Journal of Personality and Social Psychology, 46, 681–7CrossRefGoogle ScholarPubMed
Attwood, T. (1997). Asperger's Syndrome: A Guide for Parents and Professionals. London: Jessica Kingsley
Attwood, T. (2003). Framework for behavioral interventions. Child and Adolescent Psychiatric Clinics of North America, 12, 65–86CrossRefGoogle Scholar
Baron-Cohen, S. (1989). The autistic child's theory of mind: a case of specific developmental delay. Journal of Child Psychology and Psychiatry, 30, 285–97CrossRefGoogle ScholarPubMed
Bauminger, N. (2002). The facilitation of social-emotional understanding and social interaction in high-functioning children with autism: intervention outcomes. Journal of Autism and Developmental Disorders, 32, 283–98CrossRefGoogle ScholarPubMed
Beck, A. T. (1976). Cognitive Therapy and the Emotional Disorders. New York: International Universities Press
Bernal, J. and Hollins, S. (1995). Psychiatric illness and learning disability: a dual diagnosis. Advances in Psychiatric Treatment, 1, 138–45CrossRefGoogle Scholar
Bicknell, J. (1983). The psychopathology of handicap. British Journal of Medical Psychology, 56, 167–78CrossRefGoogle ScholarPubMed
Bradshaw, S. J. (1991). Successful cognitive manipulation of a stereotypic nightmare in a 40 year old male with Down's syndrome. Behavioural Psychotherapy, 19, 281–3CrossRefGoogle Scholar
Bramston, P. and Spence, S. H. (1985). Behavioural versus cognitive social-skills training with intellectually handicapped adults. Behaviour Research and Therapy, 23, 239–46CrossRefGoogle ScholarPubMed
Carr, J. (1985). The effect on the family of a severely mentally handicapped child. In A. M. Clarke, A. D. B. Clarke and J. M. Berg (eds.), Mental Deficiency: The Changing Outlook, 4th edn. London: Methuen, pp. 512–48
Cunningham, C., Morgan, P. and McGrucken, R. B. (1984). Down syndrome: is dissatisfaction with disclosure of diagnosis inevitable?Developmental Medicine and Child Neurology, 26, 33–9CrossRefGoogle ScholarPubMed
Dupont, A. (1986). Socio-psychiatric aspects of the young severely mentally retarded and the family. British Journal of Psychiatry, 148, 227–34CrossRefGoogle Scholar
Gath, A. (1977). The impact of an abnormal child upon the parents. British Journal of Psychiatry, 13, 405–10CrossRefGoogle Scholar
Gath, A. (1989). Living with a mentally handicapped brother or sister. Archives of Disease in Childhood, 64, 513–16CrossRefGoogle ScholarPubMed
Gath, A. and Gumley, D. (1987). Retarded children and their siblings. Journal of Child Psychology and Psychiatry, 28, 715–30CrossRefGoogle ScholarPubMed
Hackney, I. M., Hanley, W. B., Davidson, W. and Lindsao, L. (1968). Phenylketonuria: mental development, behavior and termination of the low phenylalanine diet. Journal of Pediatrics, 72, 646–55CrossRefGoogle ScholarPubMed
Happé, F. (1994). Autism: An Introduction To Psychological Theory. London: UCL Press
Harrison, J. E. and Bolton, P. F. (1997). Annotation: tuberous sclerosis. Journal of Child Psychology and Psychiatry, 38, 603–14CrossRefGoogle ScholarPubMed
Hobson, R. P. (1986). The autistic child's appraisal of expressions of emotion. Journal of Child Psychology and Psychiatry, 27, 321–42CrossRefGoogle ScholarPubMed
Kendall, P. C. and Lochman, J. (1994). Cognitive-behavioural Therapies. In M. Rutter, E. Taylor and L. Hersov (eds.), Child and Adolescent Psychiatry: Modern Approaches. Oxford: Blackwell Scientific, pp. 844–57
Kushlick, A. (1989). Helping Caring Adults to Enjoy Working Directly with People with Learning Difficulties who Also Have Severely Challenging Behaviours. Oxford: World Congress of Cognitive Therapy, Abstracts
Kymissis, P. and Leven, L. (1994). Adolescents with mental retardation and psychiatric disorders. In N. Bouras (ed.), Mental Health and Mental Retardation – Recent Advances and Practices. Cambridge: Cambridge University Press, pp. 102–7
