Book contents
- Dementia and Language
- Studies in Interactional Sociolinguistics
- Dementia and Language
- Copyright page
- Contents
- Figures
- Tables
- Contributors
- Transcript notation key
- Part 1 Introduction
- Part 2 Dementia and Diagnostics
- 2 Good Reasons for Non-standardization in the Administration of Cognitive Assessments
- 3 (Mis)alignment at Dementia Diagnosis
- 4 The Role of Applied Conversation Analysis to Enhance Equity in Care for People with Dementia from Minority Ethnic Groups
- Part 3 Dementia and Conversational Strategies
- Part 4 Dementia and Epistemics
- Part 5 Communicative Challenges in Everyday Social Life
- Index
- References
4 - The Role of Applied Conversation Analysis to Enhance Equity in Care for People with Dementia from Minority Ethnic Groups
from Part 2 - Dementia and Diagnostics
Published online by Cambridge University Press: 21 November 2024
Book contents
- Dementia and Language
- Studies in Interactional Sociolinguistics
- Dementia and Language
- Copyright page
- Contents
- Figures
- Tables
- Contributors
- Transcript notation key
- Part 1 Introduction
- Part 2 Dementia and Diagnostics
- 2 Good Reasons for Non-standardization in the Administration of Cognitive Assessments
- 3 (Mis)alignment at Dementia Diagnosis
- 4 The Role of Applied Conversation Analysis to Enhance Equity in Care for People with Dementia from Minority Ethnic Groups
- Part 3 Dementia and Conversational Strategies
- Part 4 Dementia and Epistemics
- Part 5 Communicative Challenges in Everyday Social Life
- Index
- References
Summary
The aim of this chapter is to discuss the role of applied Conversation Analysis in the overarching area of dementia care for minority ethnic groups in Europe: people who often do not receive the same quality of dementia care as majority populations. Analysis of an episode from a video-recorded, interpreter-mediated dementia assessment and accounts from ethnographic interviews and informal conversations with stakeholders are used as a vehicle for discussing the role of applied CA to intervene in the problem of inequity in care for minority ethnic persons with dementia. Even when CA studies, for example on dementia, get published and researchers present numerous important implications for relevant stakeholders, the road towards actual application is often long and complex. This chapter builds on the international collaboration between CA scholars and different stakeholders conducted over a period extending for ten years, also resulting in an impact at a societal level in terms of recommendations not just within the scientific community but also at an international, political level.
Keywords
- Type
- Chapter
- Information
- Dementia and LanguageThe Lived Experience in Interaction, pp. 73 - 100Publisher: Cambridge University PressPrint publication year: 2024
References
Aburto Maldonado, J. and Eklind, L. (2021) Tolksamarbete inom logopediska verksamheter. En enkätstudie ur tolkarnas perspektiv. [Interpreter Collaboration in Speech and Language Therapy Activities. A Questionnaire Study from the Interpreters’ Perspective]. MA thesis. Linköping University. https://www.diva-portal.org/smash/get/diva2:1567407/FULLTEXT01.pdf.Google Scholar
Alzheimer Europe (2018) The Development of Intercultural Care and Support for People with Dementia from Minority Ethnic Groups. www.alzheimer-europe.org/sites/default/files/alzheimer_europe_ethics_report_2018.pdf (retrieved 19 January 2022).Google Scholar
Antaki, C. (2011) Applied Conversation Analysis. Intervention and Change in Institutional Talk. Basingstoke: Palgrave Macmillan.Google Scholar
Antelius, E. and Kiwi, M. (2015) ‘Frankly, none of us know what dementia is: Dementia caregiving among Iranian immigrants living in Sweden’. Care Management Journals, 16(2): 79–94.CrossRefGoogle ScholarPubMed
