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The current status and future directions of efforts to create a global database for the outcomes of therapy for congenital heart disease

Part of: The International Society for Nomenclature of Paediatric and Congenital Heart Disease (ISNPCHD)

Published online by Cambridge University Press:  08 September 2005

Jeffrey P. Jacobs ,
Bohdan Maruszewski ,
Christo I. Tchervenkov ,
Francois G. Lacour-Gayet ,
Marshall L. Jacobs ,
David R. Clarke ,
J. William Gaynor ,
Thomas L. Spray ,
Giovanni Stellin  and
Martin J. Elliott
...Show all authors
Jeffrey P. Jacobs
Affiliation:
The Congenital Heart Institute of Florida, University of South Florida, Saint Petersburg, Florida, United States of America
Bohdan Maruszewski
Affiliation:
The Department of Cardiothoracic Surgery, Children's Memorial Health Institute, Warsaw, Poland
Christo I. Tchervenkov
Affiliation:
Cardiovascular Surgery, The Montreal Children's Hospital, McGill University Health Center, and Department of Surgery, McGill University, Montreal, Quebec, Canada
Francois G. Lacour-Gayet
Affiliation:
Denver Children's Hospital, University of Colorado, Denver, Colorado, United States of America
Marshall L. Jacobs
Affiliation:
St Christophers Hospital for Children Drexel, University College of Medicine, Philadelphia, Pennsylvania, United States of America
David R. Clarke
Affiliation:
Denver Children's Hospital, University of Colorado, Denver, Colorado, United States of America
J. William Gaynor
Affiliation:
The Cardiac Center at The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America
Thomas L. Spray
Affiliation:
The Cardiac Center at The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America
Giovanni Stellin
Affiliation:
Pediatric Cardiac Surgery Unit, University of Padova Medical School Padova, Padova, Italy
Martin J. Elliott
Affiliation:
The Great Ormond Street Hospital for Children National Health Service Trust, London, United Kingdom
Tjark Ebels
Affiliation:
University Hospital Groningen, Groningen, The Netherlands
Rodney C. G. Franklin
Affiliation:
Royal Brompton & Harefield National Health Service Trust, Harefield, Middlesex, United Kingdom
Marie J. Béland
Affiliation:
Cardiovascular Surgery, The Montreal Children's Hospital, McGill University Health Center, and Department of Surgery, McGill University, Montreal, Quebec, Canada
Hiromi Kurosawa
Affiliation:
Heart Institute of Japan, Tokyo Women's Medical University, Tokyo, Japan
Vera D. Aiello
Affiliation:
Heart Institute (InCor), Sao Paulo University School of Medicine, Sao Paulo, Brazil
Steven D. Colan
Affiliation:
Department of Cardiology, Children's Hospital, Harvard, Boston, Massachusetts, United States of America
Otto N. Krogmann
Affiliation:
Paediatric Cardiology, Heart Center, Duisburg, Germany
Paul Weinberg
Affiliation:
The Cardiac Center at The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America
Zdzislaw Tobota
Affiliation:
The Department of Cardiothoracic Surgery, Children's Memorial Health Institute, Warsaw, Poland
Rachel S. Dokholyan
Affiliation:
Duke Clinical Research Institute, Duke University Medical Center, Durham, North Carolina, United States of America
Eric D. Peterson
Affiliation:
Duke Clinical Research Institute, Duke University Medical Center, Durham, North Carolina, United States of America
Constantine Mavroudis
Affiliation:
Children's Memorial Hospital, Northwestern University, Chicago, Illinois, United States of America
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Extract

There are many reasons for seeking to create a global database with which to record the outcomes of therapy for congenital heart disease. Such a database can function as a tool to support a variety of purposes:

Type
PART 6: CARING FOR PATIENTS WITH CONGENITAL CARDIAC DISEASE
Information
Cardiology in the Young , Volume 15 , Supplement S1: Controversies Concerning the Ventriculo-Arterial Junctions and Other Topics , February 2005 , pp. 190 - 197
Copyright
© 2005 Cambridge University Press

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