Lindsay, W. R., Howells, L. and Pitcaithly, D. (1993). Cognitive therapy for depression with individuals with intellectual disabilities. British Journal of Medical Psychology, 66, 135–41CrossRefGoogle ScholarPubMed
Lindsay, W. R., Olley, S., Baillie, N. and Smith, A. H. W. (2000). Treatment of adolescent sex offenders with intellectual disabilities. Mental Retardation, 37, 201–112.0.CO;2>CrossRefGoogle Scholar
Oliver, C. (1995). Annotation: self-injurious behaviour in children with learning disabilities. Recent advances in assessment and intervention. Journal of Child Psychology and Psychiatry, 30, 909–27CrossRefGoogle Scholar
Panerai, S., Fewante, L. and Zingale, M. (2002). Benefits of the Treatment and Education of Autistic and Communication Handicapped Children (TEACCH) programme as compared with a non-specific approach. Journal of Intellectual Disability Research, 46, 318–27CrossRefGoogle ScholarPubMed
Romans-Clarkson, S. E., Clarkson, J. E., Dittmer, I. D.et al. (1986). Impact of a handicapped child on mental health of parents. British Medical Journal, 293, 1395–7CrossRefGoogle ScholarPubMed
Rutter, M., Graham, P. and Yule, W. (1970). A Neuropsychiatric Study in Childhood. Clinics in Developmental Medicine, No. 35/36. London: Heinemann/Spastics International Medical Publications
Schulman, P., Keith, D. and Seligman, M. E. (1993). Is optimism heritable? A study of twins. Behaviour Research and Therapy, 31, 569–74CrossRefGoogle Scholar
Seligman, M. E., Abramson, L. Y., Semmel, A. and Baeyer, C. (1984). Depressive attributional style. Southern Psychologist, 21, 18–22Google Scholar
Seligman, M. E., Nolen-Hoeksema, S., Thornton, N. and Thornton, K. M. (1990). Explanatory style as a mechanism of disappointing athletic performance. Psychological Science, 1, 143–6CrossRefGoogle Scholar
Sinason, V. (1992). Mental Handicap and the Human Condition: New Approaches from the Tavistock. London: Free Association Books
Tunali, B. and Power, T. G. (1993). Creating satisfaction: a psychological perspective on stress and coping in families of handicapped children. Journal of Child Psychology and Psychiatry, 34, 945–57CrossRefGoogle ScholarPubMed
Turk, J. (1996a). Working with parents of children who have severe learning disabilities. Clinical Child Psychology and Psychiatry, 1, 583–98CrossRefGoogle Scholar
Turk, J. (1996b). Tertiary Prevention of Childhood Mental Health Problems. In T. Kendrick, A. Tylee and P. Feeling (eds.), The Prevention of Mental Illness in Primary Care. Cambridge: Cambridge University Press, pp. 265–80
Turk, J. and Graham, P. (1997). Fragile X syndrome, autism and autistic features. Autism, 1, 175–97CrossRefGoogle Scholar
Turk, J. and Sales, J. (1996). Behavioural phenotypes and their relevance to child mental health professionals. Child Psychology and Psychiatry Review, 1, 4–11Google Scholar
Vostanis, P., Harrington, R., Prendergast, M. and Farndon, P. (1994). Case reports of autism with interstitial deletion of chromosome 17 (p11.2–p11.2) and monosomy of chromosome 5 (5pter–5p15.3). Psychiatric Genetics, 4, 109–11CrossRefGoogle Scholar
Whitman, T. L. (1994). Mental retardation. In L. W. Craighead, W. E. Craighead, A. E. Kazdin and M. J. Mahoney (eds.), Cognitive and Behavioral Interventions: An Empirical Approach to Mental Health Problems. Boston: Allyn and Bacon
Wikler, L., Wasow, M. and Hatfield, E. (1981). Chronic sorrow revisited: parent vs. professional depiction of the adjustment of parents of mentally retarded children. American Journal of Orthopsychiatry, 51, 63–70CrossRefGoogle ScholarPubMed
Willner, P., Jones, J., Tams, R. and Green, G. (2002). A randomized controlled trial of the efficacy of a cognitive-behavioural anger management group for clients with learning disabilities. Journal of Applied Research in Intellectual Disabilities, 15, 224–35CrossRefGoogle Scholar
Wing, L. (1996). The Autistic Spectrum. London: Constable

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