Bockgård, G. (2004) Syntax som social resurs: en studie av samkonstruktionssekvensers form och funktion i svenska samtal [Syntax as a Social Resource: A Study of Form and Function of Co-construction Sequences in Swedish Conversation]. Doctoral dissertation. Uppsala University.Google Scholar
Bolden, G. (2000) ‘Toward understanding practices of medical interpreting: Interpreter’s involvement in history taking. Discourse Analysis, 2(4): 387–419.Google Scholar
Goodwin, M. H. and Goodwin, C. (1986) ‘Gesture and coparticipation in the activity of searching for a word.’ Semiotica, 62: 51–75.Google Scholar
Gove, D., Nielsen, T. R., Smits, C., Plejert, C., Rauf, M. A., Parveen, S., Jaakson, S., Golan Shemesh, D., Lahav, D., Kaur, R., Herz, M. K., Monses, J., Thyrian, J. R. and Georges, J. (2021) ‘The challenges of achieving timely diagnosis and culturally appropriate care of people with dementia from minority ethnic groups in Europe.’ International Journal of Geriatric Psychiatry, 36: 1823–1828.CrossRefGoogle ScholarPubMed
Hsieh, E. and Kramer, E. M. (2012) ‘Medical interpreters as tools: Dangers and challenges in the utilitarian approach to interpreters’ roles and functions.’ Patient Education & Counselling, 89(1): 158–162.CrossRefGoogle ScholarPubMed
Jansson, G. (2014) ‘Bridging language barriers in multilingual care encounters.’ Multilingua, 33(1–2): 201–232.CrossRefGoogle Scholar
Jansson, G., Plejert, C. and Lindholm, C. (2019) ‘The social organization of assistance in multilingual interaction in Swedish residential care.’ Discourse Studies 21(1): 67–94.CrossRefGoogle Scholar
Jones, D., Wilkinson, R., Jackson, C. and Drew, P. (2020) ‘Variation and interactional non-standardization in neuropsychological tests: The case of the Addenbrooke’s cognitive examination.’ Qualitative Health Research 30(3): 458–470.CrossRefGoogle ScholarPubMed
Kammarkollegiet [The Legal, Financial and Administrative Services Agency] (2020) God tolksed [Good Interpreting Practice]. www.kammarkollegiet.se/download/18.27f1fe4c168c1d817515205f/1551777027993/God_tolksed_mars2019.pdf (retrieved 19 January 2022).Google Scholar
Karliner, L. S., Jacobs, E. A., Chen, A. H. and Mutha, S. (2007) ‘Do professional interpreters improve clinical care for patients with limited English proficiency? A systematic review of the literature.’ Health Services Research, 42(2): 727–754.CrossRefGoogle ScholarPubMed
Langdon, W. H. and Saenz, T. I. (2016) Working with Interpreters and Translators: A Guide for Speech-Language Pathologists and Audiologists. San Diego, CA: Plural Publishing.Google Scholar
Lerner, G. H. (2004) ‘Collaborative turn sequences’, in Lerner, G. H. (ed.) Conversation Analysis. Studies from the First Generation. Amsterdam: John Benjamins Publishing Company, pp. 225–256.CrossRefGoogle Scholar
Lindholm, C. (2008) ‘Laughter, communication problems, and dementia.’ Communication & Medicine 5(1): 3–14.CrossRefGoogle ScholarPubMed
Majlesi, A. R. and Plejert, C. (2018) ‘Embodiment in tests of cognitive functioning: A study of an interpreter-mediated dementia evaluation.’ Dementia – the International Journal of Social Research & Practice, 17(2): 138–163.Google ScholarPubMed
Migrationsskolan (2019) Inga om men eller varför: att främja säker och jämlik kognitiv utredning genom tolk [No Ifs, Buts or Whys: To Promote Safe and Equal Cognitive Screening Using an Interpreter] Migrationsskolan report 2019:2. https://vardgivare.skane.se/kompetens-utveckling/rapporter/rapport/inga-om-men-eller-varfor/ (retrieved 19 January 2022).Google Scholar
Nasreddine, S. Z. (2003–2017) The Montreal Cognitive Assessment MoCA, www.mocatest.org (retrieved 19 January 2022).Google Scholar
