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The development of a congenital heart programme quality dashboard to promote transparent reporting of outcomes

Published online by Cambridge University Press:  16 December 2015

Vijay Anand ,
Dominic Cave ,
Heather McCrady ,
Mohammed Al-Aklabi ,
David B. Ross ,
Ivan M. Rebeyka  and
Ian Adatia
Vijay Anand*
Affiliation:
Pediatric Cardiac Critical Care Unit, Division of Pediatric Critical Care, Stollery Children’s Hospital, Edmonton, Canada
Dominic Cave
Affiliation:
Pediatric Cardiac Critical Care Unit, Division of Pediatric Critical Care, Stollery Children’s Hospital, Edmonton, Canada
Heather McCrady
Affiliation:
Family Centered Care Council, Stollery Children’s Hospital, Edmonton, Canada
Mohammed Al-Aklabi
Affiliation:
Division of Pediatric Cardiac Surgery, Stollery Children’s Hospital, Edmonton, Canada
David B. Ross
Affiliation:
Division of Pediatric Cardiac Surgery, Stollery Children’s Hospital, Edmonton, Canada
Ivan M. Rebeyka
Affiliation:
Division of Pediatric Cardiac Surgery, Stollery Children’s Hospital, Edmonton, Canada
Ian Adatia
Affiliation:
Pediatric Cardiac Critical Care Unit, Division of Pediatric Critical Care, Stollery Children’s Hospital, Edmonton, Canada
*
Correspondence to: V. Anand, Pediatric Cardiac Critical Care Unit, Division of Pediatric Critical Care, Stollery Children’s Hospital, T6G2B7 Edmonton, Canada. Tel: 7809352741; Fax: 7804073595; E-mail: vijay.anand@albertahealthservices.ca
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Abstract

In 2001, the Institute of Medicine identified healthcare transparency as a necessity for re-designing a quality healthcare system; however, despite widespread calls for publicly available transparent data, the goal remains elusive. The transparent reporting of outcome data and the results of congenital heart surgery is critical to inform patients and families who have both the wish and the ability to choose where care is provided. Indeed, in an era where data and means of communication of data have never been easier, the paucity of transparent data reporting is paradoxical. We describe the development of a quality dashboard used to inform staff, patients, and families about the outcomes of congenital heart surgery at the Stollery Children’s Hospital.

Keywords

Publictransparencyqualitydashboardpaediatriccardiaccritical care
Type
Original Articles
Information
Cardiology in the Young , Volume 25 , Issue 8: HeartWeek 2015 , December 2015 , pp. 1579 - 1583
Copyright
© Cambridge University Press 2015 

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References

1.Bailes, JS. Crossing the quality chasm. Shaping the Future For Health. March 2001. Report from National Academy of Sciences, Washington.Google Scholar
2.Brown, DL, Clarke, S, Oakley, J. Cardiac surgeon report cards, referral for cardiac surgery, and the ethical responsibilities of cardiologists. J Am Coll Cardiol 2012; 59: 2378–2382.CrossRefGoogle ScholarPubMed
3.Sherman, KL, Gordon, EJ, Mahvi, DM, et al. Surgeons’ perceptions of public reporting of hospital and individual surgeon quality. Med Care 2013; 51: 1069–1075.CrossRefGoogle ScholarPubMed
4.Kiernan, F, Rahman, F. Measuring surgical performance: a risky game? Surgery 2015: 10–14.Google ScholarPubMed
5.Shahian, DM, Edwards, FH, Jacobs, JP, et al. Public reporting of cardiac surgery performance: part 1-history, rationale, consequences. Ann Thorac Surg 2011; 92 (Suppl 3): S2–S11.CrossRefGoogle ScholarPubMed
6.Gaies, M, Cooper, DS, Tabbutt, S, et al. Collaborative quality improvement in the cardiac intensive care unit: development of the Paediatric Cardiac Critical Care Consortium (PC4), August 2014. Cardiol Young 2015; 25: 951–957.CrossRefGoogle Scholar
7. STS Congenital Heart Surgery Public Reporting. 2015. Retrieved June 2015 from http://www.sts.org/congenital-public-reporting-module-searchGoogle Scholar
8.Cohen, E, Strickland, A. Is your pediatric heart hospital keeping secrets? We have answers. Retrieved June 2015 from http://www.cnn.com/interactive/2015/06/health/pediatric-heart-surgery/index.htmlGoogle Scholar
9.Anand, V, Scales, DC, Parshuram, CS, Kavanagh, BP. Registration and design alterations of clinical trials in critical care: a cross-sectional observational study. Intensive Care Med 2014; 40: 700–722.CrossRefGoogle ScholarPubMed
10.Halpern, SD, Salluh, JIF. Improving transparency in registration of randomized clinical trials in critical care. Intensive Care Med 2014; 40: 743–745.CrossRefGoogle ScholarPubMed
11.Chima, SC. Evaluating the quality of informed consent and contemporary clinical practices by medical doctors in South Africa: An empirical study. BMC Med Ethics 2013; 14 (Suppl 1): S3.CrossRefGoogle ScholarPubMed
12.Grady, C. Surgical medicine: imperfect and extraordinary. Narrat Inq Bioeth 2015; 5: 37–43.CrossRefGoogle ScholarPubMed
13.Gallagher, TH, Waterman, AD, Ebers, AG, Fraser, VJ, Levinson, W. Patients’ and physicians’ attitudes regarding the disclosure of medical errors. JAMA 2003; 289: 1001–1007.CrossRefGoogle ScholarPubMed
14.Boyle, D, O’Connell, D, Platt, FW, Albert, RK. Disclosing errors and adverse events in the intensive care unit. Crit Care Med 2006; 34: 1532–1537.CrossRefGoogle ScholarPubMed
15.Garbutt, J, Brownstein, DR, Klein, EJ, Waterman, A, Fraser, V, Gallagher, TH. Reporting and disclosing medical errors. Arch Pediatr Adolesc Med 2007; 161: 179–185.CrossRefGoogle ScholarPubMed