Nielsen, T. R. and Jørgensen, K. (2013) ‘Visuoconstructional abilities in cognitively healthy illiterate Turkish immigrants: A quantitative and qualitative investigation.’ The Clinical Neuropsychologist 27(4): 681–692.CrossRefGoogle ScholarPubMed
Nielsen, T. R., Vogel, A., Phung, T. K., Gade, A. and Waldemar, G. (2011a) ‘Over- and under-diagnosis of dementia in ethnic minorities: A nationwide register-based study.’ International Journal of Geriatric Psychiatry, 26(11): 1128–1135.CrossRefGoogle ScholarPubMed
Nielsen, T. R., Vogel, A., Riepe, M. W., de Mendonca, A., Rodriguez, G., Nobili, F., Fade, A. and Waldemar, G. (2011b) ‘Assessment of dementia in ethnic minority patients in Europe: A European Alzheimer’s disease consortium survey.’ International Psychogeriatrics, 23(1): 89–95.CrossRefGoogle ScholarPubMed
Nielsen, T. R., Andersen, B. B., Kastrup, M., Phung, T. K. T. and Waldemar, G. (2011c) ‘Quality of dementia diagnostic evaluation for ethnic minority patients: A nationwide study.’ Dementia & Geriatric Cognitive Disorders, 31: 388–396.CrossRefGoogle ScholarPubMed
Nielsen, T. R., Segers, K., Vanderaspoilden, V., Beinhoff, U., Minthon, L., Pissiota, A., Bekkhus-Wetterberg, P., Hanevold Bjørkløf, G., Tsolaki, M., Gkioka, M. and Waldemar, G. (2019) ‘Validation of a European cross-cultural neuropsychological test battery (CNTB) for evaluation of dementia.’ International Journal of Geriatric Psychiatry, 34(1): 144–152.CrossRefGoogle ScholarPubMed
Plejert, C. (2022) ‘Challenges and remedies for interpreter-mediated dementia assessments’, in Gavioli, L. and Wadensjö, C. (eds.) Routledge Handbook on Public Service Interpreting. Abingdon: Routledge.Google Scholar
Plejert, C., Antelius, E., Yazdanpanah, M. and Nielsen, T. R. (2015) ‘“There’s a letter called ef.” On challenges and repair in interpreter-mediated tests of cognitive functioning in dementia evaluations: A case study.’ Journal of Cross-Cultural Gerontology 30: 163–187.CrossRefGoogle ScholarPubMed
Raymond, W. C. (2014) ‘Conveying information in the interpreter-mediated medical visit: The case of epistemic brokering.’ Patient Education & Counselling, 97: 38–46.CrossRefGoogle ScholarPubMed
Small, J., Chan, S. M., Drance, E., Globerman, J., Hulko, W., O’Connor, D., Perry, J., Stern, L. and Ho, L. (2015) ‘Verbal and non-verbal indicators of quality of communication between care staff and residents in ethnoculturally and linguistically diverse long-term care settings.’ Journal of Cross-Cultural Gerontology, 30: 285–304. https://doi.org/10.1007/s10823-015-9269-6.CrossRefGoogle Scholar
Söderman, M. and Rosendahl, S. P. (2016) ‘Caring for ethnic older people living with dementia: Experiences of nursing staff.’ Journal of Cross-Cultural Gerontology, 31(3): 311–326.CrossRefGoogle ScholarPubMed
Torkpoor, R., Fioretos, I., Essén, B. and Londos, E. (2022) ‘I know hyena. Do you know hyena? Challenges in interpreter-mediated dementia assessments, focusing on the role of the interpreter.’ Journal of Cross-Cultural Gerontology, 37: 45–67.CrossRefGoogle Scholar
Van De Mieroop, D., Bevilacqua, G. and Van Hove, L. (2012) ‘Negotiating discursive norms: Community interpreting in a Belgian rest home.’ Interpreting, 14(1): 23–54.CrossRefGoogle Scholar
Wilkinson, R. (2007) ‘Managing linguistic incompetence as a delicate issue in aphasic talk-in-interaction: On the use of laughter in prolonged repair sequences.’ Journal of Pragmatics, 39(3): 542–569.CrossRefGoogle Scholar
Yildiz, K., Aki, O. E., Can, U. A., Derle, E., Kibaroglu, S. and Barak, A. (2014) ‘Validation of Montreal Cognitive Assessment and discriminant power of Montreal Cognitive Assessment subtests in patients with mild cognitive impairment and Alzheimer dementia in Turkish population.’ Journal of Geriatric Psychiatry and Neurology, 27(2): 103–109.Google Scholar